Lupus

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Blister in mouth and eyelids

Blister in mouth and eyelids

Anyone notice thess symptoms durning a flare. Have been feeling okay then noticed my joints aching and swelling and have a few painful blisters in my mouth and now zit like ones on my eyelids.

A MyLupusTeam Member said:

Hope you feel better soon

posted 8 minutes ago

Stress and flares? How much stress does it take??

Stress and flares? How much stress does it take??

So how much stress does it take?
I feel like I have been hit by a truck today: fever, body aches and exhaustion.

I have spent the last 48 hours dealing with Tropical Storm Imelda and trying to divert water from entering our home. Super fun.

While I know that is a stressful situation and all.....I did not expect to wake up today feeling like I do today.

So I’m just wondering? Normal? Or no? Flare worthy stress?
Never had stress trigger it before.

A MyLupusTeam Member said:

@A MyLupusTeam Member thx. We are in Beaumont. Hope you guys are okay.

posted about 5 hours ago

Loose joints (tendons/ligaments)

Loose joints (tendons/ligaments)

Hi everyone,

Well I'm pretty frustrated and want some answers. I'm a 22 yr old female, diagnosed with SLE about 2 years ago now although had shown symptoms for years before. I started having joint problems young, around 10-12 years old. Everyone called me "double jointed" although that's not even an actual thing. So I could do cool things like twist my arm in a full circle, make my top joint of my fingers lock in place, shake my eyes erraticly etc. So now a good 10 years… read more

A MyLupusTeam Member said:

I hope u guys get diagnose and medical advice now. Most of us here have all dealt with the pain, worry and anxiety of not getting diagnosed soon enough.… read more

edited, originally posted about 4 hours ago

Has anyone been put on Methotrexate for a rash?

Has anyone been put on Methotrexate for a rash?

I have no pain at this time however I have a rash that will not clear. I have been on Plaquenil for 4 months, prednisone for 3 months and now my doctor wants me to start taking Methotrexate. Has anyone else been on all these meds for a rash?

A MyLupusTeam Member said:

I take no meds for my rash

posted about 5 hours ago

What is normal?

What is normal?

Good morning all, i’m just wondering what is normal with lupus? I know we’re all different and don’t have the same symptoms but i’m sick almost every single day. I’m missing so much work because of it and i feel like my medication combination isn’t working. I know we all have good and bad days but i have way more bad days than not. What are your experiences with lupus?

A MyLupusTeam Member said:

Honestly don’t quit Plaquenil or Imuran. Others here ended up getting kidney or other major organ problems that almost killed them. Ask @A MyLupusTeam… read more

posted about 4 hours ago

Test results

Test results

Hi everyone, hope everyone is as well as can be. It’s been almost 5 weeks since my first rheumy appointment and I still haven’t received any correspondence or test results from my consultant. I’m just wondering how long it usually takes? He said he would send me and my GP a copy but I’ve heard nothing at all.

A MyLupusTeam Member said:

So sorry you are going through having to wait. Lupus is stressful enough, much less waiting for answers. Praying you hear soon and agree with all above!… read more

posted about 2 hours ago

Does anyone get extrememly itchy disc shaped rashes?

Does anyone get extrememly itchy disc shaped rashes?

My rashes haven't stopped for months. They're extremely itchy and come in a disc shape. I know there is eczema that does this, but what about a lupus flare? It gets thick like a fungus, but it's not one according to pcp. I'm being referred to a dermatologist.

A MyLupusTeam Member said:

Yes. It is discoid Lupus. I have developed that recently. My rheumy said the treatment is the same as SLE and to stay out of the sun.

posted about 17 hours ago

Has anyone experienced otitis (eye inflammation) caused by lupus or RA?

Has anyone experienced otitis (eye inflammation) caused by lupus or RA?

I had redness; eye pain , headache, spasms and couldn’t tolerate light. My ophthalmologist said it was bilateral eye inflammation caused by the autoimmune disease. They are not responding well to prednisone drops and it’s terrible.

A MyLupusTeam Member said:

Yes and I use eye drops several times a day. Sometimes they don't help and I think that is due to systemic flare I am in. Very frustrating

posted about 7 hours ago

North Carolina rheumatologist

North Carolina rheumatologist

I’m looking to find a new rheumatologist in the Raleigh/Durham North Carolina area who is a little more alternative-minded than the one I have currently. Specifically, I am looking for someone who believes that there is a connection between diet and autoimmune disorders, and is open to my desire to decrease my dose of Plaquenil.

A MyLupusTeam Member said:

I’m working with a naturopathic physician. But she’s the one who suggested I switch to a rheumatologist who is more open to helping me wean off read more

posted about 19 hours ago
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