Lupus
Questions + Answers
Rogaine for hair thinning
Anyone try rogaine for women the foam or liquid drops ? I tried it and it works but I’m wondering if it causes any skin problems or water rentention even though it’s not a pill ? I read a few things online that showed it could cause water rentention but my rheumatologist said no not the topical form only pills ? Anyone experience side effects
Flu or flare
just curious how you guys can tell the difference between getting a flu or flaring up? Symptoms are so close to each other and I am not allowed to work if I get the flu
Daughter with positive ANA and Anti dsDNA
After 7 months I finally found a doctor to listen to me, of all things it was a pediatric gynecologist! She’s tested positive for ANA and anti dsDNA. I’m waiting for her doctor to call me with a referral. Could someone give me an idea of what a positive anti dsDNA means? (My daughte is almost 11)
Has anyone on here been diagnosed with Chronic Active Epstein Barr (mono) Virus?
I wasn't feeling well so I went into the doctors for blood work and I just found out that I have active Epstein Barr (mono) for the 4th time. I read that this can happen in immune compromised individuals. Anyone else have this happen? If so, what can be done?
How do I explain to my family and make them understand the do's and don'ts and the side effects of what having lupus means?
In process of being diagnosed...
Hi everyone. I'm new to this community and would love some feedback from any of you as I believe you would probably know way more about your disease and diagnosis than some Doctors and what I can read on the web.
Quick history ( if that is possible) I started with joint pain in my thumb joint about 6-8 months ago. Got to the point where I couldn't touch my thumb and pinky together or grab things with my hand. I went to Doctor, did U/S and xray, came back clear. So she… read more
@A MyLupusTeam Member : I found it in one of the studies that was published on line I believe. It was very interesting to read. I find the Doctor… read more
Has anyone been diagnosed with DLE & developed SLE later?
I have recently been diagnosed with Discoid Lupus Erythematosus, biopsy confirmed it. I had a negative ANA result but was told that some people test negative at first only to get a positive result at some later date. I've looked at the statistics but I wanted feedback from real live people versus just reading about the numbers. Have any of you been diagnosed with DLE (Discoid Lupus) and then later had it develop into SLE (Systemic Lupus)? If so what was… read more
Red blood cells, hemoglobin and MCHC
has anyone ever had higher levels but still in the normal range for red blood cells? and also high hemoglobin or high MCHC (mean corpuscular hemoglobin concentration) mine isn’t too too high, just barely above the normal ranges. but the thing is, i drink A LOT of water. almost a gallon a day. so when my doctor told me it was because i was dehyrated, i told her no because i drank 3 liters of water before my blood test and am never dehydrated. anyway, was just wondering if this… read more
Fainting and gastro issues
I just got diagnosed with lupus on thursday, waiting to meet my rheumatologist at the beginning of Februray. I was just curious if anyone with sle lupus has passing out episodes or gastro issues (like nausea and vomiting). I went to the mayo clinic last year and I was told i had pots syndrome and gastroparesis. Could lupus explain these symptoms or am i just super special and have three different diseases?
