Connect with others who understand.

sign up log in
About MyLupusTeam

Connect with others who understand.

sign up log in
About MyLupusTeam

Lupus

Questions + Answers

Don't see your question? ask question
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Good Morning. Do Any Of You Have A Mechanical Mitral Valve, And Developed Arterial Flutter.

Good Morning. Do Any Of You Have A Mechanical Mitral Valve, And Developed Arterial Flutter.

If so, do you take a beta blocker, and does it reduce the flutters. Thanks Holly

posted 1 day ago
A MyLupusTeam Member said:

Sorry, not me, but I am sure someone on here can help.
Good luck!

posted about 18 hours ago

Re: Benlysta

Re: Benlysta

I am seeking feedback from those taking Benlysta infusions. My first one is tomorrow. I realize there will be no "immediate response," but I would like to hear how some of you have progressed. Those of us with SLE have a wide range of symptoms and that adds to the difficulty in the diagnosis.
Thank you for your responses,
Claudia

posted 1 day ago
A MyLupusTeam Member said:

I just had my 2nd infusion of Benlysta yesterday. Apparently the first 3 are given 2 weeks apart, then I will get them once a month. I am anxious to see how well it works also. I’ve read good things… read more

posted about 1 hour ago

Wondering If Anyone Has Been Having Any Issues With Inflammation?

Wondering If Anyone Has Been Having Any Issues With Inflammation?

I've been having leg pain when I walk or stand and had so many different tests and everything comes back positive. The only thing that helps me is methylpredniosolone. I don't want t stay on steroids. I would appreciate any feedback possible.

posted 2 days ago
A MyLupusTeam Member said:

I tried reducing my cymbalta doseage. I started getting lots of nerve pain, legs, feet, arms, hands etc. I went back to my regular doseage and the symptoms have gone away. I didn't even know I had… read more

posted about 16 hours ago

Has Anyone Ever Used The Drug Methotrexate And What Were The Results?

Has Anyone Ever Used The Drug Methotrexate And What Were The Results?

posted 2 days ago
A MyLupusTeam Member said:

I started methotrexate 6 months ago, 15mg once a week. Joint swelling has greatly improved. Very noticeably.

posted about 17 hours ago

What Topical Cream Gives Immediate Joint Relief?

What Topical Cream Gives Immediate Joint Relief?

The one I use has to be applied daily, It'd be nice to find something that can ease the pain in a few hours at least. Thanks for any suggestions

posted 2 days ago
A MyLupusTeam Member said:

Is that better than the hot hemp cream?
Thank you so much for responding 😁

posted 1 day ago

I Was Diagnosed With Neuropathy A Few Months Ago. The Pain Has Progressed Rapidly. Does Anyone Have Any Home Remedies To Help? Thank You.

I Was Diagnosed With Neuropathy A Few Months Ago. The Pain Has Progressed Rapidly. Does Anyone Have Any Home Remedies To Help? Thank You.

posted 3 days ago
A MyLupusTeam Member said:

There are some creams on the market, but they would have to be applied 3-4 x's per day for a long period of time to feel any improvement. I tried them, but, it was impossible to remember to apply 4… read more

posted about 24 hours ago

How Do I Make People Understand?

How Do I Make People Understand?

I struggle. Everyday. I get up, when I feel terrible, get dressed, put a little makeup on to feel normal..only to be met by family with NO understanding of how I feel on the inside. Just because I look “somewhat “ normal on the outside, I feel terrible on the inside! I hear, “what’s wrong now?”; “ you should exercise!” , “nothing that a little fresh air won’t cure!”
Are they serious? They see me shooting methotrexate in my body everyday, would I do that for the heck of it? My mom cares… read more

edited, originally posted 3 days ago
A MyLupusTeam Member said:

I completely understand what you are saying. I get the same comments from family members, most recently one saying to me that it’s not healthy that I had stayed in bed most of the day on Monday. I… read more

posted about 1 hour ago

Any Success With Topicals To Treat Arthritis Pain And If So What Have You Found Useful?

Any Success With Topicals To Treat Arthritis Pain And If So What Have You Found Useful?

I've been trying Voltaren and a pain releiving cream with lidocaine with marginal effectiveness. What have you all found useful or have you found topicals to not be useful at all in treating joint pain?

posted 3 days ago
A MyLupusTeam Member said:

Tropicals for arthritis? I've had zero success. CBD infused gummies and edibles 25-50mg work well, but with 10-20mg THC added in, that's a miracle treatment.

posted about 17 hours ago
Already a Member? Log in