Lupus

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Any thing to know about airline tavel with lupus

Any thing to know about airline tavel with lupus

A MyLupusTeam Member said:

I fly to Tennessee a couple times year. With no problems with medication.
Just have them in bottle with your name on it from the pharmacy.

posted about 1 hour ago

Tingling and Trimers

Tingling and Trimers

I have a ? for everyone please.Do anyone of you have tingling allover your body.Have any Dr found the cause of it.I have Trimers in both of my hands. It's Driving me Crazy.

A MyLupusTeam Member said:

Thank You for your Help it's a help to know I'm not alone.My Husband trys to help the best he can but he Really hard for him to understand what I'm… read more

posted about 2 hours ago

What sunscreen do y'all use for flair ups?

What sunscreen do y'all use for flair ups?

A MyLupusTeam Member said:

I just started using Neutrogena 100spf face age shield about two weeks ago. I like the way it feels on my face and neck. It's not greasy or does not… read more

posted about 2 hours ago

Tiny bumps back of throat

Tiny bumps back of throat

Hello all,

I was wondering if anyone has ever experienced tiny white bumps on the back of the throat? I think it may be the reason I have had this terrible cough.

A MyLupusTeam Member said:

Go get checked. Praying for you

posted about 4 hours ago

AVISE CTD

AVISE CTD

Has anyone had this test done? Was it helpful at all? I’ve heard it can be very pricey. Thanks!

A MyLupusTeam Member said:

I’m guessing. I’m sure I have other issues going on on top of the Lupus/Endometriosis/seizure disorder (because what’s one more? Lol) my Dr. just said… read more

posted about 5 hours ago

Has anyone taken methotrexate for a rash that prednisone and hydroxychloroquine wouldn’t get rid of?

Has anyone taken methotrexate for a rash that prednisone and hydroxychloroquine wouldn’t get rid of?

I’ve been on 15 mg of prednisone and 300 hydroxychloroquine for ~4 months and my rash will not go away. My dermatologist recommended methotrexate- I just was curious about anyone’s experience with it. Thanks!

A MyLupusTeam Member said:

But i know it is bad for the longrun

posted about 2 hours ago

What sleeping pill can I Take when you have lupus and MS

What sleeping pill can I Take when you have lupus and MS

Only sleeping about 4 to 5 hrs

A MyLupusTeam Member said:

Clonazepams, Xanax get in to primary then to therapist and get on it for good through therapist! Knowing u have lupus and anxiety attack they'll give… read more

posted about 5 hours ago

Esohagitis

Esohagitis

Anybody had esophagitis before . Mine has gotten worse feels like my throat on fire .. im in the mist of getting magic mouthwash and getting a endoscopy . Also what can i eat when i have esophagitis ?

A MyLupusTeam Member said:

@A MyLupusTeam Member im waiting on my EGD too im hoping i can get something too to help mine . Its no fun at all.

posted about 12 hours ago

Negative pregnancy tests but actually pregnant?

Negative pregnancy tests but actually pregnant?

Hi there possible early symptoms of pregnancy, I have SLE. I thought I had the stomach flu then a UTI - I don't it all came back fine. Very nauseous, abdominal pain and pressure, exhausted, frequent urination, dizzy.. My last period only lasted 2-3 days. 13years ago I had twins with HG before my lupus dx. When I was pregnant with my twins every urine test was negative until 11 weeks! I'd only be about 4 weeks today, they ordered an ultrasound and bloodwork. Is… read more

A MyLupusTeam Member said:

Praying for you.

posted 1 day ago

High RBC and hemoglobin?

High RBC and hemoglobin?

Hi guys! I just got a phone call from my rheumatologists office saying my blood counts were elevated and to have them re-checked next week. The nurse said it could be due to many causes but when I asked what they would be she said the doctor didn’t say but to have my labs re-done. I logged into my online chart and it says my red blood count is 6.14 and a hemoglobin of 17. My iron is usually low and hemoglobin is too. She started me on a multivitamin with iron after my last results so does… read more

A MyLupusTeam Member said:

Just so you know lupus was the scariest thing I ever gone thru your not alown

posted about 1 hour ago
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