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Anyone With Lupus Have Or Had Covid-19?

Anyone With Lupus Have Or Had Covid-19?

Just curious if anyone with lupus has had covid or currently has it? If you have, feel free to share your story.

How is everyone staying safe during this time?

Ports

Ports

Question. So I’ve been dealing with poking and prodding for like 7 years now. Through that time my veins have become really small and scarred due to long term prednisone use, blood draws, iv sticks, etc. I’m such a had stick now and it’s just becoming more and more annoying when some nurses fish for veins or my veins just have so much scar tissue they don’t wanna give blood anymore. With all that being said should I consider getting a port? I dunno I’m just getting tired of the bruising and just being a… read more

A MyLupusTeam Member said:

My opinion may not be worth much as i have never had a port but my veins are terrible when it comes to blood draws. I have been dealing with tiny,… read more

posted 2 days ago

Eye Exams 🙄 Anyone Have An Abnormal One?

Eye Exams 🙄 Anyone Have An Abnormal One?

Had yearly eye exam today and the visual field test showed ALOT of spots that are “abnormal”

Supposed to get it redone in 6 months.
So....I am supposed to wait 6 months to see if I have damage?!?

A MyLupusTeam Member said:

I have bull's eye maculopathy, My medicine was stopped immediately upon finding it. I have been followed closely for 5 years, was told at my last visit… read more

edited, originally posted 1 day ago

Is Anyone Taking Anything For Osteoporosis?

Is Anyone Taking Anything For Osteoporosis?

Just been diagnosed with osteoporosis. Have had osteopenia for years which now is worse. Have been on 10 GM of prednisone for last 10 months and have not had a bone density scan in 2 years and decided it was time since I am on prednisone. I do not want to do the pill form, fosomax, Antonella, etc because of side effects, anyone taking the injection one, if so, which one, and how have you reacted to it

A MyLupusTeam Member said:

I did observe some bad side effects on two of my dental patients... helped me sway away from what was offered from the MDs.

posted 1 day ago

Rash That Feels Like A Bruise.

Rash That Feels Like A Bruise.

Ive been getting these things that look like rashed but feel like bruises when you touch them. I just happen to be seeing my doc tomorrow, but im curious if anyone here has had them. Theyr by joints that have been givinf me problems

A MyLupusTeam Member said:

I get that between my knees and on the side of my hips ,
Mine happens just from laying down without putting a pillow between my legs or if i dont switch… read more

posted about 8 hours ago

Pain In Chest From Talking, Then Tightness Up Neck And To Behind Ears. Months Of Discomfort!!

Pain In Chest From Talking, Then Tightness Up Neck And To Behind Ears. Months Of Discomfort!!

Ive been sick since the end of March - 11 weeks! During covid time so seeing pulmonary dr in a hallway set up. Symptoms: heaviness in chest, shortness of breath, when i talk it gets worse, tightness in neck and pain under jaw and ears.. oain in chest radiates to shoulders and back. Sometimes down arms. Been getting pins and needles in hands during the night. Body aches later in the day. Testes positive ANA (speckled) and… read more

A MyLupusTeam Member said:

posted 2 days ago

Plaquenil

Plaquenil

Hi guys I was just diagnosed with lupus last month my dr put me on Plaquenil. I been reading really bad side effects to this medicine. I’m scared to take it. Can someone who been taken this medicine give me some advice and what type of side effects you have.

A MyLupusTeam Member said:

I have taken it for years. 10 or 15yrs with no side effects. I always take it with food. My sister in the other hand. Her skin became a lot darker and… read more

posted 1 day ago

Pcos And Lupus

Pcos And Lupus

Does anyone have both ? What do you do or take to manage these?

Hi! What Over The Counter Creams Have Helped Your Rash?

Hi! What Over The Counter Creams Have Helped Your Rash?

I’ve tried Elidel and several prescribed topical steroids with no luck. Looking to try something OTC! I have the rash on my neck, chest, armpits, ears, and slightly on my face around my hairline. Thanks!

A MyLupusTeam Member said:

Cortizone 10 or Hydrocortisone cream!

posted 3 days ago
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