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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hearing Loss From Lupus

Hearing Loss From Lupus

posted 12 hours ago
A MyLupusTeam Member

Thank you for your answer God Bless You

just posted

How To Handle A Flare

How To Handle A Flare

I'm currently in the middle of my 3rd flare in a little over a month.. low grade fever, vomiting, fatigue, severe headaches lowered kidney function, and the constant feeling of phlegm blocking my throat. How do I get relief from these symptoms? Someone please help. My current treatment consists of prednisone, zofran, Phenergan suppositories, norco and lots of fluids my rheumatologist sucks and my primary doctor is unsure of what to do.

posted 14 hours ago
A MyLupusTeam Member

I will definitely talk to my doctor about it

posted 11 hours ago

Bp High And Low Sue Lupus

Bp High And Low Sue Lupus

Does anyone have bp high like 142/80 when your feel pain or headache? Does lupus make your bp high elevated and normal thank you all and have wonderful afternoon 🙏♥️

posted 15 hours ago
A MyLupusTeam Member

Thank you Henry doctor will not give me bp pills due to my bp was normal sometimes and I told her it’s my lupus causing the bp goes up and pain.

posted 14 hours ago

Weight Loss

Weight Loss

Is there any suggestions on how to try regain some of my weight back. I've lost ALOT in just a few months. My doctor says I'm at a healthy weight but I see the change and to me it looks bad. Any suggestions?

posted 16 hours ago
A MyLupusTeam Member

I've been taking protein drinks and bars everyday with my meals. I love to eat every thing and have gain my 40 lbs finally. It took me 4 years to gain it back. Now I look like myself and don't look… read more

posted 16 hours ago

I've Been Diagnosed As "possible Sle Lupus"

I've Been Diagnosed As "possible Sle Lupus"

Ive been put on hydroxychloroquine and steroids about 4 months ago and am starting to feel so much better. How long does it normally take for a definitive diagnosis? Also how long did it take for brain fog to go away and to be able to think straight?

posted 16 hours ago
A MyLupusTeam Member

It took me about 6 months it was a very bad time for me and my family. I still have brain fog but not all the time.

posted 15 hours ago

Lupus And Kidneys At The Beginning

Lupus And Kidneys At The Beginning

Greetings all warriors,

I know often times we become experts on the disease so I am hoping someone can help me. I am having pretty bad back pain (near spine and around my hips.) I am also having white blood cells and microalbumin in my urine (I have test strips.) I am curious to know for those of you who have had kidney issues, were you able to feel pain in your back/hips? I can not see a nephrologist until January (at the earliest so..) I have had a positive histone, ANA but not DSDNA. Any… read more

posted 16 hours ago
A MyLupusTeam Member

Yes I was getting a lot of UTIs and kidney stones. I started taking AZO everyday and been fine

posted 11 hours ago

Anyone Have SLE Lupus Without Lab Markers Being Positive But With Symptoms?

Anyone Have SLE Lupus Without Lab Markers Being Positive But With Symptoms?

having episodes of bad pain all over my body, exhaustion, fatigue and joints. had 4 episodes of pleuritis this year but lupus tests are normal except ana test and inflammatory markers during episodes. on plaquenil. tried imuran but failed due to side effects. now want to add Benlysta. anyone else have lupus like this?

posted 19 hours ago
A MyLupusTeam Member

best of luck and thank you for sharing.

posted 16 hours ago

Help, My Hair Is Falling Out. Every Time I Wash It Big Clumps Come Out.

Help, My Hair Is Falling Out. Every Time I Wash It Big Clumps Come Out.

I just recently started plaquenil again. I’ve had lupus for years but in a flare now. What do I wash my hair with? I’m using a gray hair product now. Really scared this time over hair loss.

posted 2 days ago
A MyLupusTeam Member

Black castor oil and nixion products are good

posted 11 hours ago

Does Anyone Know Of A Good Rheumatologist In The Houston Texas Area?

Does Anyone Know Of A Good Rheumatologist In The Houston Texas Area?

posted 2 days ago
A MyLupusTeam Member

I'd suggest going to Baylor Rheumatology, as university doctors tend to be much more familiar with lupus, I have found. They also tend to follow treatment guidelines and not experiment with drugs that… read more

posted 2 days ago

What Has Been Your Experience With Benlysta?

What Has Been Your Experience With Benlysta?

My Dr had prescribed Benlysta as my condition has continued to deteriorate. I was wondering if others here have or are taking it and if it helps or not. If it did help how long did you take it b4 u saw results? Anyone experience side effects and if so what were they?

posted 2 days ago
A MyLupusTeam Member

I'm supposed to get Benlysta infusions soon

posted 2 days ago
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