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Catch up on the latest updates, events, and voices of others living with lupus.
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You’ve Just Been Diagnosed With Lupus. Now What?

You’ve Just Been Diagnosed With Lupus. Now What?

We all respond differently to information about our health. After learning you have lupus, you might be stunned, scared, or even relieved to have answers that explain skin rashes, joint and muscle pain, or fatigue. No matter what you’re feeling,...
Posted 10/03/2019

Uncovering Lupus Symptoms Beyond Fatigue and Joint Pain

Uncovering Lupus Symptoms Beyond Fatigue and Joint Pain

MyLupusTeam is committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of...
Posted 09/23/2019

Symptoms That Affect MyLupusTeam Members the Most

Symptoms That Affect MyLupusTeam Members the Most

MyLupusTeam has committed to sharing members’ experience with lupus back with the MyLupusTeam community. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms...
Posted 09/23/2019

Skin Symptoms That Affect MyLupusTeam Members the Most

Skin Symptoms That Affect MyLupusTeam Members the Most

The impact lupus has on quality of life is significant. MyLupusTeam conducted a survey with 308 members diagnosed with lupus, including either systemic lupus erythematosus (SLE) or cutaneous forms of lupus (meaning lupus that affects skin)....
Posted 09/23/2019
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Living Your Best Life Despite Lupus Symptoms

Living Your Best Life Despite Lupus Symptoms

Lupus is a conundrum - not easily solved, a puzzle, and a very challenging disease. I have come so far since my lupus diagnosis. I grew up. I learned that my illness doesn't define me, but adds challenges to my life and my career.While lupus has...
Posted 09/17/2019
How good boundaries make life with lupus easier

How Good Boundaries Make Life With Lupus Easier

How Good Boundaries Make Life With Lupus Easier

There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in relationships is important for everyone, especially for people with a chronic condition like lupus. Setting and defending boundaries allows you to protect your...
Posted 09/11/2019
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Tap Into the Power of Directness: Use "I"

Tap Into the Power of Directness: Use "I"

Living with lupus can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than you did before you developed lupus. Do you have a tough time being direct with others about how you feel? It's not...
Posted 08/16/2019
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Who's the One Person You Should Always Keep Your Promise To?

Who's the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a commitment to "you" time on a regular basis to tend to yourself. Keep a regular date with yourself to focus on whatever helps you feel calm and centered in...
Posted 07/16/2019
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Member Spotlight: The Start of a New Chapter

Member Spotlight: The Start of a New Chapter

What does lupus mean to me? For me, lupus was first and foremost an ANSWER after numerous tests and a lengthy hospital stay. I spent eight hellish days lying in a hospital bed scared that I would die. It then meant RELIEF; I finally had a name to...
Posted 07/09/2019
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Telling White Lies

Telling White Lies

Have you ever told a white lie to be kind, to protect the feelings of others, or maybe to simply avoid stigma? You're not alone.For some living with a chronic condition, telling a white lie can be a way to save one's strength. Sometimes it's...
Posted 06/26/2019
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