Lupus
Questions + Answers
Aqua Therapy
Has anyone had success with aqua therapy? Has anyone tried to get it covered with insurance?
Does anyone experience ribs that pop or separate easily?
For about six years now I have experienced ribs that easily separate with just a little pressure. It is very painful. This most recent one is about the 15th time. Always a different rib. This time it was a s simple as rolling over on my arm in bed. I also have osteoporosis from prednisone use.
I have had my ribs separate since I was about 21. I had to use a rib belt. Many years before I was diagnosed. I have the kind from my meds. Have you… read more
Memory and mental health
Will you have memory loss for the rest of your life. Short term memory
My memory and brain fog has lifted since going on treatment. Yet when I flare up, them brain fog and memory issues flare up too. I hope it doesn't cause… read more
Does anyone sleep in a hair cap?
Just wondering if anyone has tried sleeping in a hair cap? I was thinking of trying one to prevent abrasiveness from sheets and blankets, rubbing or tugging on my already brittle, breaking FRAGILE hair!
I just noticed yesterday the amount of hair that I have falling out. I think a good hair cap is a great idea!
Iron deficiency
Has anybody had iron deficiency and if so how low was it and when did you started feeling better. At 1st mine was 8.9 and then got it checked again and it was 10.9 . I have about 16 days taking iron but still feeling a little off.
It's better to have a good iron level though, just keep up on your fluids and fiber intake.
My Dr. has put me on a Vitamin D pill which is 50000 units once a week, has anyone experienced any issues taking this much?
I was on those "bullet" doses when my Vitamin D level was way low. They took me off them once the level is back to normal and now I take the over the… read more
At your rheumotologist appointments
I was wondering if you get blood work done at your every appointment and what do they check for? I haven't seen a rheumotologist for a while because of the MAs at the previous clinic i use to go to were taking their precious time to refer me to a new place bcuz the one I use to see was too far. So I changed clinics and then I got pregnant. Just had my baby now at the new clinic I asked for a referral and should be getting it sometime next week. I remember the rheumy I use to… read more
Has anyone with an autoimmune been told you could have Lymphoma?
Hi, Yesterday, after 12+ weeks of being ill with no answers, I was diagnosed with an unspecified autoimmune/connective tissue disease.
One doctor still believes that my symptoms could be early signs of lymphoma. (My lymphnodes are swollen, but large enough to justify biopsy).
Along with my blood work which confirmed this diagnosis, I also had an elevated kappa protein level in my blood (which is also elevated in lymphoma patients).
Does anyone… read more
I am looking for a diagnosis still, but I was sent to hematology/oncology for possible lymphoma due to swollen lymph nodes. They removed two lymph nodes… read more
Has anyone else developed arthritis of the spine since lupus diagnosis?
Before lupus was very active, worked out every day. Within 3 months after lupus diagnosed I was unable to do even light work outs due to back pain and stiffness.
Today I actually got confirmation of ankylosing spondylitis diagnosis which is arthritis in the spine. Base of my spine at pelvis and neck are… read more
Why are my toes so hot, red and swollen
Hi,
I have CRPS and Chronic Lyme Disease. I don’t know if my symptoms are from Lupus or CRPS. The pain is excruciating, especially in the mornings.
https://www.medicalmedium.com/blog/autoimmune-a...
please take a look at this site I have been following this man for a while now and there is a cure… read more