Sorry for asking so many questions, but I have no one else to ask. Anyone have trouble with a rash on their hands. Not really a rash per say, more like tiny fluid filled bumps that are very itchy and sometimes ( depending on location such as fingertips) very painful. When I get them, every few weeks, I usually end up with 6-10 on each hand. They last for 3-4 days, then dry up and peel off. Rhuematology says she has no idea, dermatologists says possibly a form of eczema.
Hi so this is my 3rd day on Plaquenil. I’ve noticed I have very bad headaches and my eyes feel very sensitive and my vision is blurry especially when trying to focus. The pharmacist said I may just need time adjusting to the medication. Has this happened to anyone?
Last Thursday I was in bed asleep and began shaking uncontrollably. I was also babbling and or moaning. I opened my eyes and thought to myself, ‘ my god I’m having a seizure’ . I tried to stop but could not but after what seemed like forever ( only seconds I’m sure) it stopped. I sat up in bed and was very confused. Ever. Nothing seemed real and half that day the confusion stayed with me as well as a shaky feeling on the inside. Very weird. Anyone else experience anything like this?
Today my body is so cold I do not know why? I feel like a ice box. Anyone else had/or having this problem. The blanket and socks is not working for me.
I have had trouble with foot pain, specifically the ball of my feet for a couple of years, but for the past several months the bottoms of my toes burn like they are on fire. Anyone else have this? Also for a couple of months now my low back, not my spine I don’t think, it’s sort of between my spine and right hip, it hurts almost unbearably, to the point where I have to freeze for a moment to let it ease up and then move. This happens 24 hrs a day whether I’m sitting, standing,… read more
have been on numerous drugs and have had problems with many of them- plaquenil caused severe itching and rash, chloroquine caused bad depression and mood swings( just was taken off of it) Methotrexate caused mouth sores which I am about ready to accept having mouth sores over some of the other side effects of the other drugs...... I don't want to get pumped up on prednisone while they figure this out.
I suffer from depression and anxiety which is making this all very… read more
I had a tooth surgically removed two days ago, and today I am feeling horrible. Sore throat. Headache. Body hurts. Just exhausted. Can having small surgical procedures done send you into a flare? I assumed it would considering the immune system is active working to heal the wound.
Hi, i just got out of the hospital diagnosed with Pulmonary Hypertension, which can be caused by lupus. Anyone else with this diagnosis? My lungs collapsed and that brought me to the doctor because i was short of breath, they did a whole bunch of testing, and found that i have respiratory muscle weakness, like off the charts weak.. A mitral valve prolapse, and this PH. I was told not to google PH but of course i did and I'm hoping someone can tell me it's not as bad as Google says.
Lupus Foundation of America
Earlier today we shared with you an update regarding the U.S. House of Representatives passing a bill which includes $5 million in critical funding for lupus research. We are thrilled to inform you that in addition to this great news, the Senate Appropriations Committee today voted to approve two spending bills with critical new funding to advance lupus research, including a $1 million increase for the National Lupus Patient Registry!
Has anyone else experienced severe leg and ankle pain while on prednisone? If so what did you do? It happens during the night and is excruciating.