I used to be very regular but now, 21days late and now on day 13...common symptom? Im hoping Planquenil helps this too. Starting it tomorrow.
I’ve notiiced patterns recently when I am flared up, my heart feels tight (I know that sounds crazy), it’s hard to breath, I have high blood pressure, I get constipated, my joints hurt, and I’m extremely fatigued. This lasts for about 4-5 day’s at a time. I was curious if anyone else experiences flares like this and if so, do you do anything to help or are you in any medications that have helped with symptoms like these? The first couple times… read more
Im looking for meal replacement protein powder that is ant-inflammatory.
I meant to write "not enough info/research"
Not to take away from the severity from those suffering from SLE but I feel like DLE is a bit overlooked.
I see research surveys and things of that nature for SLE but very little if any for DLE.
I also feel like dermatologists and rheumatologists don't seem to be as up on it as they are when it comes to SLE.
Just curious what others have experienced with this.
My rt foot gets so bad that sometimes I have a hard time walking
I just saw my eye doctor and she told me the plaquenil is causing toxicity in my eyes and if I continue to take it, I could lose my vision.
I contacted my nephrologist but he wanted me to lower the dose to 200mg twice a day, not completely stop it. I'm dlso hesitant and dont want to take that risk. Has anybody else been told their eyes can't handle the plaquenil? Is there an alternative?
I often get mouth pain, but from time to time my teeth hurt. They feel like they are loose and tender to bite on. They are not actually loose to touch them and try to wiggle them, they just feel that way when I bite down
This week my mom noticed a slight red, butterfly shaped rash on my cheek bones and asked how long I had that and indicated it kind of looks like a lupus rash. I had no idea.
A little background with me, for the past 2 years I have had on and off medical issues with seemingly no rhyme or reason nor diagnosis.
Started out with extreme fatigue and loss of cognitive capability. I saw the doctor about it and they then diagnosed me with sleep apnea....been using CPAP ever… read more
I'm single. I get a lot of men that talk to me & show interest but I don't know if I'm scaring them off because I tell them I'm terminally ill. Do you tell people ahead of time or is it better to wait until after you've met in person?
I'm an open book about my life. I've been through a lot of physical & emotional abuse since age 3. I'm lost lately. I left an 8 yr Relationship in October because he didn't want to deal with my illness.… read more