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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hi New Here.. What To Expect?

Hi New Here.. What To Expect?

I was diagnosed in 2015 and referred to a specialist who told me it was a mis diagnose and I have RA only.. but the end of February i had my first flair up and was in so much pain and I was making a 10hr trip so I hid it from family until I got back home and it was so unbearable i just cried and couldn't move.. now they put me on some muscle relaxers and ib 800mg for now but what medication do I need to keep my Lupus under control

A MyLupusTeam Member said:

Hi Judy, have you been rediagnosed with lupus (SLE)?

Its really hard to say what medication you need, you and your doctor should go over that topic. It… read more

posted about 2 hours ago

Kidney Cysts

Kidney Cysts

Hi,
Has anyone been diagnosed with a kidney cyst? Is this part of lupus? I have a cyst labelled as a Bosniak 2F. Wondering if anyone else has this?

A MyLupusTeam Member said:

Yes my kidney's are full of little cyst & a stone. The Dr aren't doing anything about it at this moment.

posted about 4 hours ago

How Is Everyone Handling Covid? Is Anyone Getting The Vaccine?

How Is Everyone Handling Covid? Is Anyone Getting The Vaccine?

I got both doses of the vaccine, my last one was 30 days ago. My husband is still nervous about me going anywhere! I'm going crazy at home.

I coupon and shop after holiday clearance, and haven't been able to.
I was also scheduled to have an entire mouth extraction as everything was shutting down. I now have 4 parts of teeth, all the others have broken and/or fallen out. I'm still having to wait to have that done.
I'm just so frustrated. I'm wondering… read more

A MyLupusTeam Member said:

I agree, mask up, use hand sanitizer when you leave the store, and wash your hand every time you get home.

posted about 8 hours ago

VEGETABLES

VEGETABLES

I'm currently trying to eat more veggies. I need help on trying incorporate more veggies in my daily meals. Help! Anyone have any tips?

A MyLupusTeam Member said:

Cut uo cellery carrots coliflower and broccoli along with a few.cherry tomatoes a d.keep the refrigerated when u want a snack eat.the cut up.veggies

posted about 3 hours ago

Lupa Vita Vitamins

Lupa Vita Vitamins

Hi everyone, does anyone take lupa vita vitamins? If so do you see an improvement in energy?

A MyLupusTeam Member said:

Yes, I take them morning and p.m. I love the way I feel. I'm not all sluggish and I sleep well.

posted 1 day ago

CNS Lupus

CNS Lupus

So, I was wondering...I just got out of the hospital today. I went in with weakness and numbness on my left side and VERY painful optic neuritis. The doctors there treated me like DIRT, and I mean REAL TRASH. They acted as though I was “malingering” or “faking”! Have any of you ever been through this? I’m laying in bed at home now, after they all basically told me that “there is nothing wrong with me,” yet I have no central vision in my left eye, and my whole left side is weak. Basically, they did an… read more

A MyLupusTeam Member said:

I Concur!!!!

posted about 14 hours ago

Lupus Nurfritis In Remission

Lupus Nurfritis In Remission

My granddaughter has it and has been seeing doctors at the New Lupus Clinic in Madison, WI. She was just told that with her latest test results that she is in remission. She is only 19 and way too young to be dealing with this. She had to drop out of UW Stout because of it. Do you have studies that talk about LN that has gone into remission?

A MyLupusTeam Member said:

I live in WI and think Stout is a great school! She can always go to a online school which can be just as good without a lot of hassels. There are a lot… read more

posted 3 days ago

Covid Vaccine

Covid Vaccine

Has anyone taken the covid vaccine and if so did you have any problems with it

A MyLupusTeam Member said:

Got my shot. No reactions. Arm okay the vaccine site I couldn't find it lol.

posted 1 day ago

Does Anyone Experience Breast And Nipple Soreness?

Does Anyone Experience Breast And Nipple Soreness?

This is new. I've had a mammogram with ultrasound in October, so I wasn't worried about cancer or cells. This is a new pop-up where I have one nipple and breast that feel "sore" all of a sudden. Thought it sounded super weird for me. I am currently on Plaquinel 200mg a day and starting prednisone 5mg a day about 3 weeks ago. I have Lupus, starting of RA, and a lot of joint pain. My symptoms had a lot to do with mouth sores, severe joint pain, abundance of yeast… read more

A MyLupusTeam Member said:

The amino acid L-lysine, you can by over the counter helps with mouth sores ect..look it up ..Make sure to get a decent brand .

posted 2 days ago

Good Morning..

Good Morning..

Hello Lupie family. We are thinking to move out of Michigan due to the weather and coldness. We are thinking Florida. What part of florida is safe to lived and a good rheumatoid doctor? We visit Orlando and Lakeland. I like Kissimmee. Any from Florida can give me an idea. Were selling our house this April and we deciding to stay here in MI or move to somewhere in Florida. Thank you all and I wish you all have a great day. xoxo

A MyLupusTeam Member said:

Keith thank you so much. Beautiful sunny today but still cold . I hope your enjoying your day . Hugs and I will keep you posted. We might come down this… read more

posted 1 day ago
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