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Lupus

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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Lupus And Clotting Issues

Lupus And Clotting Issues

Anyone under treatment for lupus induced anticoagulation issues? I’m curious to find out what may be effective for others.

A MyLupusTeam Member said:

I have a form of APS known as Hughes Disease. While not on the more aggressive forms of anticoagulant therapy stated, I take antiplatelet medication in the form of aspirin or baby aspirin depending… read more

posted 1 day ago

Medication Prednisone

Medication Prednisone

I’m very reluctant to use prescription drugs. I have been struggling lately and the doctor wants to try me on Prednisone. Is anyone on this and how does it make you feel? Thank you in advance 😉

A MyLupusTeam Member said:

I am taking prednisone to help my swallowing difficulties/dysphagia and inflammation. I found taking it in the morning is way easier on my body. When I took it at night , prednisone gave me horrible… read more

posted 1 day ago

Lupus Rash On Hips

Lupus Rash On Hips

have a horrible rash on my hips that I get off and on for years. They are circular and almost look like ring worm even though its not. The doctor told me it was not a lupus rash, but from what I have read, seen, etc, it is lupus rash. Can anyone relate?
Thank you,

A MyLupusTeam Member said:

I have discoid lupus and it looks about the same but mine goes really red and itchy and hurts sometimes it bleeds and its mostly on my face, ears but have had on neck scalp arms back and legs not much… read more

posted about 4 hours ago

Anyone Ever Have To See A Hematologist Due To Elevated Neutrophils?

Anyone Ever Have To See A Hematologist Due To Elevated Neutrophils?

Blood smear showed "large" neutrophils that are most likely "reactive". However, repeating labs in 3 months and if cytometry abnormal bone marrow biopsy recommended?

Also, in process of scheduling kidney biopsy due to abnormal urine test (random) elevated RBC however, 24 hour urine now normal.

A MyLupusTeam Member said:

agree- doing the tests, and it is nothing until its something... thank you for responding. we all need to hang in there...

posted 1 day ago

Help With Questions

Help With Questions

I was referred to a allergy, immunologist amd asthma doctor . It says he not taking new patients but he took me . He going to get to me june 6th . Over look my spelling my hands are shaking . My throat red and hurting . I dont known what's up but my throat hurts so does my jaw. I have hives and rashes again . But my questions is what do these doctors do ? I've never seen one before or heard of one . I am nervous as a cat in the box . He is a specialized allergy doctor in anaphylaxis… read more

A MyLupusTeam Member said:

Sounds like you are in a Lupus flare; everything is swelling.🙃

posted about 5 hours ago

Lupus Improves After Menopause?

Lupus Improves After Menopause?

My doctor told me usually many lupus symptoms /flares disappear after menopause? Was wondering how post menopausal women’s lupus changed after menopause ?

A MyLupusTeam Member said:

I was diagnosed after menopause. 💜🦋🤗

posted 1 day ago

Chilblains Indoors?

Chilblains Indoors?

Hey everyone,
I am itchy head to toe with what feels like chilblains. I am indoors, not wet or damp or cold…..just wondering if it is possible to still get them?
They aren’t hives. Also, I have not scratched, but rubbed, yet I have very angry marks starting.
Took a Benadryl,

A MyLupusTeam Member said:

Good doctors are so essential 💗

posted about 18 hours ago

Kidney Disease?

Kidney Disease?

So I’ve been having a lot of UTI’s and small kidney stones for a couple months now. I had urine and blood work done and my pcp said not to worry. I’m still worried since kidney disease is part of Lupus and I’ve been in soo much pain. I checked the labs myself and it said I have a trace of protein and wbc. I made a apt to see a urologist on Wed. I just wanted to know what is your experience with kidney disease and is my symptoms how it starts out??? Thank you

A MyLupusTeam Member said:

I am not sure either. Don’t have kidney disease, but get uti all the time. Always did
Your urine/blood will often show the proteins and elevated wbc when you have the infection. I do know others… read more

posted 4 days ago

Do Your Love Ones Think That You Are Lazy.

Do Your Love Ones Think That You Are Lazy.

I ask that question because I think that my fiancé think that I am lazy .I can be feeling good one minute and all of a sudden I’m feeling bad hurting all over. I work everyday come home an get in the bed. I don’t think he really understands that I really be hurting and don’t feel like doing nothing. I mean nothing no sex or anything I tack my bath an get ready for the next day. I really love this man and I know he loves me. Will we ever get married me Being sick

A MyLupusTeam Member said:

I am very newly diagnosed and ironically awake after a petty argument that blew up with my fiance. I feel your frustration. I have been in chronic pain for over 10 years already from other issues… read more

posted 42 minutes ago
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