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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Tylenol"

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Do U Have Bad Headaches?

Do U Have Bad Headaches?

Head throbbing Tylenol want stop it

A MyLupusTeam Member

Take Magnisium

How Do You Manage Flares Between Appointments? I Don't Meet The New Rheumatologist For 11 More Days.

How Do You Manage Flares Between Appointments? I Don't Meet The New Rheumatologist For 11 More Days.

I just finished a course of steroids and I am allergic to NSAID. Tylenol is a cruel joke, at this point, and I feel like I might not make it 11 days. I feel awful.

A MyLupusTeam Member

steroids, my pain meds and lidocaine gel for locallized pain

What Has Been Your Experience With Benlysta?

What Has Been Your Experience With Benlysta?

My Dr had prescribed Benlysta as my condition has continued to deteriorate. I was wondering if others here have or are taking it and if it helps or not. If it did help how long did you take it b4 u saw results? Anyone experience side effects and if so what were they?

A MyLupusTeam Member

Thank you!😌

Pain Control

Pain Control

Can everyone tell me what they use for pain control? My kidneys aren’t good (so no NSAIDS 😭) and this leg, shoulder, and hand pain is starting to really get to me. Suggestions?

Eternally grateful,
Future Ghost

A MyLupusTeam Member

My kidneys were bad with a cluster of stones on my right side and a couple on my left side. I changed my spring water and drank more water with citrus in it
I have IBS with Diarrhea and… read more

Has Anyone Tried Any Of The CBD Products?

Has Anyone Tried Any Of The CBD Products?

I am taking plaquenil for the Lupus, Duloxetine for the fibromyalgia and Tylenol for the aches, but with this cold wet weather nothing is working very well. I have broken 4 bones in a 4-month period and diagnosed with osteopenia. Just wonder if anyone has had any luck with CBD?

A MyLupusTeam Member

@A MyLupusTeam Member

Has Anyone Else Ever Had A Reaction To Benlysta Or COVID Vaccines Called Serum Sickness Or Serum Sickness Like Syndrome (SSLS)?

Has Anyone Else Ever Had A Reaction To Benlysta Or COVID Vaccines Called Serum Sickness Or Serum Sickness Like Syndrome (SSLS)?

After having a bad reaction to my first COVID vaccine (and all of the subsequent boosters) I contacted the FDA and after a couple of years finally got a possible answer. Monoclonal antibodies (including the ones in Benlysta) can "very rarely" (don't know what that means) cause serum sickness in which the body created antibodies to attack the monoclonal antibodies (which isn't a new concept for lupus patients, our T and B cells hate us with a passion)
I was advised to get an antibody test to… read more

A MyLupusTeam Member

When I took the benlysta infusion I was premedicated with 1000mg tylenol 125 mg benedryl and 40 mg solumedrol to prevent allergic reaction. Hope this helps

Anyone Having Headaches, Pretty Much All The Time?

Anyone Having Headaches, Pretty Much All The Time?

I've been having near-constant headaches. Sometimes they're mild, other times I can barely stand it. Tylenol hardly touches them, and I can't take NSAIDs due to blood thinners for APS. I had a CT on Friday which was clear, thank goodness. Next f/u with neuro is only in March. Is anyone else dealing with constant mild-to-severe headaches?

A MyLupusTeam Member

I get headaches and migraines all the time. Sometimes the only thing that will take it away is sumatriptan and sleep. I sometimes use a traction device to stretch my neck. That seems to help for a… read more

Anyone Had Infusions Before? Any Advice 😭

Anyone Had Infusions Before? Any Advice 😭

A MyLupusTeam Member

I have been getting the Benlysta Infusions 2 years now. They help take the inflammation off of my body. But will thin your hair. They make you tired the day after getting them. The Infusion team will… read more

How Does The Combination Of Plaquenil And Methotrexate Make You Feel?

How Does The Combination Of Plaquenil And Methotrexate Make You Feel?

After 8 weeks of methotrexate, I was hoping to feel relief from joint pain, fatigue. Have been on plaquenil for almost a year. Maybe I was just too hopeful?

A MyLupusTeam Member

And also for you, DellaBella.