Lupus

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Is anyone into fitness and exercises daily or fairly often?

Does anyone who still manages to exercise often take any supplements to aid with training?

posted about 4 hours ago by A MyLupusTeam User

I only take supplements, I manage to exercise daily and to build strength I do Pilates 3 to 4 times a week, for cardio my exercise is the treadmill 5-6… read more

posted about 4 hours ago

I've done everything I know to do and no improvement.

I eat clean, excercise, take suppliments, get plenty of rest, minimize stress and I still feel horrible. I can never get energy. It is starting to depress me. I am allergic to SO many foods and eat predominately vegetarian. Am I the only one? I have followed all of the best practices and still it doesn't help. How can I accept this as the rest of my life?

posted about 6 hours ago by A MyLupusTeam User
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Thank you

posted about 4 hours ago

Mouth sores, Meloxicam

Hi! I was just diagnosed with ANA negative Lupus about a week and a half ago so this is all new to me. I have been on Meloxicam since August (started me before the diagnosis). The past month I have had sores in my mouth constantly, and recently 2 on my nose. The sores are all over my mouth. Nothing makes them go away. I know lupus causes mouth sores but I’m wondering if these could be a reaction from the Meloxicam since they aren’t going away, or does this mean I’m in a flare? Thank you for… read more

tags: Sores

posted about 8 hours ago by A MyLupusTeam User
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I was on Methotrexate for a while and experienced mouth and nasal ulcers. I am not familiar with the drug you are on. I did switch to Imuran - it will… read more

posted about 2 hours ago

What can treat these flu like symptoms???

I've felt like I've had the flu every day now for about 1.5-2 months. My skin feels like I have a sunburn, my face feels flushed, I go between hot & cold, muscle aches, and also some weakness in legs/arms. All of my recent labs (cbc/chem/TSH) are normal so the Drs think it's lupus related but have told me no medications can alleviate those symptoms. I'm currently on Plaquenil 200mg BID. I'm at my wit's end and so frustrated! Advice??

posted about 21 hours ago by A MyLupusTeam User

I am also experiencing the flu like symptoms on a daily basis! It is worse in the morning! My Rheumy prescribed Tramadol time released and 50 mg… read more

posted about 20 hours ago

How to deal with cold intolerance

I have raynaulds and I have a horrible time keeping warm these days. I have bought compression wear to put under clothes but can’t ever get my hands to stay warm. Does anyone have ideas for a work environment?

posted about 22 hours ago by A MyLupusTeam User
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I always keep a sweater in my car both winter and summer. Air conditioning is worse than anything else for me. Also, layerimg helps. I wear bedroom… read more

posted about 21 hours ago

Pain medicine

I was prescribed Percocet 10/325 and morphine sulfate we 15mg. They are not helping my pain at all. Please help me with ideas for me to try to ask my doctor about. This pain is literally making me feel like I'm gonna loose my mind.

posted about 23 hours ago by A MyLupusTeam User
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I live in Georgia it's not legal here yet for lupus.

posted about 20 hours ago

Being off meds

What the longest you’ve gone without taking your Lupus meds? and what effect did you have?

posted 1 day ago by A MyLupusTeam User
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I switched docs ..the second doc told me I didn't have lupus..went off a month ..i went crawling back to first rheumy. She asked why I went off and I… read more

posted about 21 hours ago

Naproxen why would a rheumatologist tell you not to take Alene?

posted 1 day ago by A MyLupusTeam User
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Do you have any kidney issues that will be a reason. gentle hugs and blessings

posted about 14 hours ago

Ears and eyes itch

My ears get dry and itchy on the outside anyone else have that problem too? My eyelids also have like a dry itchy patch .. but no butterfly rash ..odd?

posted 1 day ago by A MyLupusTeam User
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Mine do that, I found out that Ponds Cold Creme work very well. Get some and try it, let me know. Thanks Denise

posted 1 day ago
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