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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Positive Fungitell Testing Since Sept. 2021

Positive Fungitell Testing Since Sept. 2021

Hi everyone. I was diagnosed with SLE and RA last September...after incredible edema from my calves to my toes, almost daily fevers, chills and complete and utter exhaustion daily. After a million blood tests, CAT scans, 12 prescriptions and now 7 doctors, once test can not be answered. I have a score of almost 300 on my Fungitell tests. No bacteria has been found. My infectious disease doctor has tested me for everything from lead to bat droppings..no lie. Everything has come back negative… read more

Dystonia

Dystonia

I believe I asked this before.
Anyone here who has Dystonia?

A MyLupusTeam Member said:

I have dysphonia but not dystonia.

posted about 2 hours ago

Positive ANA But No Diagnosis

Positive ANA But No Diagnosis

I received a positive ANA result in March. My AVISE test (August) came back as positive but none of the tests pointed to/identified any abnormal values or specific conditions. Feeling sort of frustrated. Anybody have any thoughts? Ya’ll rock 😘

A MyLupusTeam Member said:

When my 13 year old tested positive for ANA, childrens hospital said what Henry said 4/11 is what they look for. Since he is 13, they tested for mono to see if he had had that before (one of the… read more

posted about 2 hours ago

Celebrex For Pain

Celebrex For Pain

Anyone take it? Does it help with pain and stiffness? Pros and cons? Thanks

A MyLupusTeam Member said:

VPeacock, Hi. I was wondering if you feel the Cymbalta is helping, or is it too soon to know yet?

posted about 10 hours ago

After Covid

After Covid

Anybody else expiercing tingling sensation in hands and ESPECIALLY feet after having Covid?? No pain medication is working!!! And im in pain i can barely walk on properly drive my car!!!! 😢😢😢 what are you guys taking to relieve this pain?? Im in agony over this!!

A MyLupusTeam Member said:

I do. For about 2 years now. When I write, drive, cook, and use my cell.

posted 1 day ago

Aralen

Aralen

Can you drink alcohol with taking this med?

A MyLupusTeam Member said:

No. i wouldn't your body truly need to absorb the medication and uour liver and kidney id working hard enough to keep up with filtering toxins and your blood. It doesnt need unnecessary added… read more

posted 2 days ago

Itching Like Crazy

Itching Like Crazy

Have heen on Hydroxychlorquine since April came down with a raised rash on my arms in July and itch like crazy. Called my dr don’t think it could be the meds since I have been on the meds for more then 2 months and sll of a sudden just started itching. Anyone have any idea r suggestion.

A MyLupusTeam Member said:

Thanks Jacque, I have been taking the benadryl but how long can you continue to take it. I thought it was the HQC but dr doesn’t seem to think so since I had been on it for 2 1/2 months before the… read more

posted about 2 hours ago

Strange Leg Twitching Problems

Strange Leg Twitching Problems

Does anyone get strange leg twitching? Like an uncomfortable electrical feeling? I get it a lot of nights in bed trying to sleep. My toes curl uncontrollably and legs twitch. It’s been more bothersome lately. Just curious. I’ll ask the doc on my next visit but have had so many other problems that have taken over I haven’t mentioned it yet. Thanks everyone!

A MyLupusTeam Member said:

Yes im getting the vibration and numbness on the right side of arm and right leg as well

posted 2 days ago

Pill Shell To Put Prednisone In?

Pill Shell To Put Prednisone In?

I had a tonsills and adenoids removed when I was 5, because of this i have these little pockets in the back of my throat. Super tiny pills (like prednisone) get stuck back there and taste SO BAD when they melt. Honestly I've not had this trouble with anything other than prednisone.

I only taper prednisone occasionally so ill take 4 pills for 5 days and then it'll get less from there... so its not like I need a permanent daily solution (at least not currently, because of this issue I am so happy… read more

A MyLupusTeam Member said:

Just be careful because over usage od prednisone will lead to AVN of the hop.im dealing with it now..not fun at all

posted 2 days ago
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