Connect with others who understand.

sign up log in
About MyLupusTeam

Lupus

Questions + Answers

Don't see your question? ask question
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Therapy Question; Does It Work?

Therapy Question; Does It Work?

My family have been wanting me to go to a family therapist lately, though I have been considering it I still wonder if it works or have been beneficial for people with Lupus? Since I have really been really commited to my support team lately and meeting great people here. And since I am young and in my 20s also though which would be better - a woman or male therapist I do want some one to relate to, but on another level since I am a woman I already am in tune with myself and my issues lie more… read more

Has Any Body Ever Experienced Torn Ligaments And Tendons Without An Injury

Has Any Body Ever Experienced Torn Ligaments And Tendons Without An Injury

I had been having problems with my right foot as swelling, especially around the outside ankle, pain when walking and feeling of popping just under my ankle when I walk, or just doing anything, foot pain when the bedsheets would touch my foot. I went to my podiatrist, was put in a boot for 6 weeks, nope no improvement, pain level actually went up then he sent me to a surgeon who put me through an MRI, there it was my into the foot had torn tendons and the ligaments that run over the top of the… read more

A MyLupusTeam Member said:

Certain antibiotics can cause this to happen..they ususlly have a black box warning. It usually means to pharmacists will talk to you before you take it.

posted about 15 hours ago

I'm Still New And Don't Know How Much To Participate

I'm Still New And Don't Know How Much To Participate

My question has to do more with diagnosis. For 20 years I have dealt with life-changing Fibromyalia. The daily tasks consists of extreme fatique and pain. It moves from one body part to another. Not much in the way of pain help either. Now, my same Doctor did more bloodworm and it came back quote " suspicious of Lupus ". Now he is sending me to a neurologist for better care. What do I do with that? Now what? Can anybody help me understand? I already have a positive ANA in my bloodwork, and… read more

A MyLupusTeam Member said:

First we’re here for you and you can ask as many questions as you want, we may not have all the answers. I’ve had lupus sense 2000 and also have fibromyalgia, lupus came first, whenI Have a flair I… read more

posted 1 day ago

Work

Work

How do y’all cope going to work with so much pain and feeling like you can barley walk? I get anxious about that. Then I get brain fog. Sometime just look at the computer like what am I doing? I know what I’m doing but it just can’t come out. I feel like people at work probably think I’m snobby or rude since I try not to leave my work space in fear of falling or being sociable when I can’t think. My hands cramp up. I sweat yet am freezing because of my anemia. It just feels hopeless. And now… read more

A MyLupusTeam Member said:

I can only speak of my situation. But it took me two years to jump through hoops to finally get my disability. I had to hire a lawyer for the second attempt. Still the judge denied me the previous 4… read more

posted 1 day ago

Geesh....New Meds

Geesh....New Meds

Hello Warriors hope all is well. I have seen my new rheumatologist now twice (today made the 2nd visit) The PA prescribed me AMITRIPTYLINE 10mg & MYCOPHENOLATE 500mg. She said that she feels like the lupus needs to be "controlled" better which taking these meds should do & make me feel better. I am not for just taking meds without research and some good info from ppl that have "actually" taken the Meds. Please Warriors if you have any info on these two meds, feel free to let me know. I am also… read more

A MyLupusTeam Member said:

Brian thanks😃

posted 1 day ago

Dental Issues

Dental Issues

I am just wondering how many people experience tooth loss due to lupus and inflammation of the gums?

A MyLupusTeam Member said:

Well now that I'm thinking about it, my gums have been giving me issues and about 3 yrs ago I had a root canal & had a tooth extracted in the same month. Both of those areas are giving me problems. So… read more

posted 1 day ago

Lupus Patients And Possible Vaccine Experiences?

Lupus Patients And Possible Vaccine Experiences?

Hello my fellow Lupus peeps,

I’ve decided to take the vaccine. Previously checked with my doctors who all gave me the go ahead to take Pfizer. I’m a little nervous though after considering that I may have scheduled it during “that time of the month”. Which during that time I’m usually feeling pretty bad as it is and have noticed my immune system tends to be more sensitive then usual. Also, am feeling stressed about an upcoming job interview. With all that said, I’m considering postponing the… read more

A MyLupusTeam Member said:

I took the 3rd booster of Pfizer. I only felt fatigued the next day. I just rested and after I was fine.

posted about 13 hours ago

Excessive Vaginal Bleeding & Cramping

Excessive Vaginal Bleeding & Cramping

I take a couple different medications for my lupus , ive had an Cytoxan infusion but was recently prescribed in july Voclosporin/ or Lupkynis. after 2 months starting in october i noticed bleeding happening every 2 weeks, & is continuing. has anyone ever had this issue before? Also i am 23 and have never been to a gynecologist before this will be my first time going

A MyLupusTeam Member said:

They put me on birth control to try and see it controls the bleeding.

posted 3 days ago
Already a Member? Log in