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Catch up on the latest updates, events, and voices of others living with lupus.
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Tap Into the Power of Directness: Use "I"

Tap Into the Power of Directness: Use "I"

Living with lupus can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than you did before you developed lupus. Do you have a tough time being direct with others about how you feel? It's not...
Posted 08/16/2019
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Who's the One Person You Should Always Keep Your Promise To?

Who's the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a commitment to "you" time on a regular basis to tend to yourself. Keep a regular date with yourself to focus on whatever helps you feel calm and centered in...
Posted 07/16/2019
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Member Spotlight: The Start of a New Chapter

Member Spotlight: The Start of a New Chapter

What does lupus mean to me? For me, lupus was first and foremost an ANSWER after numerous tests and a lengthy hospital stay. I spent eight hellish days lying in a hospital bed scared that I would die. It then meant RELIEF; I finally had a name to...
Posted 07/09/2019
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Telling White Lies

Telling White Lies

Have you ever told a white lie to be kind, to protect the feelings of others, or maybe to simply avoid stigma? You're not alone.For some living with a chronic condition, telling a white lie can be a way to save one's strength. Sometimes it's...
Posted 06/26/2019
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Relationships and Lupus

Relationships and Lupus

Relationships and Lupus Life with lupus can put a strain on existing relationships and make it challenging to pursue new ones. Members of MyLupusTeam share the ups and downs of dating, relationships, and marriage while living with lupus....
Posted 06/06/2019
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Say "No" by Saying "Yes" to Something Else

Say "No" by Saying "Yes" to Something Else

Saying "no" with grace and honesty can be challenging. Sometimes our fear of ending a conversation awkwardly or letting a friend or relative down can nudge us into saying "yes" to things that are difficult for us. When managing a chronic...
Posted 06/05/2019
Treating mouth sores during lupus flares

Treating Mouth Sores During Lupus Flares

Treating Mouth Sores During Lupus Flares

Treating Mouth Sores During Lupus FlaresMouth sores, also called oral ulcers, are a common symptom of lupus flares. They are also one of the symptoms doctors look for when diagnosing lupus. Mouth sores may show up on the roof of the mouth or...
Posted 05/30/2019
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Insomnia and Lupus

Insomnia and Lupus

Insomnia and LupusInsomnia is a frequent challenge for people with lupus. Discomfort from lupus symptoms, medication side effects, and symptoms from co-occurring conditions like fibromyalgia can all cause sleep disturbances. Sleep problems are...
Posted 05/24/2019
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Putting Yourself First

Putting Yourself First

Have you ever put someone’s else’s needs ahead of your own? We all do it - we’re human, after all. There is a name for this generous tendency. Economists refer to this situation, when one person's well-being cannot be improved without making...
Posted 05/16/2019
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Weight Gain and Lupus

Weight Gain and Lupus

Weight Gain and Lupus Members of MyLupusTeam frequently write about struggles with weight gain. Medication side effects and lack of physical activity due to lupus symptoms top the list of weight gain contributors. Prednisone is raised again and...
Posted 05/09/2019
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