Lupus
Questions + Answers
Has anyone with the SSA antibodies (ro, la) had successful pregnancies?
I am currently 7 weeks pregnant after a long struggle with infertility! I am cautiously optimistic. The baby's heart is beating and so far all is normal. My question is related to the Anti-ro anti-la antibodies. I have them and I know they can cause fetal heartblock and neonatal lupus. Of course I will be heavily monitored but I'd like to hear anyone's experience with pregnancy abd these antibodies. I know heartblock is a small chance but it's… read more
Why is meat so bad to eat?
I keep reading everyone's post about how us lupies shouldn't eat fish,red meat and pork. I'm confused as to why?
Its not,just like everything else eating red meat or pork in moderation is fine. Eating sugar and dairy should done in moderation as well because they… read more
Are my symptoms from having lupus or something else?
My body is changing so much like literally every hour it's something different. I don't know if the hand cramps or the nausea, sharp pains in my head,swollen feet,sore heels,can't sleep at all unless I pop a pill and sores coming in on my arms and pimples and dry patches.....is it Lupus or Not please help me understand more???
This sounds like lupus to me. I've experienced all of that except the sharp pains in the head. Nausea could be from meds. Take it easy and listen to… read more
Swollen knees and ankles.
Went to my rheumatologist a couple weeks ago my right knee was swollen and very bad knee pain she gave me a shot of steroids and said it shouldn't be that way due to my high dosage of steroids everyday. The shot helped for about a week and now I'm back at swollen knee and ankle with pain. She also said I shouldn't have any flares being on it either. Anybody else experience this and what did you do for it? I feel like I don't want to call her again considering she told me I shouldn't be… read more
My knees stay swollen due to the arthritis but i also have bursitis in both knees. Try seeing a orthopedic surgeon.
What do you do for your dry mouth and eyes?
Looking to see if there's anything out there other than nerve medicine. Thanks!
I find putting old fashioned Glycerin (this what we call it in South Africa) on my tongue and it really helps
Discoid Lupus
Why is it doctors think Discoid only affects the skin? And why is a positive Ana result overlooked because it's low if you have several other symptoms of sle
There are different kinds of discoid lupus and drs are useless when it comes to lupus they follow a book and think every patient is the same as the book… read more
Treated for lupus as a child then ANA was negativr and they told me i didnt have it?
So as a child (i was about 9/10 at the time) i became very ill to the point i almost died, my platelets bottomed out at <200 white blood cells were through the roof, high fever and nausea that would not go away, thought it was cancer but my ana was positive, was sent to nashville to a hospital and treated after 6 monthz my ana was negative and they have since tolf me i no longer have lupus....
Since that time i have had sever… read more
I would go to a good naturopathic doctor that graduated from a good school and have them start you on a diet, vitamin, supplement, mineral routine that… read more
Anyone having extreme muscle weakness. Are chest pains common in Lupus?
EMG and blood work fine, no inflammation in muscles. Can't explain muscle weakness. Any information would be appreciated.
Thats the same exact question i asked a few days ago. It could be a number of things ie...potassium could be low eat bananas or not drinking enough… read more
Meat? Dairy? Fish? Lupus
My husband on a side job today for a nutritionist and he was telling him I have lupus the nutrition was telling my husband that I'm not suppose to eat meat, fish, dairy. My husband told him that I stopped eating meat 5 months ago I only eat fish, he said no it's not good for us lupus patients so what can we eat. What have you all heard?
Dairy products I t tolerated sometimes although my medicine won't allow me to take it anymore fish I rather eat it and meat I can do without for at… read more
Does anyone else have itching and burning and scabs on their head
I have had this hurting itching burning and scabs on my scalp for a very long time now. I even have a big spot of baldness on the top of my head. Any advice would be appreciated cause this is driving me crazy.
I go to dermatologist. Meds he has given has helped.