Anyone taking plaquenil... i would like some insight.

Anyone taking plaquenil? I used to take plaquenil about 6 years ago and lots have changed for me since i was taken off of them. I was only on them for about a year long with voltaren and some other stuff. My new dr recently put me back on plaquenil alomg with humira injections, lyrica and cytoxan and idk what to expect with the plaquenil. I would love some insight or your stories on this medication. Thannks!

I have my first cytoxan infusion tomorrow. any ideas what to expect?

Can anyone give me any input on Cytoxin for Lupus Nephritis

Can anyone give me any input on Cytoxin for Lupus Nephritis

Could others share experience with cellcept and cutoxin?

My Lupus is no longer being controlled well with prednisone and Imuran. Plus having ling term side effects with prednisone. My vision is being affected; have serious double vision and am being sent to a neuro-opthamologist to confirm cranial nerve involvement, eye muscles attacked (we already know this) , and neuro involvement. So doc is changing me to cellcept in a week and plan will be to change to cytoxin when neuro-opthamologist confirms neuro… read more

Is there anything you can do to help stop hair loss?

The worst hair loss I've experienced in the past was due to medication (Imuran and Cytoxan). Hair loss stopped pretty much as soon as those medications stopped. I'm currently experiencing heavy hair loss just due to lupus activity I presume. Chunks come out in the shower, while brushing my hair, and I'm pulling hair off my clothes and body that have fallen out throughout the day. I'm currently on 5 mg of prednisone and 400mg of plaquenil. Does increasing dosage… read more

Does anyone have advice on how to get rid of mouth lesions?

The doctors don't seem to have an answer for this. My mouth, mostly the roof and my tongue just gets really raw and red and even water burns it. Sometimes steroids work but I've just finished my 3rd round of prednisone (starting with 20 mgs for 4 days and weening down 5 mgs evry 4 days.) It will clear up mostly but 2 days later it's back with a fury. The doctor mentioned a drug (cytoxin?) but he said it can make you pretty sick and it costs $300! Can't… read more

Abdominal swelling

Does anyone experience (or have experienced) abdominal swelling? For a month now, my stomach has been very hard and sticks out to the point where my belly button hurts and even looks like it's trying to pop out. I know it's not constipation because I have no problem with that. I eat plenty of vegetables and fruits, and drink plenty of water and dandelion tea. It's just painful because it feels very very hard to the touch, almost like muscle (except I have no abs), and feels like my stomach is… read more

Has anyone else experienced a flare up of low platelet counts? What kind of treatment are you doing to fix the issue?

I feel normal and fine except for the occasional fatigue here and there and achy joints and back, but lately I've been bruising like crazy. I don't remember hitting anything or bumping anything but I wake up with new bruises every day all over my body. I know that means my platelets are low. So I've been getting blood work done, everything with my blood is good except for my low platelet count of… read more

Anyone use Cytoxan for treatment of Lupus with ILD.