I discovered and confirmed my lupus diagnosis after having a huge rash on my scalp. Felt like a 2nd degree burn. Couldn't comb hair and head was on fire. At first diagnosed with discoid, after meeting my rheumy and blood work I was confirmed SLE. Scalp cleared after losing lots of hair, and the rest being in poor condition. You know the drill. With good supplements and hair growth products (not rogaine) my hair returned to it's former fullness and shine over a few months. Fast forward 5 years… read more
This isn't a new symptom just much worse than usual. It's going on a week like this and keeping me down. I really need to be able to function somewhat. I would truly appreciate some advice from others dealing with this.
Does anyone have knots under their skin? Sometimes they’re sore and sometimes they’re not. My primary care just felt of them and said she didn’t think they were anything to worry about. I have them around my ribs and in the back of my arms. Haven’t really noticed them anywhere else.
EDS is genetic, I got it from my moms side of the family and I passed it on to both my kids.l. What I thought were EDS exacerbations turned out to be lupus. Wondering if there were others with both here.
They just completed all of my ENA lab work with a positive Smith and a ridiculously high JO1 level. I havent had my follow up yet with my rheumatologist to discuss the results about the changes but has anyone else tested abnormally high for JO1 levels? What did it mean? Not too much I could find besides its connection to polymyositis.
Has anyone noticed tenderness in their breast, while taking this medication? My tenderness has been going on for over a month, sometimes so very painful!! So I was just wondering if it's just me ?
face. This blood workup (this is third one all with negative results) and it was positive for ANA and ANTI-DNA DS. Being referred to rheumotologist for another workup. Everything I have read has pointed to Lupus. My doctor just called and she just said it warranted more testing. Just wondering what other tests are there?