Lupus

Questions + Answers

Don't see your question? ask question
All Questions Most Answered Most Useful Needs Answers Resources:
View:

Looking to get back into dating how do some of you tell someone you're interested in bout your medical issues

Looking to get back into dating how do some of you tell someone you're interested in bout your medical issues

Afraid to tell woman about my different medical conditions and she wouldn't want to go out with me.

A MyLupusTeam Member said:

Hello Jay, I have found myself in the same situation as yourself. I was afraid to date, but being alone just isn't how I want to spend my life. So, I… read more

posted about 3 hours ago

Lupus and esophagaus issues

Lupus and esophagaus issues

My throat has been bothering me for the past couple days . My espophgus hurts bad roght now . When i drink it doesnt go down the right pipe or my food . The oncall dr said i could need another dialation. I have a history of dialation procedures. I thought it was a sore throat but its not .

A MyLupusTeam Member said:

I have been having trouble with swallowing and sore throat. I never really thought about it being part of lupus. Wow if its not one thing its another… read more

posted about 3 hours ago

Schleroderma/ MCTD

Schleroderma/ MCTD

I’ve noticed I had a few symptoms of Schleroderma/mctd like reynauds , esophageal motility problems , telangiectasis, vascular issues etc.... my Rheum says most of my symptoms can be explained by lupus so I may have it but let’s just focus on what we know which is lupus . However , the collagen overproduction with Schleroderma always confused me, should I not put things on my skin that produce collagen, should I not get fillers that make you grow collagen with time , should I not take… read more

A MyLupusTeam Member said:

I’ll take medications if they actually Make sense and would work , so far all meds for lupus have made me worse , Schleroderma has no treatment .. I… read more

posted 1 day ago

Loose joints (tendons/ligaments)

Loose joints (tendons/ligaments)

Hi everyone,

Well I'm pretty frustrated and want some answers. I'm a 22 yr old female, diagnosed with SLE about 2 years ago now although had shown symptoms for years before. I started having joint problems young, around 10-12 years old. Everyone called me "double jointed" although that's not even an actual thing. So I could do cool things like twist my arm in a full circle, make my top joint of my fingers lock in place, shake my eyes erraticly etc. So now a good 10 years… read more

A MyLupusTeam Member said:

I hope u guys get diagnose and medical advice now. Most of us here have all dealt with the pain, worry and anxiety of not getting diagnosed soon enough.… read more

edited, originally posted about 4 hours ago

Flares

Flares

How often do you have flares? I work full time in a stressful job. Even using plaquenil I'm having flares about once a month. I'm curious if that is common. I'm considering making a work change.

A MyLupusTeam Member said:

Too little sleep is worse than stress. Most sick ppl forget they could need up to 9-10+ hours for their bodies to heal while sleeping.

posted about 4 hours ago

Self care

Self care

As a graduate student, I am required to teach two lab sections. I like teaching my lab sections. It is fun. This semester I have heard a lot of my students complaing about stress and anxiety. I was thinking about creating a “Self Care” assignment for them. They would have to spend at least 1 hour doing something for themselves without feeling guilty about having to study. Going to graduate school and dealing with lupus and person problems has been stressful to say the least but self care has really… read more

A MyLupusTeam Member said:

I have one of those that my mom gave me!!!

posted 1 day ago

To all Lupus singles!

To all Lupus singles!

I’ve seen quite a few single ppl with Lupus in North america that are looking to find partners. And some single parents here too (not sure if they’re looking?). But I’m thinking wouldn’t it be easier to have support when raising children?

So why don’t all of u guys start a Lupus match and matrimonial place? I’m European so unfortunately I can’t help u with a lot since I barely know canadian or american geography even.

You can do it!!!! Come on guys!

A MyLupusTeam Member said:

Bless you and your children.

posted 1 day ago

What social activities do you do and how do you manage your symptoms (pain, eye sensitivity to sunlight, etc.) While doing them?

What social activities do you do and how do you manage your symptoms (pain, eye sensitivity to sunlight, etc.) While doing them?

I feel I am such high maintenance around others. I'm always dealing with symptoms of dry eyes, dry mouth, troubles swallowing, pain when getting up and down, brain fog. It takes so much energy when around people! How do you manage all your symptoms and the maintenance it takes to keep them under control (eye drops, biotene, water, moving slowly (big one!), fatigue and inflammation… read more

A MyLupusTeam Member said:

Lately, I am not socializing due to all the symptoms. If I have a good day, I will try not to lose energy to be able to enjoy with friends indoor… read more

posted 2 days ago

Why do i feel like nothing

Why do i feel like nothing

When i was diagnosed and at my worst with my health i repeatedly stated i wish i had cancer cause then I'd have something to fight other then myself..... I'm ashamed to say it but I've become very jealous of my partners mother because i feel like since he knows I'm terminally ill and thats just that.... His mother is fine they removed the mass chemo is working shes up and doing house renovations.... But hes worried about her twenty four seven and when i flare up he just ignores me...… read more

A MyLupusTeam Member said:

I only have SLE.... I wasn't diagnosed until 2012.... But the doctor I stopped seeing believed I developed it as a child.... The white lines I get… read more

posted 3 days ago

Memory loss

Memory loss

My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily because… read more

A MyLupusTeam Member said:

Yikes! This sounds like my experience exactly (except I am physically unable to continue working). I keep a thin 2 yr calendar in my purse at all times.… read more

posted 3 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in