Hi everyone! I was diagnosed with Discoid Lupus after one summer of boating and constantly being outside. I had the Malar rash and fatigue and lesions.
Nothing was ever done except I was given a Discoid Lupus pamphlet and told to take care of myself while under sun.
Fast forward a decade later I’ve tested positive again ANA tests and negative for MS. I have had difficulty walking up the stairs and weird pins and needles and numbness in toes and fingers. Has anyone had… read more
All of a sudden I can feel my butterfly rash get hot on my face and I feel like I can't handle the smells of cleaners, nail polish and fbreeze without feeling sick to my stomach. Is this a lupus thing?
I had a vitiman d deficiency in May 2017, July 2017, and again now July 2018. Is this a Lupus thing?
I am experiencing ice cold sensation on the left side of my body mostly in my hand and arm. It started in my foot and now its in my hand. I feel as though I am laying on ice. I am trying to get my arm warm but I don't have a jacket here at work. Is this a symptom of lupus?
Hello, this is all very new to me. Over the past few months I have had a lot of symptoms which ensured my doctor referred me to a rheumatologist. They have diagnosed me with an "autoimmune disease within the lupus spectrum" but will not call is Lupus as we don't know yet if it has attacked my organs.
I guess when I go back in 3 months time and we have results from scans/ultrasounds they may do so. They have put me on hydroxychloroquine for the mean time.
Symptoms include: Fatigue, joint… read more
I have lupus for 16 years now and renal failure for the last 3 years. I was on dialysis for 18 months. I now have severe back pain for the last 2 weeks. Does anyone have any advice?
Hi everyone. I haven't been diagnosed with Lupus, but my ANA levels are sky rocket high. Two years ago I injured/sprained my foot--actually I don't know what I did. But I experienced extensive swelling that has yet to fully go away (it pits and gets worse when I have my period). Doctor after doctor say that there is nothing structurally wrong with the foot that would be causing this.
Recently I a chiropractor (who is now fired)… read more
I am searching for a counselor/therapist to help me cope with lupus' mental afflictions as well as other things. I don't see much about it when I do a google search or through my health insurance page. Any recommendations for Boston Area? I don't see it as an option under the provider directory.
I have migratory joint pain usually but I have had increasing pain in my left shoulder recently. It is debilitating. I can't sleep on that side or even lift things with that arm, but it's not constant. It just happens more often there than anywhere else...
Does this happen to anyone else?