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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Cytoxan"

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Has Anyone With SLE And Lupus Nephritis Who Was Treated With Cytoxan Been Able To Have Children?

Has Anyone With SLE And Lupus Nephritis Who Was Treated With Cytoxan Been Able To Have Children?

I would love some "real world" advice form those who have been through this as opposed to physicians telling me childbirth "isn't a good idea" with no evidence to back it up even though I have been in remission for over 3 years and and am doing great clinically with GFR of 70, Creatinine of 0.7- 1.0, ANA of 10 and dsDNA of 1:40- 1:160. Thank you in advance!

A MyLupusTeam Member

Im so sorry you even have to ponder that. But after reading these responses, my take away is they seem to prove out something I told my own daughter…
That whatever decision you make will be the right… read more

Trouble Urinating Since Cytoxan

Trouble Urinating Since Cytoxan

since having my 6 doses of cytoxan ive had a really hard time urinating. Like i have to sit there and really cconsintrate and wait for the urge. even when i have to go really bad and nothing will come out. Its like the muscle isnt working and my urge isnt working. Its really hard to explain. But its causing me pain bc when i have to go really bad and cant it hurts. Nothing is blocking it its just like my brain isnt grtting the message to my bladder that i have to pee so tge muscle wont work. And… read more

A MyLupusTeam Member

Just a heads up, I drink water all the time and my doctor sent me to Er. My sodium levels were way to low. They wanted me to decrease to 32 oz. in a day. I chose to salt everything so I could drink… read more

Taking Cytoxan

Taking Cytoxan

Hello, I start my cytoxan infusion in two weeks for nerve issues. Is there anything to look forward to.? pros and cons.
Thank you

A MyLupusTeam Member

thank you for your answer

Has Having Lupus Caused You To Not Have Periods?

Has Having Lupus Caused You To Not Have Periods?

I haven't had a monthly period since a really bad flare that started in Jan of 2015. I feel better now but no periods still. Doctors cant figure out why. Has this happened to any women out there? What did they do for you? I am only 40 years old.

A MyLupusTeam Member

I haven't had a period since i first started Plaquenil. Before I started taking it I was very regular. The doctor told me it wasn't the medicine but I don't believe it

Has Anyone Done Rituxan (rituximab) Treatment For Lupus Nephritis?

Has Anyone Done Rituxan (rituximab) Treatment For Lupus Nephritis?

Has anyone done rituxan (rituxmab) treatment for lupus nephritis in addition to the normal everyday lulupus nephritis medications? I just want to know about only this medication. Thank you

A MyLupusTeam Member

Not offended at all. I've been saying ineed to move back to Europe for years Lol. Yeah its costing me ~$3800 and that's the estimated price right now so I'm sure it'll end up being higher 😑

The Majority Of My Symptoms Have Been A Result Of Vasculitis And CNS Involvement. What Treatments Have Been Most Successful.

The Majority Of My Symptoms Have Been A Result Of Vasculitis And CNS Involvement. What Treatments Have Been Most Successful.

A MyLupusTeam Member

I just saw your question after a search on CNS involvement. Initially 15 years.ago I had severe symptoms of CNS lupus, and had to relearn to walk, talk, etc. I received cytoxan which helped put my… read more

Lupus Nephritis

Lupus Nephritis

How many on here suffer from lupus nephritis? If so what are your current treatments. My symptoms right now include lower body edema and high blood pressure. I am taking cyclosporine but want to seek out other treatments with my nephrologist. What are your symptoms and other medications that you take for a nephritis?

A MyLupusTeam Member

I've had edena in the past. My doctor has me on Maxide and Plaquenil. It works very well for me

Cytoxan

Cytoxan

I have some questions as to those with severe SLE. I’m supposed to be going in for my second dose of cytoxan sometime this month and I’m very unsure if I would like to continue. I recently had a really bad flare up and had a seizure, I was sent to the hospital where they dosed me up on lots of ‘medication. They had me on mycophenalate(cellcept) but took me off because it was affecting my liver. They then decided to give me the first dose of cytoxan 500mg. After being released and coming back… read more

A MyLupusTeam Member

Maybe try to continue it? You’re taking a very low dose, max is 1000mg. Honestly for my ILD it was a wonder drug. It mostly makes you feel like shit But can also cause infertility in young women on it… read more

IVIG And Hypogammaglobulinemia

IVIG And Hypogammaglobulinemia

RI was diagnosed last week with hypogammaglobulinemia. I'm trying to figure it out. The only thing I know is what the nurse said and that's that I have it. I know they are in the process of trying to get the IVIG approved. Any information about treatment, supplements, diet and whatever helps you is greatly appreciated. And please share your first IV infusion experience. I'm just trying to find my way.

A MyLupusTeam Member

I am reading about Cytoxan in my patients with SLE with Lupus Nephritis study group I'm learning more about Cytoxan as well as Benlysta and other Chemotherapy and immunosuppressants hope your son is… read more

Hello All, I Was Wondering If Any Of You All Do Or Have Done The IV Infusions Therapy? If Yes, How Do You Feel About It?

Hello All, I Was Wondering If Any Of You All Do Or Have Done The IV Infusions Therapy? If Yes, How Do You Feel About It?

A MyLupusTeam Member

I am on Benlysta. I didn’t think it was doing anything until I missed an appointment. I got caught in the hurricane in Florida. I believe it has cut some inflammation but I feel like I get one thing… read more