Can someone explain what is considered a flare? And am I to do anything about it? Meds? Doctor intervention?
I believe I am having one....pain in joints greatly increased, sore on lip, sore throat, enlarged lymph nodes in neck and axilla, migraines, & I have been having extreme lows in blood sugars and kidney stone. Theses symptoms have always come together in cycles and last about 2 weeks.....doctors could never explain.
There are several books for newly diagnosised patients: "The Lupus Book" by Daniel Wallace,M.d. and "The First Year With Lupus" by Nancy C. Hanger, if you have a chapter of Lupus Foundation of America it is possible to borrow these resources. We have a wonderful office in Nashville for the Mid Sough chapter
A flare up can happen when you are ill or stressed. It can also occur f you are in the sun to long! I flare up when I am on my menstrual cycle. A flare up means you are having a Lupus "attack." In other words.....you may feel fine for several months then all of the sudden you start having Lupus symptoms! Every one s different. You may have different symptoms each time. Some times I am fatigued only, other times I am nauseous. Some times I I have a headache and am weak. Sometimes I have sores in my mouth and nose. I also look like a meth addict at times! (sores every where). The things that cause a flare are: the sun, stress, illness, and being tired. Also, changes in hormones. Avoid the sun, take naps. and avoid stress!
sounds llike flare, you can let your rhuematologist know, some will give a burst of prednisone, if you have fever or suspect infection get into primary dr or ER and then let rhuemy know esp if started on antibiotic, especially if you are on an IV biologic, like Benlysta, or other IV meds because then you have to wait until infection is gone for about a week to get your infusion.
If things get bad, you may need prednisone. Other wise use NSAID's, such as ibuprofen.
As someone else mentioned it is different for everyone... I have little flares everyday which range from joint pain and headache to flat out exhaustion, to burning up or freezing... it's a crazy freaking illness. The bad flares last for days and sometimes I can hardly stand the pain and move only to make my way to the bathroom... so yep it is different for each of us...