Lupus

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Cytoxan

Cytoxan

How many doses of Cytoxan IV usually is given before it starts to work?

A MyLupusTeam Member said:

It’s usually 6 doses minimum. I mean every rheumatologist does things differeny and there’s no guidelines for this however I just restarted it and that’… read more

posted over 1 year ago

Cytoxan

Cytoxan

I'm on Cytoxan for lupus cerebritis. Has anyone out there ever been on it for that? Did it work for you?

A MyLupusTeam Member said:

Never tried it I have no info on it. Sorry!!!

posted over 3 years ago

Could others share experience with cellcept and cutoxin?

Could others share experience with cellcept and cutoxin?

My Lupus is no longer being controlled well with prednisone and Imuran. Plus having ling term side effects with prednisone. My vision is being affected; have serious double vision and am being sent to a neuro-opthamologist to confirm cranial nerve involvement, eye muscles attacked (we already know this) , and neuro involvement. So doc is changing me to cellcept in a week and plan will be to change to cytoxin when neuro-opthamologist confirms neuro… read more

A MyLupusTeam Member said:

How did your visit go? And about the gabapentin, what issues cause you the desire to get off of it? Wondering as Ive been on it for years as it helps my… read more

posted 9 months ago

Anyone use Cytoxan for treatment of Lupus with ILD.

Anyone use Cytoxan for treatment of Lupus with ILD.

A MyLupusTeam Member said:

Interstitial lung disease and lupus from the NIH: Abstract
Systemic lupus erythematosis (SLE) is a heterogenous disease of unknown etiology. It is not… read more

posted over 1 year ago

Has anybody ever gone into early menopause because of cytoxan

Has anybody ever gone into early menopause because of cytoxan

A MyLupusTeam Member said:

Has a doctor checked your blood to find out your horomone level? That would probably be a good indicator. I have one son already so I knew the risks… read more

posted almost 5 years ago

Post 9 yrs cytoxan infusion. Permanent thin hair?

Post 9 yrs cytoxan infusion. Permanent thin hair?

Hello, my name is Acey I was diagnosed with lupus when I was 14. (Possible showed signs at birth but unconfirmed)

I did infusions of cytoxin & steroids for six months between age 20-21 for my kidneys in 2009. All went well enough. I am a lot better.

Currently I am almost 28 yrs old & my hair is still clearly the complete opposite of my once 3x too thick, curly, frizzy, untamable hair. My hair is so thin, fine & brittle. I use organic & or baby… read more

A MyLupusTeam Member said:

It was worth it to me. I am a lot better besides wounds that will never heal. And the fact that you can get leukemia and bladder cancer with that drug.… read more

posted about 3 years ago

Cytoxan and Azathiprine vs Cellcept?

Cytoxan and Azathiprine vs Cellcept?

Hi All,

I'm fairly new on this website. In the past I have done Cytoxan IV/prednisone etc to get my LN under control. Recently I have experienced a flare up and today my doctor told me I have to choose between Cytoxan/azathioprine or cellcept to get my flair down. ANy advice on which one is better or has less harsh side effects? I have never used cellcept and have one week to decide. Thanks alot!

A MyLupusTeam Member said:

My rheumatologist has a lot of experience with Cellcept and really thinks it is the best option. I did a little research and found it to be more… read more

posted about 2 years ago

Cytoxan and cellcept?

Cytoxan and cellcept?

I was wondering if anyone has or is taking 1 gram of cytoxan iv and Cellcept together? I am and you would think id have no immune system but my wbc is normal. I dont think my body is responding to treatment that well beside making me vomit and sick lol. Any experience would be helpful

A MyLupusTeam Member said:

@LupisFlorida in what way are they different? Do you have any experience with either. Hopefully you could shed some positive light!

posted over 2 years ago

Medication ?

Medication ?

Has anyone been on or is on cytoxan, or methotrexate? I'm curious the results and side effects. Thank you

A MyLupusTeam Member said:

I haven't lost any hair with my lupus. Like yeah hair comes out but my hair isn't thinning or anything. I'm just curious since it's a cheap drug

posted over 3 years ago