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0 medium

Rogaine for hair thinning

Anyone try rogaine for women the foam or liquid drops ? I tried it and it works but I’m wondering if it causes any skin problems or water rentention even though it’s not a pill ? I read a few things online that showed it could cause water rentention but my rheumatologist said no not the topical form only pills ? Anyone experience side effects

posted about 5 hours ago
A MyLupusTeam Member said:

@A MyLupusTeam Member I did try it and it works really well .. I already had skin rashes and edema prior to starting it so I was wondering if it could… read more

posted about 1 hour ago
3 medium

Flu or flare

just curious how you guys can tell the difference between getting a flu or flaring up? Symptoms are so close to each other and I am not allowed to work if I get the flu

posted about 7 hours ago
A MyLupusTeam Member said:

I can not tell sometimes....

posted about 6 hours ago
8 medium

Daughter with positive ANA and Anti dsDNA

After 7 months I finally found a doctor to listen to me, of all things it was a pediatric gynecologist! She’s tested positive for ANA and anti dsDNA. I’m waiting for her doctor to call me with a referral. Could someone give me an idea of what a positive anti dsDNA means? (My daughte is almost 11)

posted about 8 hours ago
A MyLupusTeam Member said:

definite autoimmune disease

posted about 5 hours ago
2 medium

Has anyone on here been diagnosed with Chronic Active Epstein Barr (mono) Virus?

I wasn't feeling well so I went into the doctors for blood work and I just found out that I have active Epstein Barr (mono) for the 4th time. I read that this can happen in immune compromised individuals. Anyone else have this happen? If so, what can be done?

posted about 9 hours ago
A MyLupusTeam Member said:

I had mono twice. The past time is what ran into my lupus diagnosis. Something about the way your immune system reacts to it. Mono is a miserable thing,… read more

posted about 5 hours ago
2 medium

In process of being diagnosed...

Hi everyone. I'm new to this community and would love some feedback from any of you as I believe you would probably know way more about your disease and diagnosis than some Doctors and what I can read on the web.
Quick history ( if that is possible) I started with joint pain in my thumb joint about 6-8 months ago. Got to the point where I couldn't touch my thumb and pinky together or grab things with my hand. I went to Doctor, did U/S and xray, came back clear. So she… read more

edited, originally posted about 14 hours ago
A MyLupusTeam Member said:

@A MyLupusTeam Member : I found it in one of the studies that was published on line I believe. It was very interesting to read. I find the Doctor… read more

posted about 9 hours ago
9 medium

Has anyone been diagnosed with DLE & developed SLE later?

I have recently been diagnosed with Discoid Lupus Erythematosus, biopsy confirmed it. I had a negative ANA result but was told that some people test negative at first only to get a positive result at some later date. I've looked at the statistics but I wanted feedback from real live people versus just reading about the numbers. Have any of you been diagnosed with DLE (Discoid Lupus) and then later had it develop into SLE (Systemic Lupus)? If so what was… read more

posted about 15 hours ago
A MyLupusTeam Member said:

I have both but was diagnosed with SLE first then discoid.

posted about 10 hours ago
4 medium

Red blood cells, hemoglobin and MCHC

has anyone ever had higher levels but still in the normal range for red blood cells? and also high hemoglobin or high MCHC (mean corpuscular hemoglobin concentration) mine isn’t too too high, just barely above the normal ranges. but the thing is, i drink A LOT of water. almost a gallon a day. so when my doctor told me it was because i was dehyrated, i told her no because i drank 3 liters of water before my blood test and am never dehydrated. anyway, was just wondering if this… read more

edited, originally posted about 23 hours ago
A MyLupusTeam Member said:

Rather have higher hemoglobin then lower , lower means you can’t carry oxygen which means it’s hard to breathe , mine was at 5 once and I needed… read more

posted about 17 hours ago
9 medium

Has anyone ever had acupuncture before?

posted about 24 hours ago
A MyLupusTeam Member said:

Yes, I have tried it once.

posted about 10 hours ago
6 medium

Fainting and gastro issues

I just got diagnosed with lupus on thursday, waiting to meet my rheumatologist at the beginning of Februray. I was just curious if anyone with sle lupus has passing out episodes or gastro issues (like nausea and vomiting). I went to the mayo clinic last year and I was told i had pots syndrome and gastroparesis. Could lupus explain these symptoms or am i just super special and have three different diseases?

posted about 24 hours ago
A MyLupusTeam Member said:

FYI..... when I mentioned my gastroparesis to my rheumy he merely said he wasn’t surprised. I told him I’m considering seeing a gastroenterologist but… read more

posted about 4 hours ago
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