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Is there anyone else that has Lupus in remission but feels the same and the doctor tells you it's the fibromyalgia? All over aches and pains. I pay for it if I overdo my day. A good day is not having to push through without a break. Moving too much is bad, resting too much is bad too .
It is so confusing.🤔
I’ve been anemic for many years. Since lupus is a shape shifter, IV iron infusions that have worked in the past have all led to anaphylaxis when given a second time. My only option now is to start blood transfusions. Have anyone had a blood transfusion with Lupus? Any reactions? Thank you for this courtesy!
I've been on it for 3 months. It has been helping certain symptoms like loss of protein, and other lupus symptoms like joint pain. They say it takes up to 6 months to see the true benefit. I have a… read more
My doc wants to switch me to Cymbalta bc it doesn’t interact with Amitriptyline (sp?) and other meds. Yet, I have been doing so well on my Effexor, I hate to try an unknown drug, especially having so many reactions to meds.
So, I was wondering if anyone could share the good, bad, and/or ugly experiences they have had with it.
Try to get in. But they don't have any openings. And my doctor is trying to help me as much as possible.. prednisone is what the rheumatologist told her to put me on until I can get in. And I am… read more
Wanting to add to my arsenal. Sometimes I literally can do nothing because of my pain issues which doesn't work as I have a doggie who needs to go out during the day.
My favorites are icy hot, cbd, turmeric, hot pad, and lidocaine patches... but im wanting some more ideas. Hopefully being more active will help but no walks for another week as bub is in his waiting period post vaccine