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Distilled Water And Lupus Joint Pain

Distilled Water And Lupus Joint Pain

Hi everyone,

My aunt who has MS and her husband that has Lupus say that drinking distilled water helps them with joint pain. I was wondering if anyone here has tried drinking distilled and what you experienced. Thank you, Keith

A MyLupusTeam Member said:

”The drinking of distilled water as a replacement for drinking water has been both advocated and discouraged for health reasons. Distilled water lacks… read more

posted 26 minutes ago

Has Anyone Had Psychosis From Hydroxychloriquine?

Has Anyone Had Psychosis From Hydroxychloriquine?

A MyLupusTeam Member said:

I don’t think so, unless ur taking way too much of it compared to your body weight. All things in too much can become toxic. Even really good things… read more

edited, originally posted about 2 hours ago

Is Anyone Having Hip Problems

Is Anyone Having Hip Problems

Every time I get out and walk,like n walmart , from my waist down the pain is unreal. Anyone like this?

A MyLupusTeam Member said:

Btw do u have Fibromyalgia too? Then u could experience double the swelling.

posted about 1 hour ago

Lupus Fitbit Group?

Lupus Fitbit Group?

Hi, Just wondering if anyone has a fitbit and interested in getting a group together to help motivate and challenge each other to get moving and as healthy as we can ?

A MyLupusTeam Member said:

Yeah im down too, are we implanenting diet plans as well?

posted about 16 hours ago

How Do You Explain Lupus To Children?

How Do You Explain Lupus To Children?

Question for parents of small children:
I have a 4 year old. I have recently been diagnosed with end stage renal disease, and I am now on dialysis. I do pd dialysis from home 5 days a week.,This has completely changed my life, but I try not to let it change hers. My daughter has a lot of questions about everything. I try to explain in terms she can understand, and i try to make things approchable. For example we call my catheter “cathy”. I even let her help me connect some… read more

A MyLupusTeam Member said:

I just looked it up and bought it! Thank you! We love to read! This would be a great tool to use!

posted 1 day ago

Why Have I Developed Blisters On My Bottom Lip?

Why Have I Developed Blisters On My Bottom Lip?

I’m prednisone methotrexate planquil And mepracrine, I’m constantly flared up and recently developed blisters on my bottom lip, I’m waiting to hear for new treatments from my consultant

A MyLupusTeam Member said:

U need to take folic acid when ur on methotrexate..ur dr. Should have told u that. That should help a bit. Thats a bad drug!! I finally got off that… read more

posted about 14 hours ago

Gabapentin

Gabapentin

Has anyone ever been prescribed gabapentin- I just started it yesterday

A MyLupusTeam Member said:

Hopefully ur on it short term. Long term isnt so good for u. Look it up. I was on it for abt 6 months because i was having resless leg syndrome...good… read more

posted about 13 hours ago

Anyone Have Outbreak Of Boils

Anyone Have Outbreak Of Boils

A MyLupusTeam Member said:

@A MyLupusTeam Member...thanks for the information. My PCP told me yesterday she believes that I have hidradenitis suppurativa which is probably the… read more

posted about 9 hours ago

Is Anyone Taking Imuran ( Azathioprine) Drug?

Is Anyone Taking Imuran ( Azathioprine) Drug?

Hello everyone,

I just came back from the doctor. He had me tested to see if I can take Imuran. He told me it's a more serious drug. I am wondering if anyone had any side effects for taking it? Did you got sick more? He told me it can make me more prone to infections.

Thank you in advance!!

A MyLupusTeam Member said:

Thank you for the information Neringa!! It was really helpful information.

posted 1 day ago

Who Has Had Their Brain Affected?

Who Has Had Their Brain Affected?

Only during flares, I have mood swings, vision problems, depression and so many more things. Memory problems... List goes on and on. What brain symptoms do you have? What tests did your doctors do? The only thing I've had is an MRI and its come back normal.

A MyLupusTeam Member said:

I suffered for more than 6 years with migraines with aura, loss of memory after a possible partial seizure, which I had no idea what the heck was going… read more

posted about 10 hours ago
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