Lupus

Questions + Answers

Don't see your question? ask question
All Questions Most Answered Most Useful Needs Answers Resources:
View:

Problems with periods?

I used to be very regular but now, 21days late and now on day 13...common symptom? Im hoping Planquenil helps this too. Starting it tomorrow.

posted about 5 hours ago by A MyLupusTeam User
view all answers (2)

Can’t answer that one sis...I don’t have cycles anymore.

posted about 5 hours ago

What does it means when you have chest pain but X-rays, CT scans and stress tests are all good?

posted about 10 hours ago by A MyLupusTeam User
view all answers (4)

Its very common for us lupies to have chest pain when taking deep breaths due to costochondtitis, its its inflammation in the lining of ribs and chest… read more

edited, originally posted about 9 hours ago

During a flare, what symptoms do you have and how do you manage them?

I’ve notiiced patterns recently when I am flared up, my heart feels tight (I know that sounds crazy), it’s hard to breath, I have high blood pressure, I get constipated, my joints hurt, and I’m extremely fatigued. This lasts for about 4-5 day’s at a time. I was curious if anyone else experiences flares like this and if so, do you do anything to help or are you in any medications that have helped with symptoms like these? The first couple times… read more

tags: #FlareUp Constipation High blood pressure Breathing Inflamation

posted about 20 hours ago by A MyLupusTeam User

I stopped taking Plaquenil, took for 6 months no help. I still take a baby aspirin

posted about 2 hours ago

What is a good gluten free protein powder?

Im looking for meal replacement protein powder that is ant-inflammatory.

posted about 23 hours ago by A MyLupusTeam User
view all answers (4)

Im starting with beachbody!

posted about 20 hours ago

Does anyone who suffers from DLE feel like there is not info/research out there about it?

I meant to write "not enough info/research"
Not to take away from the severity from those suffering from SLE but I feel like DLE is a bit overlooked.
I see research surveys and things of that nature for SLE but very little if any for DLE.
I also feel like dermatologists and rheumatologists don't seem to be as up on it as they are when it comes to SLE.
Just curious what others have experienced with this.

edited, originally posted about 23 hours ago by A MyLupusTeam User

Absolutely. For years I was diagnosed w rosacea, then acne. I was prescribed minocycline (which made me flare w/o any doctors being attuned), then I… read more

posted about 6 hours ago

Does anyone have extreme foot pain on top of your feet

My rt foot gets so bad that sometimes I have a hard time walking

posted about 24 hours ago by A MyLupusTeam User
view all answers (3)

I have peripheral neuropathy so I get this in both my feet. I also use the cold wraps from 99 Cent store to relieve this, like the sciatica. You have to… read more

posted about 5 hours ago

Eye toxicity and plaquenil

I just saw my eye doctor and she told me the plaquenil is causing toxicity in my eyes and if I continue to take it, I could lose my vision.
I contacted my nephrologist but he wanted me to lower the dose to 200mg twice a day, not completely stop it. I'm dlso hesitant and dont want to take that risk. Has anybody else been told their eyes can't handle the plaquenil? Is there an alternative?

posted 1 day ago by A MyLupusTeam User
view all answers (4)

Stop taking it immediately!!! Your rheumatologist should find another way to continue treatment!

posted about 10 hours ago

Does anyone deal with tooth pain or weakness?

I often get mouth pain, but from time to time my teeth hurt. They feel like they are loose and tender to bite on. They are not actually loose to touch them and try to wiggle them, they just feel that way when I bite down

posted 1 day ago by A MyLupusTeam User
view all answers (8)

I've been feeling tooth pain for a long time and I just had one tooth pulled and I have to get another one pulled. My teeth are very sensitive to hot… read more

posted about 14 hours ago

Should I see a doctor to see if I have lupus?

This week my mom noticed a slight red, butterfly shaped rash on my cheek bones and asked how long I had that and indicated it kind of looks like a lupus rash. I had no idea.

A little background with me, for the past 2 years I have had on and off medical issues with seemingly no rhyme or reason nor diagnosis.

Started out with extreme fatigue and loss of cognitive capability. I saw the doctor about it and they then diagnosed me with sleep apnea....been using CPAP ever… read more

posted 1 day ago by A MyLupusTeam User
view all answers (5)

I would get tested..then you'll have an answer!!

posted about 21 hours ago

Do you tell people you have a terminal illness before your first date??

I'm single. I get a lot of men that talk to me & show interest but I don't know if I'm scaring them off because I tell them I'm terminally ill. Do you tell people ahead of time or is it better to wait until after you've met in person?

I'm an open book about my life. I've been through a lot of physical & emotional abuse since age 3. I'm lost lately. I left an 8 yr Relationship in October because he didn't want to deal with my illness.… read more

posted 1 day ago by A MyLupusTeam User
view all answers (9)

Im opening up in small doses to my fiance. Im roo terrified to say much. I agree with the others that waiting to see if it is going anywhere is good. Of… read more

posted about 5 hours ago
MyLupusTeam is a free social network that makes it easy to find others like you and gain insights from others living with lupus.
Sign up Log in