Lupus

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Symptoms are so scattered I’m not sure what to tell my doctor?

Symptoms are so scattered I’m not sure what to tell my doctor?

I’m 18 and I’ve been having horrible moving chest pains for 3 years now. Attacks can range from small aches, short jabs, to the feeling of a broadsword being thrust in and out of my ribs. They can last a few seconds or a few hours. They worsen with any movement or breathing. There seems to be no trigger.
I’ve been seeing doctors continuously for the past few years trying to get help with little results, and no clue in diagnosis. A few weeks ago a got a… read more

A MyLupusTeam Member said:

I know sometimes it's hard or embarrassing to have so many things to tell your doctor but you can't feel better if you aren't open with him/her. They… read more

posted about 2 hours ago

Hair loss from sle lupus

Hair loss from sle lupus

Hey - I have recently been diagonsed with SLE and am now taking plaquinel and predisone (started four days ago). I have been losing a lot of hair since June, should this stop soon? Any special hair products anyone uses? The photo is what I caught in the shower today.

A MyLupusTeam Member said:

I lost half my hair , broke off all over, with Plaquenil lots has grown back since March! I use Not My Mothers shampoo & conditioner, strong growth… read more

posted about 2 hours ago

Searching for a diagnosis and anxiety

Searching for a diagnosis and anxiety

Hi everyone, as many of you know I’m still in diagnosis limbo. It’s been 7 weeks and still no word from my rheumatologist with test results. I’m pretty peeved is the polite way to put it.

Anyway, I was wondering how those of you who are still searching for a diagnosis deal with the anxiety of not knowing what’s going on in your body. The pains and processes I’ve been experiencing for the last year causes me a great deal of anxiety. I’m seeing a therapist regularly and have… read more

A MyLupusTeam Member said:

I get all wound up but...

posted about 4 hours ago

Does anyone experience loss in brain function that never comes back to normal.

Does anyone experience loss in brain function that never comes back to normal.

I used to live reading.Now I can't follow the story line anymore I totally lose track after a paragraph so there's no point in reading books.i cannot memorize anything new not even a phone number ,dates, times even for a short period of time.i have forgotten alit of things that are important to me and I no way of finding it in my mind. Memories of childhood things are getting sharper but newer stuff fading I suddenly recall childhood… read more

A MyLupusTeam Member said:

I Understand How You Feel. I Have Problems Memorizing Lots Of Things Because Of Epilepsy Seizures, Insomnia, Side Effects Of Medications & Being… read more

posted about 5 hours ago

Newly diagnosed with Mixed connective Tissue Disease

Newly diagnosed with Mixed connective Tissue Disease

Hi all, I’m new here. I’m upset, sad, confused...but glad I have some answers. Here is my story. I’m married with 4 kids, 33 years old. I’ve felt off for the past few years. Last May, 2018, I went in to my doc for extreme fatigue, hair loss, excruciating neck pain, weak arms, numbness in my arms, legs, hands and feet, daily headaches and dizzy spells and my skin burning, itching, like it hurt to be touched. My doctor called for an MRI and when things came back… read more

A MyLupusTeam Member said:

Hello I know it is hard to have a family and keep yourself up!!!! Please be sure
when the kids take a Nap You Take A Nap!!!!!! That is what I did and I… read more

posted about 7 hours ago

Anyone feel like their feet and arms fall asleep super fast since diagnosed with Lupus?

Anyone feel like their feet and arms fall asleep super fast since diagnosed with Lupus?

Hey y'all

Ive been meaning to ask this question. Some days I'll be sitting indian style or just one leg under the other or even just sleeping and i constantly feel my legs and my arms falling asleep real frequently. sometimes i toss and turn alot because my arms fall asleep alot when im sleeping. And when im sitting im constantly having to adjust.

A MyLupusTeam Member said:

Good memory of your dad.

posted about 13 hours ago

Anyone experience sudden hip/groin pain with lupus?

Anyone experience sudden hip/groin pain with lupus?

I have very sudden and severe hip/groin pain when walking or climbing stairs. I had the same last year before my diagnosis of lupus - the er doctor and the orthopedic couldn’t find anything wrong. Anyone else experience this related to their lupus?

A MyLupusTeam Member said:

My rheumatologist, after three year to continuous pain which again started in my hips. My primary doctor could not figure out what was going on so she… read more

posted 7 months ago

Peripheral Vision

Peripheral Vision

Has anyone else lost peripheral vision and very forgetful since diagnosis with Systemic Lupus Homogeneous pattern 1:640? They prescribed me some steroids prednisone and it’s not helped if anything it’s worst. I’m waiting to get in with a rheumatologist hopefully next week. Just extremely hard to drive and I have to go to work can’t afford to miss or call in.

A MyLupusTeam Member said:

I’m so sorry that’s terrible is it associated with lupus

posted about 23 hours ago

Bruising

Bruising

Does anyone on here suffer from easy bruising? I have had lupus for 11 years, but i didn’t start bruising till about 2 years ago and it is bad! I cant wear shorts because my legs are all bruised up. I have year old bruises that fade, but never completely go away. Ive tried leg make up, spay tans... I have gone to a dermatologist and my rheumy... and no one can give me an answer! What tips and tricks can you recommend? Supplements?

A MyLupusTeam Member said:

Interesting... i will try the arica oil! Thank you!

posted 1 day ago

Why do some of u guys blame medically proven SLE causes on innocent meds?

Why do some of u guys blame medically proven SLE causes on innocent meds?

I’ve had undiagnosed SLE for most of my adult life. And I haven’t even taken one single pill for SLE until I was diagnosed in 2018. During all of those years I’ve had Alopecia, ”hot flashes”, sweating, anemia and many, many other common SLE symptoms. I’ve seen a top Dermatologist who told me that my hair loss and the few bald spots I had for past 8-9 years was only because of SLE inflammations. In fact my hair was growing back again in the… read more

A MyLupusTeam Member said:

Thank you @lunilein

edited, originally posted 5 months ago
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