Questions & Answers
Get practical advice and insights from people who understand
Hearing Loss From Lupus
Hearing Loss From Lupus
How To Handle A Flare
How To Handle A Flare
I'm currently in the middle of my 3rd flare in a little over a month.. low grade fever, vomiting, fatigue, severe headaches lowered kidney function, and the constant feeling of phlegm blocking my throat. How do I get relief from these symptoms? Someone please help. My current treatment consists of prednisone, zofran, Phenergan suppositories, norco and lots of fluids my rheumatologist sucks and my primary doctor is unsure of what to do.
Bp High And Low Sue Lupus
Bp High And Low Sue Lupus
Does anyone have bp high like 142/80 when your feel pain or headache? Does lupus make your bp high elevated and normal thank you all and have wonderful afternoon 🙏♥️
Weight Loss
Weight Loss
Is there any suggestions on how to try regain some of my weight back. I've lost ALOT in just a few months. My doctor says I'm at a healthy weight but I see the change and to me it looks bad. Any suggestions?
I've been taking protein drinks and bars everyday with my meals. I love to eat every thing and have gain my 40 lbs finally. It took me 4 years to gain it back. Now I look like myself and don't look… read more
I've Been Diagnosed As "possible Sle Lupus"
I've Been Diagnosed As "possible Sle Lupus"
Ive been put on hydroxychloroquine and steroids about 4 months ago and am starting to feel so much better. How long does it normally take for a definitive diagnosis? Also how long did it take for brain fog to go away and to be able to think straight?
It took me about 6 months it was a very bad time for me and my family. I still have brain fog but not all the time.
Lupus And Kidneys At The Beginning
Lupus And Kidneys At The Beginning
Greetings all warriors,
I know often times we become experts on the disease so I am hoping someone can help me. I am having pretty bad back pain (near spine and around my hips.) I am also having white blood cells and microalbumin in my urine (I have test strips.) I am curious to know for those of you who have had kidney issues, were you able to feel pain in your back/hips? I can not see a nephrologist until January (at the earliest so..) I have had a positive histone, ANA but not DSDNA. Any… read more
Yes I was getting a lot of UTIs and kidney stones. I started taking AZO everyday and been fine
Anyone Have SLE Lupus Without Lab Markers Being Positive But With Symptoms?
Anyone Have SLE Lupus Without Lab Markers Being Positive But With Symptoms?
having episodes of bad pain all over my body, exhaustion, fatigue and joints. had 4 episodes of pleuritis this year but lupus tests are normal except ana test and inflammatory markers during episodes. on plaquenil. tried imuran but failed due to side effects. now want to add Benlysta. anyone else have lupus like this?
Help, My Hair Is Falling Out. Every Time I Wash It Big Clumps Come Out.
Help, My Hair Is Falling Out. Every Time I Wash It Big Clumps Come Out.
I just recently started plaquenil again. I’ve had lupus for years but in a flare now. What do I wash my hair with? I’m using a gray hair product now. Really scared this time over hair loss.
Does Anyone Know Of A Good Rheumatologist In The Houston Texas Area?
What Has Been Your Experience With Benlysta?
What Has Been Your Experience With Benlysta?
My Dr had prescribed Benlysta as my condition has continued to deteriorate. I was wondering if others here have or are taking it and if it helps or not. If it did help how long did you take it b4 u saw results? Anyone experience side effects and if so what were they?
