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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Nausia

Nausia

I'm so nausious Yesterday I actually puked. I've lost my appetite and I think I'm losing weight again. Is this lupus related?

A MyLupusTeam Member said:

It could be, but it could also be from something else too. Are you taking any new medications? Did you eat anything new/different than usual? Have you felt like this before after a certain… read more

posted about 7 hours ago

Pain After Vigerous Activity

Pain After Vigerous Activity

One day I worked the snack bar at the skating rink. I was in bed two days after in excruciating pain. It seems to happen when I exert myself. Sometimes even house cleaning will do it. My muscles are so weak. Can anyone relate to this? Tyia

A MyLupusTeam Member said:

Yes, Girl! Sometimes just making my bed from doing the laundry, etc. is exhausting. My back hurts from making up the bed, so I need to lie down, and then the fatigue weighs in and the day is gone. The… read more

posted about 7 hours ago

Geesh A New Drug

Geesh A New Drug

My rheumatologist suggest that I start BENLYSTA INFUSSIONS, Has anyone taken this drug and if so how did you feel after treatment?

A MyLupusTeam Member said:

@A MyLupusTeam Member...thank you for sharing your experience with Benlysta, it's very informative. Hope you're feeling well 🙂

posted 1 day ago

What Do I Do About Sudden Severe Hair Loss?

What Do I Do About Sudden Severe Hair Loss?

Diagnosed with lupus six years ago. Since then, I’ve had the usual-fatigue, achiness, rashes, flairs, etc. but now something that’s never happened before. So upsetting. In the last two months, I’ve lost over half my hair on my head. Noticeable. Always had thicker hair. Every time I comb my hair now, I’m losing about as much as I did in a week. My rheumatologist says she doesn’t know what to do about it. I’ve been taking biotin for years. Just added vitamin C and B12 two weeks ago. Can’t… read more

A MyLupusTeam Member said:

Tea Tree oil, make sure that's the only ingredients

posted 1 day ago

Anyone Ever Have An Allergic Reaction To Cymbalta?

Anyone Ever Have An Allergic Reaction To Cymbalta?

Good morning
I have had allergic reactions to Plaquenil, Mestinon and Propranolol…
Dr weaned my off of Effexor and I have started 20 mg of Cymbalta. It has been a week.
Symptoms started with a headache and itchy eyes…..yesterday progressed to a rash snd burning eyes. I was up in the night with digestive issues.
I can’t be 100 sure it is the meds, but wonder at the safety of stopping/starting my much needed anxiety meds without my Dr consent. I don’t see him until Tuesday, but wonder if I… read more

A MyLupusTeam Member said:

Hi All: I have been trying to determine my Lupus symptoms vs gluten symptoms because sometimes they are one in the day. Today, I woke up very itchy. I ate gluten yesterday. I also have diarrhea… read more

posted about 3 hours ago

Still Quarantining?

Still Quarantining?

I was wondering if you guys are still quarantining? I'm vaccinated with an extra Moderna shot but I'm still afraid to leave the house. I haven't seen my friends or family in so long. It's really wearing on me. Has everyone else on here started venturing out?

A MyLupusTeam Member said:

Thanks @A MyLupusTeam Member. I've never tried the N95, just the double surgical masks. I have a lung problem so I thought the N95 would be too hard for breathing. Do you find them difficult?

posted about 7 hours ago

Is It Normal For A Person With SLE To Get UTI With E Coli In It?

Is It Normal For A Person With SLE To Get UTI With E Coli In It?

I've had a low grade fever off and on for a month +. Then boom I had severe pain and foul urine. My immediate urine test came back positive for an UTI. Then I got my lab test showing the e coli. My stomach is swollen and I'm still having abdominal pain. I've been on antibiotics since Wednesday.
Is this normal?

A MyLupusTeam Member said:

I got both my moderna shots and a booster and still got covid . I was very sick. So I feel that the shot didn't do any thing for me really. I did get really sick after receiving the shots each time.

posted about 24 hours ago

Covid?

Covid?

Hi All,
Has anyone ever tested neg for covid, have bronchitis symptoms and can't see a Dr because you have Covid symptoms? I've had to miss 7 different appointments including my benlysya infusion and everyday is a little worse. I'm not sure what to do.

A MyLupusTeam Member said:

Susan1960, take the covid home test.

posted 2 days ago

Rheumatoid Arthritis: Did You See This Article Part 2?

Rheumatoid Arthritis: Did You See This Article Part 2?

Mood Changes
RA is tied to depression, anxiety, and other mood problems. That’s because the disease causes pain, fatigue, and stiffness that make it harder to do the things you enjoy. Depression and anxiety could also come from inflammation
Some people with RA get fibromyalgia. This illness causes muscle pain and often leads to depression and anxiety. Stress makes all of your symptoms worse
If your mood changes seem to take over your life, talk to your doctor. Depression and anxiety can become… read more

A MyLupusTeam Member said:

My biggest problem right now is my T9 and T10 vertebrae are fused together with spinal stenosis and bulging disc. This is my neck as we’ll. I also have Chiari Malformation.

posted about 19 hours ago
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