So I’ve been keeping a diet for SLE, chrohns disease, lactose intolerance and celiacs disease but recently I’ve been reading a lot about histamine intolerance and I think that may be contributing to some continued symptoms. Histamine intolerance can be caused by many lupus medications including nsaids, prednisone, plaquenil, diuretics, gastric reflex meds etc. too much histamine in the body can cause brain fog, skin issues, severe menstrual cramps , anxiety, increased heart rate, insomnia,… read more
I discovered and confirmed my lupus diagnosis after having a huge rash on my scalp. Felt like a 2nd degree burn. Couldn't comb hair and head was on fire. At first diagnosed with discoid, after meeting my rheumy and blood work I was confirmed SLE. Scalp cleared after losing lots of hair, and the rest being in poor condition. You know the drill. With good supplements and hair growth products (not rogaine) my hair returned to it's former fullness and shine over a few months. Fast forward 5 years… read more
I am currently taking Chloroquine, Azathropine, Heloperidol, Vitamin D, Asprin and another pack that i take at night only (forgot the name). I have been taking these for about 4years now and I have never experienced vaginal dryness before until now. I do not know if its any of these medication that's causing it or its the contraceptive i'm using (Nistrate), but i have been using… read more
face. This blood workup (this is third one all with negative results) and it was positive for ANA and ANTI-DNA DS. Being referred to rheumotologist for another workup. Everything I have read has pointed to Lupus. My doctor just called and she just said it warranted more testing. Just wondering what other tests are there?
I’m driving myself nuts the rheumatologist says I have SLE only but I can’t help but wonder if something’s missing ?? Do I have schleroderma? It’s scary because most people as they age use collagen and retinal and vit c to look younger and feel younger but with schleroderma you produce too much collagen so this may be dangerous and nobody talks about this stuff . I do have reynauds disease which is charastic of sle and schleroderma. I have the charastic schleroderma indentation… read more
I'm newly diagnosed in November, and my dsDNA levels keep climbing every time they test them, currently at 23, was at 16 on first test. Is this really high? What are other's levels? I read somewhere that increase of dsDNA of more than 25% can be indication of a flare, even before c3/c4 show, and greater risk of kidney issues, but i have no sense of how high my levels are compared to others with Lupus. Thanks.
I know for us just doing just normal daily things is exhausting I'm like that too I'm now in remission and have more good days than bad days and have a pretty good grasp on knowing how hard I can push myself before I bring the wrath of the beast on me.Before I got sick I had no interest in skateboarding but now after diagnosis it has(just to cruise on my longboard and enjoy the wind in my hair no Tony Hawk tricks)I'm actually pretty good at it I go outside(in 30… read more
Does anyone else have scalp issues? My scslp has always burned in random patches after I wash my hair but this time the burning hasn't gone away and sores (some rash looking) form in the spots that burn.
My best friend from middle school, high school, college from Florida was in LA for a few days for a convention for Work with her husband. I never really talk to her anymore aside from the occasional “like” on Facebook and I haven’t seen her in over ten years . She messaged me a few months ago saying she would be in town and would love to meet up , I told her well I can’t plan ahead but we will see when Your here (knowing Subconsciously I wasn’t gonna… read more