Lupus

Questions + Answers

Don't see your question? ask question
All Questions Most Answered Most Useful Needs Answers Resources:
View:

Hemangiomas

Hemangiomas

Does anyone have little red dots all over their body with lupus or mixed connective tissue disease? I noticed today that I have quite a few, especially the chest area. I’ve always known them being called hemangiomas, but didn’t really worry about them bc I thought I only had a few. Trying not to scare myself by googling so I thought I would ask here first.

A MyLupusTeam Member said:

@A MyLupusTeam Member No, I still have them all over my chest. I've had them years ago mildly on my face and they went away, but the ones on my chest… read more

posted about 3 hours ago

Are there any known agencies or programs for help?

Are there any known agencies or programs for help?

Me and my 17 year old daughter are currently displaced from a house fire caused by my downstairs neighbor. We weren't home at the time but we lost EVERYTHING! unfortunately I did not have renters insurance and with my disability income being the only income that I have, I'm struggling to recoup! It's very stressful but I'm trying my best to calm it down because stress is a MAJOR trigger for me! Any advice is better then none. Thank you so very much!

A MyLupusTeam Member said:

I don’t have anything to add but echo what Alaine said. Praying for you all that you get the help you need!

posted about 3 hours ago

How long is a flare?

How long is a flare?

Some days I’ll wake up and feel good with energy and then hit a literal wall later in the day. I’m trying to figure out if I’m pushing through a flare and overdoing it or if fatigue will come and go through a flare. What is your experience with how long a flare last?

A MyLupusTeam Member said:

I’ve only had 2 flares. I get brain fog. Then heavy legs. Very fatigue. This is leading up to a really bad day. Ill be stiff in the morning then I have… read more

posted about 23 hours ago

Going to a new rheumatologist today

Going to a new rheumatologist today

I’m going at 5 to see a new rheumatologist because mine moved, but I’m so nervous. I was told at the start of all of this that I had a positive ANA of 1:80, speckled pattern and since I had symptoms of widespread pain and the malar rash from time to time that he wasn’t positive it was lupus so he diagnosed me with an undifferentiated connective tissue disease.
When my old rheumatologist left town, I quit taking my plaquenil because I was worried about some vision problems and… read more

A MyLupusTeam Member said:

Well, the doctor had to leave right before my appointment so I saw the nurse practitioner which was great but I felt really rushed. I didn’t get to go… read more

posted 1 day ago

Depression

Depression

Hi all -

I am brand new here and I think I need some support. I realize now that I have been in partial denial of my lupus diagnosis for the past 3 years. I generally have felt pretty good, but this past week my symptoms have come on like a ton of bricks. I can barely get out of bed, I ache all over, and I am crying all the time. I don’t know what to do. I blame myself for not taking this seriously and for stopping my Plaquenil a few months ago
(I have since started taking it again!). I really need… read more

A MyLupusTeam Member said:

As @A MyLupusTeam Member said, please see a doctor about your depression. It is common with lupus and other autoimmune diseases to get depressed when… read more

posted 1 day ago

Anxiety

Anxiety

Does anyone get extreme anxiety before their rheum. appointment? What do people do to lessen it?

A MyLupusTeam Member said:

I should have asked if you could bring someone with you. A support system really can help with the nerves

posted about 21 hours ago

Marijuana vs CBD

Marijuana vs CBD

I'm on Prednisone, Benlysta, Cell-Cept, Gabepentin and Plaquenyl, but still get pressure in my neck that radiates to my head. Then I get a numbing feeling in the center of my head that ruins my day. Any luck with Medical Marijuana, or just CBD for any similar problems? How much do I take?

A MyLupusTeam Member said:

CBro, Lately, i feel the same. The crane hurts me and the muscle pain goes to the neck. Something new

posted 2 days ago

Inflammation/flare in ears?

Inflammation/flare in ears?

Has anyone had inflammation in the ears that caused fluid in their ear(s) to the point they can't hear? I have it in both ears and the hearing in my left ear is pretty much nil.

The doc tried flushing my ears thinking it was earwax lodged in my ear canal (my request because this has happened before) and then gave me 3 days of predisone saying it would reduce the inflammation and get rid of the fluid. She feels it is definitely autoimmune and related to the sinus infection i had… read more

A MyLupusTeam Member said:

I spend almost the entire winter whith clogged ears from colds and sinus infections. Feels like they need popped alot of the time.

posted about 8 hours ago

Dermatofibromas

Dermatofibromas

Hi everyone,
I am having these small spots on my body,I went to the dermatologist she said it’s Dermatofibromas,does anyone experience this issue??

A MyLupusTeam Member said:

Hope you find a cure.

posted 3 days ago

Your experience with Gabapentin?

Your experience with Gabapentin?

I’ve so many Fibro issues lately that I’ve been thinking about trying Gabapentin. But I’m so scared of the side effects that comes with almost all meds.

What advice can u give me about this one? Does it work well and what are the side effects that u experienced? And is the meds overall effect actually worth the hassle?

Thank u so much in advance!

A MyLupusTeam Member said:

Hopefully you backed off of the Gabapentin? Starting with one pill and waiting another 5 days before you took another one away and so forth.

posted about 3 hours ago
Continue with Facebook
Sign up with your email
Already a Member? Log in