Lupus

Questions + Answers

Don't see your question? ask question
All Questions Most Answered Most Useful Needs Answers Resources:
View:

How much sleep are people getting?

How much sleep are people getting?

A MyLupusTeam Member said:

Yes there is a lot in play, my legs, hips, elbows, fingers.. i snore something aweful and had sleep study nothing! Go figure

posted about 7 hours ago

How is everyone doing laundry now w: this whole Covid-19 situation?

How is everyone doing laundry now w: this whole Covid-19 situation?

My bf and I usually go to the laundromat to do our laundy but now with this whole situation going on I’m even scared to go and do my laundry. I asked my landlord if we can do a load here but he said no for the same reasons we do not wanna go to the laundromat. I am scared of going and i dont know how they are doing it to just drop pff the clothes and have em wash it. It is all kinda scary to me. Or are we just being a bit too paranoid ? .-.

A MyLupusTeam Member said:

Another thought- do you have any neighbors or church affiliations that you are friendly with? Some of my women's group and church friends have offered… read more

posted about 1 hour ago

Pd dialysis

Pd dialysis

Has anyone started dialysis yet?? Because I am starting pd dialysis right now and I pray that they find a cure for lupus soon. In the name of jesus I pray amen, amen

A MyLupusTeam Member said:

posted about 2 hours ago

Covid19 Lockdown

Covid19 Lockdown

So for those of you have been issued a stay at home order, who does that relate to exactly? My husband works for ST Wooten, i know they have this company everywhere but if you’re not sure what im talking about, his company works on the roads and putting down cement for homes driveways and things like that. Would his company shut down? Im asking because we’re both scared that he will bring the virus home because of his job and even though the governor has issued a statewide stay at home order we… read more

A MyLupusTeam Member said:

Good news for you: your Governor yesterday issued a stay at home order starting Monday:
For a snapshot, here is what will remain open, according to a… read more

posted about 12 hours ago

Body temperature

Body temperature

Hi everyone! Just out of curiosity, what's your normal body temperature? I've read for people with lupus it can be lower than average. Yesterday i felt so hot and sick and felt like i had a fever and i was 37.3. Today i feel better and I'm 35.7.

A MyLupusTeam Member said:

Mine floats from 96-99

posted about 4 hours ago

Is there anyone looking for N95 masks or other supplies for themselves

Is there anyone looking for N95 masks or other supplies for themselves

Due to our immune system being suppressed and we being more at risk for becoming ill due to this virus..I also feel we should have proper PPE as well when we have to go out to appointments or to the store. I am communicating with some people to try to find online stores that still have supplies left since everyone else is sold out. So let me know what supplies you may need and I will try to get the names of some websites. We are all in this… read more

A MyLupusTeam Member said:

@A MyLupusTeam Member I just posted a website

posted 1 day ago

Plaquenil Refills

Plaquenil Refills

I just want to let you all know what the pharmacist told me today, they are running low on plaquenil but here in Nc not sure if its everywhere, you can request a mail order which they will send you a 90 day supply or you can ask your doctor to prescribe you a 90 day supply ahead of time so that you are covered for the next 3 months. I hope this helps you all as im going to call my doctor and the pharmacy tomorrow to see if i can either do the mail order or have my doctor fax in a 3 month supply… read more

A MyLupusTeam Member said:

if your drug provider is Express Scripts, they have it or can get it - get a 90 day supply IMMEDIATELY - have the doctor's office call it in

posted about 16 hours ago
Continue with Facebook
Sign up with your email
Already a Member? Log in