I am currently 7 weeks pregnant after a long struggle with infertility! I am cautiously optimistic. The baby's heart is beating and so far all is normal. My question is related to the Anti-ro anti-la antibodies. I have them and I know they can cause fetal heartblock and neonatal lupus. Of course I will be heavily monitored but I'd like to hear anyone's experience with pregnancy abd these antibodies. I know heartblock is a small chance but it's… read more
I keep reading everyone's post about how us lupies shouldn't eat fish,red meat and pork. I'm confused as to why?
My body is changing so much like literally every hour it's something different. I don't know if the hand cramps or the nausea, sharp pains in my head,swollen feet,sore heels,can't sleep at all unless I pop a pill and sores coming in on my arms and pimples and dry patches.....is it Lupus or Not please help me understand more???
Went to my rheumatologist a couple weeks ago my right knee was swollen and very bad knee pain she gave me a shot of steroids and said it shouldn't be that way due to my high dosage of steroids everyday. The shot helped for about a week and now I'm back at swollen knee and ankle with pain. She also said I shouldn't have any flares being on it either. Anybody else experience this and what did you do for it? I feel like I don't want to call her again considering she told me I shouldn't be… read more
Looking to see if there's anything out there other than nerve medicine. Thanks!
Why is it doctors think Discoid only affects the skin? And why is a positive Ana result overlooked because it's low if you have several other symptoms of sle
So as a child (i was about 9/10 at the time) i became very ill to the point i almost died, my platelets bottomed out at <200 white blood cells were through the roof, high fever and nausea that would not go away, thought it was cancer but my ana was positive, was sent to nashville to a hospital and treated after 6 monthz my ana was negative and they have since tolf me i no longer have lupus....
Since that time i have had sever… read more
EMG and blood work fine, no inflammation in muscles. Can't explain muscle weakness. Any information would be appreciated.
My husband on a side job today for a nutritionist and he was telling him I have lupus the nutrition was telling my husband that I'm not suppose to eat meat, fish, dairy. My husband told him that I stopped eating meat 5 months ago I only eat fish, he said no it's not good for us lupus patients so what can we eat. What have you all heard?
I have had this hurting itching burning and scabs on my scalp for a very long time now. I even have a big spot of baldness on the top of my head. Any advice would be appreciated cause this is driving me crazy.