Afraid to tell woman about my different medical conditions and she wouldn't want to go out with me.
My throat has been bothering me for the past couple days . My espophgus hurts bad roght now . When i drink it doesnt go down the right pipe or my food . The oncall dr said i could need another dialation. I have a history of dialation procedures. I thought it was a sore throat but its not .
I’ve noticed I had a few symptoms of Schleroderma/mctd like reynauds , esophageal motility problems , telangiectasis, vascular issues etc.... my Rheum says most of my symptoms can be explained by lupus so I may have it but let’s just focus on what we know which is lupus . However , the collagen overproduction with Schleroderma always confused me, should I not put things on my skin that produce collagen, should I not get fillers that make you grow collagen with time , should I not take… read more
Well I'm pretty frustrated and want some answers. I'm a 22 yr old female, diagnosed with SLE about 2 years ago now although had shown symptoms for years before. I started having joint problems young, around 10-12 years old. Everyone called me "double jointed" although that's not even an actual thing. So I could do cool things like twist my arm in a full circle, make my top joint of my fingers lock in place, shake my eyes erraticly etc. So now a good 10 years… read more
How often do you have flares? I work full time in a stressful job. Even using plaquenil I'm having flares about once a month. I'm curious if that is common. I'm considering making a work change.
As a graduate student, I am required to teach two lab sections. I like teaching my lab sections. It is fun. This semester I have heard a lot of my students complaing about stress and anxiety. I was thinking about creating a “Self Care” assignment for them. They would have to spend at least 1 hour doing something for themselves without feeling guilty about having to study. Going to graduate school and dealing with lupus and person problems has been stressful to say the least but self care has really… read more
I’ve seen quite a few single ppl with Lupus in North america that are looking to find partners. And some single parents here too (not sure if they’re looking?). But I’m thinking wouldn’t it be easier to have support when raising children?
So why don’t all of u guys start a Lupus match and matrimonial place? I’m European so unfortunately I can’t help u with a lot since I barely know canadian or american geography even.
You can do it!!!! Come on guys!
I feel I am such high maintenance around others. I'm always dealing with symptoms of dry eyes, dry mouth, troubles swallowing, pain when getting up and down, brain fog. It takes so much energy when around people! How do you manage all your symptoms and the maintenance it takes to keep them under control (eye drops, biotene, water, moving slowly (big one!), fatigue and inflammation… read more
When i was diagnosed and at my worst with my health i repeatedly stated i wish i had cancer cause then I'd have something to fight other then myself..... I'm ashamed to say it but I've become very jealous of my partners mother because i feel like since he knows I'm terminally ill and thats just that.... His mother is fine they removed the mass chemo is working shes up and doing house renovations.... But hes worried about her twenty four seven and when i flare up he just ignores me...… read more
My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily because… read more