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3 medium

Eye sight issues with SLE or hydroxycloroquine?

I am newly on plaquenil, consistenly i have been taking it for only 10 days. I have had eye irritaion (4days) and today blurry vision hit hard, i have good healthy eye sight. I have heard the build up you can get in your eyes and i have an appt on dec 6th with the optimologist. I am wondering if others with SLE have eye issues or if it is simply from the plaquenil (actually hydroxycloroquine)?

posted about 10 hours ago
A MyLupusTeam Member said:

Hi Denise, I also take plaquenil and my eyesight is getting a little blurry and I been plaquenil 2 year

posted about 7 hours ago
2 medium

Has anyone have any difficulties loosing weight from all the medications? Been gaining wieght I wnat some helpful tips.

posted about 17 hours ago
A MyLupusTeam Member said:

I’m always trying to lose weight. I know a lot of folks have success on low carb or Keto. I’m trying to get it started. Good luck

posted about 13 hours ago
9 medium

Does pregnancy trigger Lupus?

Women, (men can insert feedback too) when were you diagnosed with lupus? Were you or had you ever been pregnant? This is a question that I've been seeking an answer to for a while.

posted about 19 hours ago
A MyLupusTeam Member said:

I had already had both of my children

posted about 13 hours ago
7 medium

Weight Management While On Prednisone

Has anyone figured out how to manage your weight while on Prednisone. I eat like a bird and I was exercising regularly until a couple months ago when my doc asked me to stop heavy cardio since I was flaring again. I gained 15 pound in the first four months of using high dose Prednisone (was originally on 60 mg a day). Since then I have worked hard to lose the weight. Over the course of 3 months I managed to lose 7 pounds, but then when I had to stop exercising again, I… read more

posted about 20 hours ago
A MyLupusTeam Member said:

I was the same. I was on 40mg and I’m now down to 15mg. I was constantly hungry on the high dose but now I’m a lot less so. I also put on weight, half a… read more

posted about 16 hours ago
2 medium

How do you manage to sleep while on prednisone??

currently I'm almost done with two weeks on 25 mg of prednisone and it should be dropping soon, it was 30 mg the two weeks before that, my main problem is I CANT SLEEEP. I really don't know what to do. My rheumatologist suggested taking the pills early and exercising. I do take the pills fairly early (around 8am) and I've tried some exercise (not gonna lie, I could try harder), but it doesn't seem to work?? how long should I be exercising and what kind? I tried… read more

posted about 20 hours ago
A MyLupusTeam Member said:

The lower the prednisone then the better you can sleep. Try over the counter sleep aids.

posted about 12 hours ago
8 medium

I have positive ANA 180 Homogeneous and positive P-ANCA (MPO). I had never heard of this combination before...or at least the P-ANCA (MPO)?

So far I have been diagnosed with Disc degenerative disease, Morphea, poly neuropathy, Hashimotos, Barrett's, Raynaud's, Interstitial cystitis, MCTD, lymphedema, osteoarthritis. Recent lab came back also have low platelets, enlarged spleen. I hate going to Dr cause I seem to get diagnosed with new disease everytime I go. Also the following were high LD, CK(MB), AST, CRP,… read more

posted about 21 hours ago
A MyLupusTeam Member said:

Thank you for your timely responses and kind words.

I hope you don't mind if I ask another question....

Do you know if the P-ANCA is associated with… read more

posted about 20 hours ago
7 medium

Cellcept

Can anyone give me any information about how sick you have gotten when taking Cellcept? My doc wants to start me on 1 pill twice a day and ramp up to 3 pills twice a day. Does it make you very sick? I'm not sure exactly what to expect.

posted about 21 hours ago
A MyLupusTeam Member said:

I did excellent on CellCept. It wasn't until the insurance company took me off of it because they said it was too expensive when I had my flare. I am… read more

posted about 8 hours ago
2 medium

Does anyone know what would cause sudden nose bleeds, or clear fluid dripping from nasal passages, without any trauma to the area ?

posted 1 day ago
A MyLupusTeam Member said:

@A MyLupusTeam Member Thank you, I will make sure to bring that up with the doctor.

posted about 21 hours ago
0 medium

Dry mouth

I dont know whats going on because ive dealt with dry mouth for years and had it under control for the most part but the past 5 days have been horrible. Absolutely NO saliva and water, gum, biotene, restricting sodium - nothing is helping. 100% dry. Intolerabe. Dont know what to do or change. Has a sudden and acute onset/relapse happened to anyone else and if so, what made it go away? I know what sjogrens, etc. Is so not asking what i have - aski g what to do for the acute flare up.

posted 1 day ago
A MyLupusTeam Member said:

I'm sorry have not had the problem yet n hope not too.

posted about 11 hours ago
6 medium

Prednisone not working?

Anyone not respond to prednisone? If so, what do you use during flares? Prednisone isn't helping one bit. In fact, I think it's making my symptoms worse!

posted 1 day ago
A MyLupusTeam Member said:

The one I'm seeing tapered me off and just has me on NSAIDs. I feel like they don't help much either.

posted 1 day ago
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