Connect with others who understand.

sign up log in
About MyLupusTeam
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Cytoxan"

reset

Has Anyone Done Rituxan (rituximab) Treatment For Lupus Nephritis?

Has Anyone Done Rituxan (rituximab) Treatment For Lupus Nephritis?

Has anyone done rituxan (rituxmab) treatment for lupus nephritis in addition to the normal everyday lulupus nephritis medications? I just want to know about only this medication. Thank you

A MyLupusTeam Member said:

Not offended at all. I've been saying ineed to move back to Europe for years Lol. Yeah its costing me ~$3800 and that's the estimated price right now so I'm sure it'll end up being higher 😑

posted about 5 years ago

Trouble Urinating Since Cytoxan

Trouble Urinating Since Cytoxan

since having my 6 doses of cytoxan ive had a really hard time urinating. Like i have to sit there and really cconsintrate and wait for the urge. even when i have to go really bad and nothing will come out. Its like the muscle isnt working and my urge isnt working. Its really hard to explain. But its causing me pain bc when i have to go really bad and cant it hurts. Nothing is blocking it its just like my brain isnt grtting the message to my bladder that i have to pee so tge muscle wont work. And… read more

A MyLupusTeam Member said:

Just a heads up, I drink water all the time and my doctor sent me to Er. My sodium levels were way to low. They wanted me to decrease to 32 oz. in a day. I chose to salt everything so I could drink… read more

posted almost 4 years ago

Lupus Nephritis

Lupus Nephritis

How many on here suffer from lupus nephritis? If so what are your current treatments. My symptoms right now include lower body edema and high blood pressure. I am taking cyclosporine but want to seek out other treatments with my nephrologist. What are your symptoms and other medications that you take for a nephritis?

A MyLupusTeam Member said:

I've had edena in the past. My doctor has me on Maxide and Plaquenil. It works very well for me

posted over 1 year ago

Taking Cytoxan

Taking Cytoxan

Hello, I start my cytoxan infusion in two weeks for nerve issues. Is there anything to look forward to.? pros and cons.
Thank you

A MyLupusTeam Member said:

thank you for your answer

posted over 2 years ago

Has Having Lupus Caused You To Not Have Periods?

Has Having Lupus Caused You To Not Have Periods?

I haven't had a monthly period since a really bad flare that started in Jan of 2015. I feel better now but no periods still. Doctors cant figure out why. Has this happened to any women out there? What did they do for you? I am only 40 years old.

A MyLupusTeam Member said:

I haven't had a period since i first started Plaquenil. Before I started taking it I was very regular. The doctor told me it wasn't the medicine but I don't believe it

posted over 4 years ago

The Majority Of My Symptoms Have Been A Result Of Vasculitis And CNS Involvement. What Treatments Have Been Most Successful.

The Majority Of My Symptoms Have Been A Result Of Vasculitis And CNS Involvement. What Treatments Have Been Most Successful.

A MyLupusTeam Member said:

I just saw your question after a search on CNS involvement. Initially 15 years.ago I had severe symptoms of CNS lupus, and had to relearn to walk, talk, etc. I received cytoxan which helped put my… read more

posted almost 6 years ago

Cytoxan

Cytoxan

I have some questions as to those with severe SLE. I’m supposed to be going in for my second dose of cytoxan sometime this month and I’m very unsure if I would like to continue. I recently had a really bad flare up and had a seizure, I was sent to the hospital where they dosed me up on lots of ‘medication. They had me on mycophenalate(cellcept) but took me off because it was affecting my liver. They then decided to give me the first dose of cytoxan 500mg. After being released and coming back… read more

A MyLupusTeam Member said:

Maybe try to continue it? You’re taking a very low dose, max is 1000mg. Honestly for my ILD it was a wonder drug. It mostly makes you feel like shit But can also cause infertility in young women on it… read more

posted almost 4 years ago

IVIG And Hypogammaglobulinemia

IVIG And Hypogammaglobulinemia

RI was diagnosed last week with hypogammaglobulinemia. I'm trying to figure it out. The only thing I know is what the nurse said and that's that I have it. I know they are in the process of trying to get the IVIG approved. Any information about treatment, supplements, diet and whatever helps you is greatly appreciated. And please share your first IV infusion experience. I'm just trying to find my way.

A MyLupusTeam Member said:

I am reading about Cytoxan in my patients with SLE with Lupus Nephritis study group I'm learning more about Cytoxan as well as Benlysta and other Chemotherapy and immunosuppressants hope your son is… read more

posted over 5 years ago

Treatment Options

Treatment Options

Hello everyone my name is Jashetta and I am a 26 yr old married mom with 2 kids and I must say this lupus has been draining me mentally and physically. Lucky for me my job doesn’t require too much physical activity but I have my days where it’s unbearable, as I type I’m currently swollen in these areas, my feet, toes, buttock, arms, and throat and it is very irritaiting. So far I’ve taken prednisone and celecoxib and neither one is really helping me with this disease. At what point do doctors… read more

A MyLupusTeam Member said:

KathleenGuzzardo: thank you for your advice, don’t get me wrong some days I’m at work and be wanting to just go home and get in my bed because when I have my flare ups at work it is unbearable, I… read more

posted about 4 years ago

Cytoxan

Cytoxan

How many doses of Cytoxan IV usually is given before it starts to work?

A MyLupusTeam Member said:

It’s usually 6 doses minimum. I mean every rheumatologist does things differeny and there’s no guidelines for this however I just restarted it and that’s what I’m doing. When I first did it in 2011… read more

posted almost 4 years ago