Lupus
Questions + Answers
Eye sight issues with SLE or hydroxycloroquine?
I am newly on plaquenil, consistenly i have been taking it for only 10 days. I have had eye irritaion (4days) and today blurry vision hit hard, i have good healthy eye sight. I have heard the build up you can get in your eyes and i have an appt on dec 6th with the optimologist. I am wondering if others with SLE have eye issues or if it is simply from the plaquenil (actually hydroxycloroquine)?
Has anyone have any difficulties loosing weight from all the medications? Been gaining wieght I wnat some helpful tips.
Does pregnancy trigger Lupus?
Women, (men can insert feedback too) when were you diagnosed with lupus? Were you or had you ever been pregnant? This is a question that I've been seeking an answer to for a while.
I had already had both of my children
Weight Management While On Prednisone
Has anyone figured out how to manage your weight while on Prednisone. I eat like a bird and I was exercising regularly until a couple months ago when my doc asked me to stop heavy cardio since I was flaring again. I gained 15 pound in the first four months of using high dose Prednisone (was originally on 60 mg a day). Since then I have worked hard to lose the weight. Over the course of 3 months I managed to lose 7 pounds, but then when I had to stop exercising again, I… read more
I was the same. I was on 40mg and I’m now down to 15mg. I was constantly hungry on the high dose but now I’m a lot less so. I also put on weight, half a… read more
How do you manage to sleep while on prednisone??
currently I'm almost done with two weeks on 25 mg of prednisone and it should be dropping soon, it was 30 mg the two weeks before that, my main problem is I CANT SLEEEP. I really don't know what to do. My rheumatologist suggested taking the pills early and exercising. I do take the pills fairly early (around 8am) and I've tried some exercise (not gonna lie, I could try harder), but it doesn't seem to work?? how long should I be exercising and what kind? I tried… read more
The lower the prednisone then the better you can sleep. Try over the counter sleep aids.
I have positive ANA 180 Homogeneous and positive P-ANCA (MPO). I had never heard of this combination before...or at least the P-ANCA (MPO)?
So far I have been diagnosed with Disc degenerative disease, Morphea, poly neuropathy, Hashimotos, Barrett's, Raynaud's, Interstitial cystitis, MCTD, lymphedema, osteoarthritis. Recent lab came back also have low platelets, enlarged spleen. I hate going to Dr cause I seem to get diagnosed with new disease everytime I go. Also the following were high LD, CK(MB), AST, CRP,… read more
Cellcept
Can anyone give me any information about how sick you have gotten when taking Cellcept? My doc wants to start me on 1 pill twice a day and ramp up to 3 pills twice a day. Does it make you very sick? I'm not sure exactly what to expect.
Does anyone know what would cause sudden nose bleeds, or clear fluid dripping from nasal passages, without any trauma to the area ?
Dry mouth
I dont know whats going on because ive dealt with dry mouth for years and had it under control for the most part but the past 5 days have been horrible. Absolutely NO saliva and water, gum, biotene, restricting sodium - nothing is helping. 100% dry. Intolerabe. Dont know what to do or change. Has a sudden and acute onset/relapse happened to anyone else and if so, what made it go away? I know what sjogrens, etc. Is so not asking what i have - aski g what to do for the acute flare up.
Prednisone not working?
Anyone not respond to prednisone? If so, what do you use during flares? Prednisone isn't helping one bit. In fact, I think it's making my symptoms worse!
