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Lupus

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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Have Intense Itchy Rashes On A

Does Anyone Have Intense Itchy Rashes On A

A MyLupusTeam Member said:

I currently have one under butt cheek. I notice this new thing about third time.

posted about 4 hours ago

Why Should I Get Any Vaccines?

Why Should I Get Any Vaccines?

From what I’ve read, flu shots and other vaccines trigger the immune system to create antibodies. Isn’t the whole purpose of staying healthy by eating right and so on to keep our immune systems from activating which could cause it to attack healthy organs? Why would we want our immune systems to react?

A MyLupusTeam Member said:

I have the vaccines up today, and I will ask my rheumatologist about the Covid 19 vaccine.

posted about 7 hours ago

Has Anyone Thought About Taking The Vaccine For COVID-19 When It Becomes Available To Us?

Has Anyone Thought About Taking The Vaccine For COVID-19 When It Becomes Available To Us?

I have been thinking about it alot and feel like I would try it especially if it helps ease my anxiety of leaving my house. I barely leave home and I am avoiding everyone including my mom and MIL. I do not like being like this one bit but I don’t trust anyone and it feels icky to think that way.

What are you guys’ thoughts on the vaccine? Would you do it ?

And please don’t argue just share your thoughts and respect one… read more

A MyLupusTeam Member said:

I won't take it, my Dr said I can't take a live vaccine won't work on me because of sle lupus, I don't take flu either and Dr said the shingles vaccine… read more

posted 5 minutes ago

Cold Laser Therapy

Cold Laser Therapy

Has anyone ever tried cold laser therapy to reduce inflammation and swelling, especially in the wrists and hands?

A MyLupusTeam Member said:

Me too! Just would like to see if it would work when I so much swelling and inflammation in my wrists.

posted 1 day ago

Similarities Between Lupus And Long Term Effects Of Covid

Similarities Between Lupus And Long Term Effects Of Covid

I was watching news last night, an episode about covid patients who months later have similar symptoms of Lupus. Weakness,fatigue, numbness, brain fog, pain in joints and tendons, chest pain, has anyone thought to look into this?

A MyLupusTeam Member said:

Yup. Covid seems like rapid onset lupus. It’s crazy they don’t specifically make the connection but I suspect it’s why they thought of trying plaquenilread more

posted about 18 hours ago

Benlysta And Hydroxychloroquine Question?

Benlysta And Hydroxychloroquine Question?

Hello everyone.. Rheumatoid doctor told me his will send me for lab work to test for lupus. If I really have it? I am taking hydroxycholoroquine now for 200 mg once a day. He said He might put me in Benlysta too if my result came back positive for lupus.. My question is the there any side effects with benlysta? and safe to take it with Hydroxycholoroquine? Just nervous adding more medicine to take. My hair fall out when I started in Hydrorxycholoroquine and now its coming… read more

A MyLupusTeam Member said:

jcintron what is the side effects you had with benlysta? just curious I am so paranoid with side effects I don't want to end up in ER again..

posted about 7 hours ago

Viruses Might Trigger Lupus... Are Others Here Concerned About Taking Vaccines For More Immunity?

Viruses Might Trigger Lupus... Are Others Here Concerned About Taking Vaccines For More Immunity?

I was with Primary Care Physician the other day. He Strongly Suggested i get a Winter Flu Vaccine. I asked him: "Are Vaccines like Homeopathy, like Micro-dosing of something in order to trigger increased Immune response?" He nodded his head, "yes." FACT: Modern Mainstream Medicine has Long Dismissed Homeopathy as QUACKERY. That's Right... So, i sincerely Doubt his suggestions that a Winter Flu Vaccine is… read more

A MyLupusTeam Member said:

We can only do our best at any given time... Sometimes True that there is no real choice. So, we carry on regardless, Reach Out to others... Most… read more

posted about 12 hours ago

Lupus, Ups And Downs

Lupus, Ups And Downs

Does stress and diet play a part in lupus , what are the effects of stress? (good and bad), and the effects of dieting?(good and bad) any suggestions or advice?

A MyLupusTeam Member said:

@A MyLupusTeam Member I have the same problem you do about the weather defining how I am going to be feeling. The barometric pressure change really does… read more

posted 2 days ago

Does Anyone Else Have Low Anion Gap Related To Lupus?

Does Anyone Else Have Low Anion Gap Related To Lupus?

A MyLupusTeam Member said:

My anion gap was low the 2 times it was tested last year. I couldn’t even find info online about it since it’s supposedly so rare! The articles I’ve… read more

posted about 18 hours ago

Stuffy Nostrils!

Stuffy Nostrils!

Does anyone else have trouble with stuffy nostrils after waking up from sleep, or a nap?

A MyLupusTeam Member said:

24/7/365

I’ve been tested time and again. Allergies aren’t the cause of my stuffy nose or my hives. Mine is nonallergic rhinitis supposedly caused by… read more

edited, originally posted about 18 hours ago
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