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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Middleburg, FL

I am having really bad swelling on my lower body. Some days I feel like you could poke a needle in me and I will deflate. Other days my calves feel so tight that they are going to break my skin apart if that makes any sense. Has anyone else experienced this?

October 15, 2015
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A MyLupusTeam Member

Yes unfortunately....... when I get the edema I am on HCTZ ( water pill) make sure to tell your MD this is happening he will need to check you heart Lupus patients are at a higher risk of heart issues. Elevate you legs when sitting and get plenty of sleep. If they are swollen when you go to bed prop them upwhen going to bed. Epson salt baths are great as well they do help with swelling. good luck warm thoughts and hugs to you

October 15, 2015
A MyLupusTeam Member

I get that, on occasion. It is painful, and some times my calves are so tight it feels like the circulation is being cutoff .

October 16, 2015
A MyLupusTeam Member

Yes, mine is from sclera derma.

October 16, 2015
A MyLupusTeam Member

OMG Yes on my legs It's very painful.

October 15, 2015

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