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2 medium

Anyone have Discoid Lupus turn into SLE?

Hi everyone! I was diagnosed with Discoid Lupus after one summer of boating and constantly being outside. I had the Malar rash and fatigue and lesions.

Nothing was ever done except I was given a Discoid Lupus pamphlet and told to take care of myself while under sun.

Fast forward a decade later I’ve tested positive again ANA tests and negative for MS. I have had difficulty walking up the stairs and weird pins and needles and numbness in toes and fingers. Has anyone had… read more

posted about 7 hours ago by A MyLupusTeam User

Thank you monika75. I had EMG come out clear and I am scheduled for tissue biopsy next week to rule out small nerve fiber neuropathy. It’s all a bit… read more

posted about 7 hours ago
5 medium

sensitivity to smells

All of a sudden I can feel my butterfly rash get hot on my face and I feel like I can't handle the smells of cleaners, nail polish and fbreeze without feeling sick to my stomach. Is this a lupus thing?

posted about 12 hours ago by A MyLupusTeam User
1 medium

Vitamin D levels low?

I had a vitiman d deficiency in May 2017, July 2017, and again now July 2018. Is this a Lupus thing?

posted about 14 hours ago by A MyLupusTeam User

Yes. I take vitamin D everyday but my doctor shrugged it off at first so make sure to advocate for yourself.

posted about 6 hours ago
4 medium

ice cold chills on one side of my body

I am experiencing ice cold sensation on the left side of my body mostly in my hand and arm. It started in my foot and now its in my hand. I feel as though I am laying on ice. I am trying to get my arm warm but I don't have a jacket here at work. Is this a symptom of lupus?

posted about 19 hours ago by A MyLupusTeam User

For me, I have CNS involvement in my lupus, and this happens to me regularly.

When to be concerned is when you begin to experience pains on the left… read more

posted about 16 hours ago
7 medium

Early lupus diagnosis

Hello, this is all very new to me. Over the past few months I have had a lot of symptoms which ensured my doctor referred me to a rheumatologist. They have diagnosed me with an "autoimmune disease within the lupus spectrum" but will not call is Lupus as we don't know yet if it has attacked my organs.
I guess when I go back in 3 months time and we have results from scans/ultrasounds they may do so. They have put me on hydroxychloroquine for the mean time.
Symptoms include: Fatigue, joint… read more

posted 1 day ago by A MyLupusTeam User

Unfortunately, some doctor's drag their feet. If he has started you on Plaquenil that is good. Ask for pain meds or to see pain management doctor.

posted about 9 hours ago
7 medium

Severe bavk pain

I have lupus for 16 years now and renal failure for the last 3 years. I was on dialysis for 18 months. I now have severe back pain for the last 2 weeks. Does anyone have any advice?

posted 1 day ago by A MyLupusTeam User

Go see nephrologist. He needs to check it out. Praying for you

posted about 9 hours ago
8 medium

Is persistent swelling that won't go away after an injury has healed a sign of Lupus?

Hi everyone. I haven't been diagnosed with Lupus, but my ANA levels are sky rocket high. Two years ago I injured/sprained my foot--actually I don't know what I did. But I experienced extensive swelling that has yet to fully go away (it pits and gets worse when I have my period). Doctor after doctor say that there is nothing structurally wrong with the foot that would be causing this.

Recently I a chiropractor (who is now fired)… read more

posted 1 day ago by A MyLupusTeam User

Go see an orthopedic doctor.

posted 1 day ago
4 medium


I am searching for a counselor/therapist to help me cope with lupus' mental afflictions as well as other things. I don't see much about it when I do a google search or through my health insurance page. Any recommendations for Boston Area? I don't see it as an option under the provider directory.

posted 2 days ago by A MyLupusTeam User

Where are you Doll?

posted 1 day ago
4 medium

Reoccuring joint pain in one place?

I have migratory joint pain usually but I have had increasing pain in my left shoulder recently. It is debilitating. I can't sleep on that side or even lift things with that arm, but it's not constant. It just happens more often there than anywhere else...

Does this happen to anyone else?

posted 2 days ago by A MyLupusTeam User

Glad it’s helpful! Maybe it’ll help you treat it more effectively even!

Inflammation is the cause for so many painful problems. And Lupus can cause it… read more

posted 1 day ago
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