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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Have Lupus Nephritis?

Does Anyone Have Lupus Nephritis?

Does anyone have stories or information on lupus nephritis?

A MyLupusTeam Member said:

Thanks for the reminder @A MyLupusTeam Member. I watched and forgot about that - brain fog.

posted about 9 hours ago

Does Anyone Feel The Same Way?

Does Anyone Feel The Same Way?

Is there anyone else that has Lupus in remission but feels the same and the doctor tells you it's the fibromyalgia? All over aches and pains. I pay for it if I overdo my day. A good day is not having to push through without a break. Moving too much is bad, resting too much is bad too .
It is so confusing.🤔

A MyLupusTeam Member said:

True. God knows all.

posted about 7 hours ago

Has Anyone Had A Blood Transfusion For Anemia?

Has Anyone Had A Blood Transfusion For Anemia?

Greetings,

I’ve been anemic for many years. Since lupus is a shape shifter, IV iron infusions that have worked in the past have all led to anaphylaxis when given a second time. My only option now is to start blood transfusions. Have anyone had a blood transfusion with Lupus? Any reactions? Thank you for this courtesy!

A MyLupusTeam Member said:

So are you saying. . Because of the progressive of lupus make you feel that way?
I was wondering why I was .. And the bad headache and feeling angry, depressed.

posted about 3 hours ago

Benystla

Benystla

Has anyone been on Benstyla infusion if so how have you done

A MyLupusTeam Member said:

I've been on it for 3 months. It has been helping certain symptoms like loss of protein, and other lupus symptoms like joint pain. They say it takes up to 6 months to see the true benefit. I have a… read more

posted 1 day ago

Anyone Have Experience With Cymbalta?

Anyone Have Experience With Cymbalta?

My doc wants to switch me to Cymbalta bc it doesn’t interact with Amitriptyline (sp?) and other meds. Yet, I have been doing so well on my Effexor, I hate to try an unknown drug, especially having so many reactions to meds.
So, I was wondering if anyone could share the good, bad, and/or ugly experiences they have had with it.
Thank you!!!

A MyLupusTeam Member said:

I've been on it for two years. It helps me a lot.

posted about 11 hours ago

How Fast Was Everyone Diagnosed With Lupus?

How Fast Was Everyone Diagnosed With Lupus?

A MyLupusTeam Member said:

Try to get in. But they don't have any openings. And my doctor is trying to help me as much as possible.. prednisone is what the rheumatologist told her to put me on until I can get in. And I am… read more

posted about 3 hours ago

Has Lupus Attacked Anyones Kidneys? And What Did They Do For Treatment

Has Lupus Attacked Anyones Kidneys? And What Did They Do For Treatment

A MyLupusTeam Member said:

My GFR has gone from 56 to 45 in 18 months. They call it Chronic kidney disease stage 3a. Trying to keep blood pressure low and not eat salt.

posted 1 day ago

Favorite Pain Relief Products/gadgets?

Favorite Pain Relief Products/gadgets?

Wanting to add to my arsenal. Sometimes I literally can do nothing because of my pain issues which doesn't work as I have a doggie who needs to go out during the day.

My favorites are icy hot, cbd, turmeric, hot pad, and lidocaine patches... but im wanting some more ideas. Hopefully being more active will help but no walks for another week as bub is in his waiting period post vaccine

A MyLupusTeam Member said:

I have heard of bio freeze but I have tried everything but have not found any relief with my back muscle. I think I will try biofreeze.

posted about 9 hours ago
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