For many years, 15, I would have a flare then I would be fine ( I always hated trying to explain why I was sick to everyone so I would just say "it's the flu" lol)
But now, for the last few years, I never get a break. I am in a continual flare. I currently take Benlysta and Immuran with prednisone when I want to travel to see my grandson.
I joined this forum in the hopes of finding others in my situation and to help me see that I am not crazy!! It has been… read more
Got shingles in/near my eye this weekend. The pain is EXCRUCIATING, they gave me lyrica and something else. I know that the lyrica is for pain and it’s not doing a thing. Does it take a long time to kick in? Also the rash on my face is hideous I’m additiom to painful, any tips on some relief? I’m 29 and can’t believe I’m dealing with this?
Okay so thanks to 8 months of pred I gained a million pounds (really only 50) and over the last year I have lost it with good eating and yoga twice a day. Well I have realized that losing the weight helped with a lot of my symptoms so I want to lose about 20 more pounds but I am stuck with what exercises I can do. Does anyone have an good exercises that have not made their lupus symptoms go haywire?? I know we can’t do anything high impact but otherwise I am lost.
Hi, so my question is about my labs.
The only thing that came back was a positive ANA and Homogeneous Pattern was 1:160.
I’ve seen 2 DRs and they both say they can’t rule out Lupas but can’t say for sure I have it either. How do you really know if you have Lupas. What DR would truly know? Everything else was normal. Thanks! Christie
Hello, I was diagnosed in June and take 10g of predison daily. Does anyone have any advice on how to decrease the moon face? I am very self conscious about it and it has made me very insecure
I was watching a video and a guy says he eat sunflower seeds with his lupus and it causes him no flare I love them but I stopped eating them years ago before I had gotten lupus n I wanna eat them so bad but I’m scared it might be to salty.
Struggling to get diagnosed as ANA comes back negative ! Despite being ill with an endless list of horrible symptoms ! Anyone from the uk that knows of a good lupus specialist ! Willing to travel round uk to get the answers x
Hi everyone, I’m new to the group ! This past year ive been in the process of getting diagnosed which seems impossible ! . I’ve had several blood tests but none have showed up as positive for lupus despite the discoid rashes, butterfly rash, sensitivity to light and the list goes on ! What are people’s experience with being diagnosed ? How long did it take ? Does it have to be a flare up for the bloods to capture it ? I’m at a loose end ! Currently just waiting to be… read more