Lupus

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Has anyone given up making marriage work and just be on their own after the diagnosis?Im not confident I can live alone.

Im struggling to decide if I should stay or leave my marriage. Its unhealthy on many levels. I wonder if I will be able to make it on my own, or if my husband has just convinced me of it.

posted about 2 hours ago by A MyLupusTeam User

Honestly I moved out after my diagnosis to figure out me. Everyone thought we were crazy but we were together just lived separate for a year and half and it help alot.… read more

posted about 2 hours ago

Has anyone here used medicinal marijuana in capsule or edible form to combat pain and anxiety related to SLE? Did you find it helpful?

I am a recovering opiate addict very active in recovery and cannot under any circumstances use narcotic pain medication. I have been advised not to use Motrin too much, but I am usually in constant pain. I have never used marijuana in any form and I am not interested in smoking it. I just wanted some experienced opinions before going through the process of obtaining the card to… read more

posted about 6 hours ago by A MyLupusTeam User

It can be helpful with pain, however anxiety is a strange creature, and you could go either way with the anxiety. It can heighten it rather than reduce it depending on… read more

posted about 3 hours ago

Does your lupus cause bruising?

tags: I do bruise easily and it takes a very long time for the bruising to heal.

posted about 8 hours ago by A MyLupusTeam User
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I am on Methotrexate and bruising is one of the side effects I have to look out for.

posted 38 minutes ago

handd

Does anyone else experienced joint pain and swollen and ref ?
My daughter has Lupus and she complained more than once about this. Just wanted to know if anyone else experienced this as well?

posted about 15 hours ago by A MyLupusTeam User
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Yes I have the same issues have you considered buying your daughter a TENS machine I got mone for 30 from eBay and mine helps me so much

posted 35 minutes ago

I was just kind of wondering how your butterfly rash started if you have one? I think I may have one starting but not sure.

posted about 19 hours ago by A MyLupusTeam User
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It slowly appeared on my face. People accused me of using too much ethanol which I don't use at all. When I have a flare it is very prominent, but when the flare is… read more

posted about 6 hours ago

Has anyone done rituxan (rituximab) treatment for lupus nephritis?

Has anyone done rituxan (rituxmab) treatment for lupus nephritis in addition to the normal everyday lulupus nephritis medications? I just want to know about only this medication. Thank you

posted 1 day ago by A MyLupusTeam User
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YES ! I have both RA and SLE. It was initially for Non-Hodgkins Lymphoma (I am all Rituxan all the time- been on it for 11 yrs I think- since it was first FDA approved… read more

posted about 9 hours ago

White blood cell count

What has been your highest white blood cell count if you know it ??

posted 1 day ago by A MyLupusTeam User
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Will do Margaret!!!

posted about 4 hours ago

How useful are complement DNA tests in getting a lupus diagnosis?

During the summer, I started noticing drastic changes in my energy levels and started noticing muscle weakness as well as feeling achy and completely exhausted all the time. I work a fast paced, very physical job and had gotten in great shape physically and had built up my strength, so this was a bit of a shock. Then I started noticing other things like minor injuries (cuts and scrapes) taking much longer to heal, I have become overly emotional (I… read more

tags: Complement DNA testing Lupus diagnosis with negative ANA test Blood Work lupus symptoms

posted 1 day ago by A MyLupusTeam User
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The diagnostic criteria have been renewed in 2012... The new criteria have more possibilities to get diagnosed, as more criteria have been added.
read more

posted about 13 hours ago

Lupus nephritis and pain

So recently my kidney function has been off. Seeing a nephrologist soon. But I'm the mean time have any of my fellow lupus nephritis people also had like bladder pain along with flank pain? Because I have both. But the bladder pain especially like after urination.

posted 1 day ago by A MyLupusTeam User
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Yep all the time.... when I get a flare it's my bladder and urine concentration gets darker.... you should probably check if ur having a flare.... when my bladder… read more

edited, originally posted 1 day ago

@ after name

Hi

Pls advise how to add the @ after my name, I see posts have @name.
Thank you

posted 1 day ago by A MyLupusTeam User
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Scroll down, enter the question here., where It say here. Then type in the question you want to use, then under the up key,, you will see .?123 and you will see the… read more

posted 1 day ago
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