Anyone have pain in their flank area, sort of under the ribs, but normal tests? It tends to come and go, and flare up at the same time as I'm getting pain elsewhere. I don't think it's muscular, but can't figure out what else it could be. Can your kidneys be inflamed/bothersome but all the normal tests be normal? Could it be referred pain from GI issues? Thanks.
Hi so this is my 3rd day on Plaquenil. I’ve noticed I have very bad headaches and my eyes feel very sensitive and my vision is blurry especially when trying to focus. The pharmacist said I may just need time adjusting to the medication. Has this happened to anyone?
Last Thursday I was in bed asleep and began shaking uncontrollably. I was also babbling and or moaning. I opened my eyes and thought to myself, ‘ my god I’m having a seizure’ . I tried to stop but could not but after what seemed like forever ( only seconds I’m sure) it stopped. I sat up in bed and was very confused. Ever. Nothing seemed real and half that day the confusion stayed with me as well as a shaky feeling on the inside. Very weird. Anyone else experience anything like this?
Today my body is so cold I do not know why? I feel like a ice box. Anyone else had/or having this problem. The blanket and socks is not working for me.
I have had trouble with foot pain, specifically the ball of my feet for a couple of years, but for the past several months the bottoms of my toes burn like they are on fire. Anyone else have this? Also for a couple of months now my low back, not my spine I don’t think, it’s sort of between my spine and right hip, it hurts almost unbearably, to the point where I have to freeze for a moment to let it ease up and then move. This happens 24 hrs a day whether I’m sitting, standing,… read more
Lupus Foundation of America
Earlier today we shared with you an update regarding the U.S. House of Representatives passing a bill which includes $5 million in critical funding for lupus research. We are thrilled to inform you that in addition to this great news, the Senate Appropriations Committee today voted to approve two spending bills with critical new funding to advance lupus research, including a $1 million increase for the National Lupus Patient Registry!
Does anyone have good treatments for mouth sores? I’ve gotten painful lesions on my tongue and inside my mouth for the last 35 years, and only recently found a couple products that helped. The best one is the over the counter Colgate mouthwash called Peroxyl. You are only supposed to use it for a week, but mine were gone in five days. The other thing I found is L-Lysine, an over the counter protein precursor. I take it daily and after serval weeks it started… read more
From the beginning of treatment my rheumy put me on 400mg of Plaquenil daily. I take one pill in the morning and one at night. I struggled sticking to my meds and treatment plan for the first couple months or my diagnosis because I was in denial and didn't really believe it so I just recently started taking my medications again as prescribed (I was diagnosed October 2015).
Does anyone have issues swallowing? Even just my own saliva is difficult to swallow sometimes. And i get the esophogeal spasms all the time. Both my internist and rheumy say i present for scleroderma and i know this is a symptom of it but does anyone else without a scleroderma diagnosis experience this?
@A MyLupusTeam Member https://en.m.wikipedia.org/wiki/Proton-pump_inh...
Weather has no effect. I’ve tried lineament pain patches creams and Motrin. Not supposed to take Motrin because of my kidneys. I’ve used the pills to help with joints but it doesn’t work. Turmeric isn’t helping. Any suggestions?