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Other people's bad behaviour

Last Monday I had a knee operation fans for some unknown reason my bed did not have a curtain round it as I was right by the window and the sun was shining on me causing yet more discomfort I got a nurse to close the curtains but 3 elderly patients complained and the curtains was re opened I explained I had lupus and they kept saying I was contagious even refusing to use the bathroom after me then when they thought I was asleep I heard them say I was a witch, cult member and vampire… read more

posted about 4 hours ago by A MyLupusTeam User
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There is no excuse for the way others act, sometimes people comment on my face being so rosy red, if it is someone one I do not know I just over look it… read more

posted about 3 hours ago

Wondering if anyone has had or receiving IgG replacement therapy? If so, how do you feel?

My IgG antibodies are low which is common in Lupus. My rheumatologist has suggested I see an immuniologist to receive IgG injections. Apparently it will help with fatigue and the general unwell feeling of Lupus. I am wondering if the risks are worth it?

posted about 13 hours ago by A MyLupusTeam User

I have never had it but all i can say is look at the pros and cons and pray for guidance on what you should do and do not rush into anything. praying… read more

posted about 13 hours ago

Who among you is taking Methotrexate? why did your doctor prescribe that to you?

posted about 14 hours ago by A MyLupusTeam User

Are you considering going on MTX? I tried ti -twice- many years ago, but it was not for me. I have heard and read that it DOES halp many. For some… read more

posted about 4 hours ago

Stomach pain

OK so I'm dont think this has anything to do with lupus but for a week now my upper stomach has been hurting to the touch. There has been vomiting and diarrhea. The past two days the pain is constant and getting worse. Like bad pain. Its not my appendix because I've had that taken out so I'm not sure what's going on. I just do not want to go to the ER just to have nothing be wrong... Its pretty intense

posted about 17 hours ago by A MyLupusTeam User
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Please go get checked could be your pancreas.

posted about 15 hours ago

When to "go in"

I'm new to lupus. I had a very bad spell of all over pain about a month ago and my doc said to go to the ER next time. I was in the medical field and I feel bad going to the ER for something like this. I'm h aving another one of those bad spells though today. What are your criteria for going to the ER? When do you know when it's time to go?

posted about 18 hours ago by A MyLupusTeam User
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U will know just don't over react take a few minutes rest make sure Cuz u will see on here a lot of people go and they r checked and sent home doctors… read more

posted about 17 hours ago

Lupus pain

I am so confused as to what my body is doing. For the last three days I have experienced major joint/nerve pain on my right side only. I have blown discs in my lumbar spine however this is a different feeling. I have read about "pain" yet am mystified by the meaning of "pain" and where does one feel it?? I take 4 Norco a day or at least that is what I am suppose to take. I end up taking 6 a day when i can't tolerate and still the nerve/joint pain doesn't go away. I have been to pain specialist for my… read more

posted 1 day ago by A MyLupusTeam User
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@VictoriaVale, I agree with you on the pain meds. I got shot in the back and the bullet is lodged in my spine. That was when I was 15 years old. I have… read more

posted about 18 hours ago

Has anyone tried beach body and 21 day fix to loose weight?

I'm trying to loose weight to decrease my risk of miscarriages and I've had family and friends have great success with beach body, but none of them have lupus. Just wondering if anyone has tried it and if they lost weight or had symptoms flare up.

posted 1 day ago by A MyLupusTeam User

I have tried various Beachbody exercise programs over the years and I really like PIYO which is a Pilates/ yoga blend. If your body can handle the rigor… read more

posted 1 day ago

Omeprazole and carafate

My gi specialist has tooken me off carafate and wants me to try omeprazole 2x a day I already been on it 1x a day in the morning .they wanna see if it helps with the ulcers but honestly the carafate helps and give comfort the most when I eat and relieves any acid reflux symptoms.anybody on omeprazole 2x a day .does it help ?

posted 1 day ago by A MyLupusTeam User
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Didn't work for me was put on nexium.

posted about 15 hours ago


Does anyone else get really bad anxiety when they have to call into work? I have FMLA so my I can't get fired for missing work... And I never abuse it, I only call out when I know I just can't do it that day. But even still when I know I've gotta call out it gets my nerves all frazzled. Anyone else get like this?

posted 1 day ago by A MyLupusTeam User
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Yes, even though I am on an FMLA intermittent leave plan, I catch all type of heat. I have been more fatigued and sick lately, hence more leave. I am… read more

posted about 20 hours ago

How do you cope with the anxiety that comes with having this dreadful illness?

posted 1 day ago by A MyLupusTeam User
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To add to that, anything that can get me to stop using/needing opiates and benzos is good in my book.

posted about 7 hours ago
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