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Lupus & Pregnancy

Hello I’m Angela and I’ve had lupus for 13 years now. My husband and I got married this year and are looking to start a family next year since my lupus has been semi decent we don’t want to waste that opportunity. Who has had a child while having lupus? What are your thoughts and how did everything go?

tags: Lupus pregnancy 🤰

posted about 2 hours ago by A MyLupusTeam User

Steroid injection for headaches

My doc gave me a steroid injection in the occipital nerve in the back of my head. It was quite painful. I am still having a slight headache and the injection sight is sore and red. It has been a little over 24 hours since injection. Has anyone had this and if so how long before soreness and redness go away and how long before the headaches subside?

posted about 6 hours ago by A MyLupusTeam User

How do you find someone who understand lupue

I am 31 in i am a single mother to a 12 year son who i love but with me having lupus it is hard to find a man who is willing to understand my pain in how i feel at times .i just want to know how do i find someone who i can open up to

posted about 10 hours ago by A MyLupusTeam User

I feel the same way except with friends. I feel like I’ve lost so many with them not understanding. I’ve been looking to find other friends with lupus… read more

posted about 2 hours ago

Why are showers so draining for people like us?

It seems extreme. I've heard various people who feel the same. Is there an actual reason?

posted about 10 hours ago by A MyLupusTeam User
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I totally understand. It is so hard to stay showered, hair washed and shaving legs well that's way more work than it should be.

posted about 5 hours ago

Anti-dsDNA

Okay here is my question, is a positive anti-dsdna test of 17 IU/ml something I should be worried about? Long story short 2 years ago I was diagnosed with erythromelalgia, a.k.a Mitchell's disease and they say if it's treatable by aspirin then there is a chance it can be caused because you have another underlying condition that is unknown (such as lupus, or RA, or different types of blood cancers) and so mitchells disease can precede that diagnosis for a few years until whatever other disease it is… read more

posted 1 day ago by A MyLupusTeam User
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Mine as wasnt real high 20 something they retested my lab it was higher lupus i have sll systoms. So you probably have it

posted about 2 hours ago

Lupus that doesn’t really affect hair and skin?

My boyfriend is long distance so I can’t go with him to his appointments or anything, and he’s somewhat forgetful. His doctor told him the type of Lupus he had, and he forgot. Does anyone know what it could be? I really want to know more about it, as it’s very severe

posted 1 day ago by A MyLupusTeam User
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It sounds like you need your boyfriend to release you to be able to talk to his doctor so you will know what he's dealing with.

posted about 18 hours ago

Tumid Lupus but having many more symptoms than what was explained to me?

Hello all, I am pretty new here. I was recently diagnosed with tumid lupus, but am having a whole lot of other symptoms. From what was explained to me tumid lupus only affects the skin. I am experiencing extreme fatigue crazy weird pain throughout my body. Sometimes it feels as though I am can barely lift my arms and/or legs. I am not a great sleeper in general but the last few nights, I have been experiencing crazy pins and needles in my… read more

posted 1 day ago by A MyLupusTeam User
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My daughter has Systemic Lupus, and her systems are a lot like yours. You definitely need to see a rheumatologist.

posted about 10 hours ago

Weight gain from steroids

How do you respond to people who question your weight gain? A few years ago people at church thought that I was pregnant and that was while I was engaged to my husband. It was really upsetting. Some people have made insensitive comments when they saw sudden changes in my body. After awhile I got sick of explaining how I have to take a medication that causes a round abdomen and puffy face. Since I have moved to another state it hasn't been much of a problem, but I am curious to hear your… read more

posted 1 day ago by A MyLupusTeam User
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I would just tell them that it's the steroids that you have to take for your illness.

Don't be ashamed. I got up to 178 on prednisone. I looked like a… read more

posted about 17 hours ago

my first appointment is next week what will happen

Just nerves

posted 1 day ago by A MyLupusTeam User
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Y’all said it all. Bless you my sisters

posted about 15 hours ago

Effects of CBD Oil?

Hi all, I started using CBD oil a few weeks ago and had noticeable improvement in my pain, stiffness, and fatigue levels almost immediately (I would say around 80% improvement within the first few days and probably 60% improvement after that.

My recovery time after a flare and pain/fatigue levels are still better than they would've been with just Plaquenil (which doesn't seem to work as effectively as it used to for me), but I notice I'm back to having difficulty getting up and down stairs… read more

tags: CBD oil #lupus

posted 1 day ago by A MyLupusTeam User

My CDB oil arrived yesterday and I will begin using it today! When I ordered the oil, I was advised to begin with the lowest strength and then increase… read more

posted about 18 hours ago
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