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What is Your “I Have Lupus” Elevator Speech?

Image credit: Martin ShovelYou can always feel it coming. Your lips hover over the rim of your glass in a polite smile as your new acquaintance chortles over the newest viral cat video. You try in vain to empty your glass and excuse yourself for...… read more >
Posted 02/16/2017
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Are you living with more than lupus?

If so, you’re not alone. One in four Americans is living with multiple chronic conditions, and among Americans aged 65 and older, as many as three out of four people have multiple chronic conditions.How do you manage? What advice do you have for...… read more >
Posted 02/05/2017

What I Want Others to Understand About Lupus

by KristieBauerChronic pain is not as common in teens and young adults, but that doesn’t mean it doesn’t exist. It’s not always something that can be seen, which makes it hard for others to understand. So here’s the rundown of what I want others...… read more >
Posted 01/29/2017
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4 Things People With Lupus Want To See In New Treatments (Infographic)

We surveyed MyLupusTeam members about what they hope to see in future lupus treatments. Answers fell largely into four categories. Members hope new treatments will reduce pain, have fewer side effects, decrease fatigue and sleeplessness, and...… read more >
Posted 12/04/2016
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Lupus and Skin Symptoms (Infographic)

Life with lupus can mean a whole lot of symptoms, including skin symptoms. We asked members to tell us about their skin symptoms. Eight in 10 members report experiencing a rash at some point. 62% have experienced the "butterfly"...… read more >
Posted 11/14/2016
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Your Answers: The Worst Lupus Advice (Infographic)

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.What did we learn? From the unconcerned ("It's not so bad") to the plain unhelpful...… read more >
Posted 11/13/2016

Managing the Emotions of Lupus

by NikkiI remember the day I was diagnosed with Lupus. It was January 3, 2013. A new year had just started. I love a new year … just the newness (is that a word?) of it all. I was the geeky kid in school who LOVED getting a new notebook for the...… read more >
Posted 10/27/2016
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The Honest Truth About Controlling Lupus, Part 2: Two Major Obstacles

Earlier we shared four of the most common lupus flare triggers discussed by members of MyLupusTeam. Now we are sharing the two most talked about obstacles to controlling lupus: drug efficacy and side effects, and changing symptoms.At MyLupusTeam,...… read more >
Posted 10/14/2016
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The Honest Truth About Controlling Lupus, Part 1: Four Common Triggers of Flares

MyLupusTeam launched in August 2014 with just 10 members in the San Francisco Bay Area. Today, MyLupusTeam has grown to more than 67,000 members, making it the largest social network in the world for those living with lupus.We believe that when...… read more >
Posted 10/07/2016
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Lupus: What People Don't See (Infographic)

There's so much more to lupus than meets the eye. Below the surface, living with lupus can mean days spent in bed, missed appointments, and alternate days when we seem "fine." We know that lupus comes with hundreds of possible combinations of...… read more >
Posted 10/03/2016
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