Lupus
Questions + Answers
I was wondering how many of you have kidney disease?
I was wondering how many of you have kidney disease?
My Lupus is attacking my kidneys and some articles say it's common and others say it's not. My rhuematologist and nepherologist seem to be surprised by this.
My rheumy said kidney involvement is one of the few true emergencies that rheumatologists see. I think kidney involvement is always in the back of my… read more
Does anyone’s scalp tingle if their neck is bent?
Does anyone’s scalp tingle if their neck is bent?
The only position i can keep my neck is straight. If I cock it left, right, forward, back, or any position between, about 1/3 of my scalp tingles. I have lupus and fibromyalgia. Which is the more likely the culprit and why (eg muscles press nerves vs body attacking nerves directly)? Anything I can do to stop it?
Drop in WBC
Drop in WBC
I went to the doctor today with horrible UTI symptoms. They are sending my urine off for culture but definitely say that it is “abnormal” and they are treating a UTI. On my CBC my white blood cells were in reference range but definitely way lower than what is normal for me. Could this be sign of a flare? I am having some symptoms as well. Increased rash, my face looks like its been baking in the sun, swollen nodes. Just curious if wbc could indicate flare.
Muscle swelling
Muscle swelling
One of my symptoms is muscle stiffness and spasm. The rheumy and I think the repeated problems and weakness might be a sign of PM/DM overlap rather than my Lupus and we’re keeping watch for that. Anyway...
What seems odd about my muscle pain is that when it happens I often get VERY swollen muscles. I’ll get a knot by my shoulder blade that feels like I’m being stabbed. After a day that knot is so swollen and tender you can see the lump coming up from my back!
Same with my shoulder pain or neck.… read more
Side effect of morning after pills ?
Side effect of morning after pills ?
Due to my health myform of prevention is condoms,last weekend it busted and I used morning after pills.does anyone know what side effects it could have ?
It causes extreme fatigue and sleepiness! I took it once years ago and I fell asleep on the freeway after taking it and crashed going like 70 mph into a… read more
Anyone on Benlysta
Anyone on Benlysta
Doc wants to add to my treatments and I’m looking for feedback.
Thanks
Dark urine on plaquenil?
Dark urine on plaquenil?
When does this side effect start? I started taking it in december and have recently started having much darker than normal urine within the past month.
I was on Plaq for a long time never had that, please check with your doctor, let him/ her know.
Prayers
K
Interstitial Cystitis
Interstitial Cystitis
Have anyone here also been diagnosed with IC? Or have bladder inflammation due to your lupus?What were your symptoms?
I do have IC. I was having a lot of symptoms of a UTI and the dip test showed infection, blood, etc., but when they cultured it out, there was no… read more
headache
headache
I am having an extremely bad day. I was diagnosed with Lupus 20 yrs. ago. I am having horrible headaches! I don't remember what the treatments were at that time for me. Any help with this would be so much appreciated.
Loneliness and depression
Loneliness and depression
Due our chronic pain and fatigue, we tend to get very depressed. While this support group is a God send. I want to know if anyone would be interested in starting a conference call chat maybe weekly in order form a more personal unit. I feel so isolated and sometimes there i can go for days without hearing my own voice. Let know if anyone would be interested. Please !!!!!.
