Has anyone done rituxan (rituxmab) treatment for lupus nephritis in addition to the normal everyday lulupus nephritis medications? I just want to know about only this medication. Thank you
since having my 6 doses of cytoxan ive had a really hard time urinating. Like i have to sit there and really cconsintrate and wait for the urge. even when i have to go really bad and nothing will come out. Its like the muscle isnt working and my urge isnt working. Its really hard to explain. But its causing me pain bc when i have to go really bad and cant it hurts. Nothing is blocking it its just like my brain isnt grtting the message to my bladder that i have to pee so tge muscle wont work. And… read more
How many on here suffer from lupus nephritis? If so what are your current treatments. My symptoms right now include lower body edema and high blood pressure. I am taking cyclosporine but want to seek out other treatments with my nephrologist. What are your symptoms and other medications that you take for a nephritis?
Hello, I start my cytoxan infusion in two weeks for nerve issues. Is there anything to look forward to.? pros and cons.
I haven't had a monthly period since a really bad flare that started in Jan of 2015. I feel better now but no periods still. Doctors cant figure out why. Has this happened to any women out there? What did they do for you? I am only 40 years old.
I have some questions as to those with severe SLE. I’m supposed to be going in for my second dose of cytoxan sometime this month and I’m very unsure if I would like to continue. I recently had a really bad flare up and had a seizure, I was sent to the hospital where they dosed me up on lots of ‘medication. They had me on mycophenalate(cellcept) but took me off because it was affecting my liver. They then decided to give me the first dose of cytoxan 500mg. After being released and coming back… read more
RI was diagnosed last week with hypogammaglobulinemia. I'm trying to figure it out. The only thing I know is what the nurse said and that's that I have it. I know they are in the process of trying to get the IVIG approved. Any information about treatment, supplements, diet and whatever helps you is greatly appreciated. And please share your first IV infusion experience. I'm just trying to find my way.
Hello everyone my name is Jashetta and I am a 26 yr old married mom with 2 kids and I must say this lupus has been draining me mentally and physically. Lucky for me my job doesn’t require too much physical activity but I have my days where it’s unbearable, as I type I’m currently swollen in these areas, my feet, toes, buttock, arms, and throat and it is very irritaiting. So far I’ve taken prednisone and celecoxib and neither one is really helping me with this disease. At what point do doctors… read more
How many doses of Cytoxan IV usually is given before it starts to work?