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A MyLupusTeam Member asked a question 💭
Sanctuary Point
March 11, 2016
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A MyLupusTeam Member

Not itching and burning, however, I get an electric shock experience over my whole body - especially my feet. I literally jump and twitch the whole night - not great as it breaks the sleep, having to et up to take pain relief and stand on the cold tiles in the bathroom.

March 22, 2016
A MyLupusTeam Member

Hi Patricia. I feel for you so much it is absolutely shocking. I have founď out that it is called BRACHORADIAL PRURITUS please go on the web and read the article by Dr CYNTHIANA BAILÈY,Dermatologist. My loopy (thats my nick nàme for my rhy specialist ) agreed with it.

March 12, 2016
A MyLupusTeam Member

Evening Dot, I'm Sorry To Hear About This Itching & Burning Problem You're Experiencing! So Far I've Not Had That Type Of Issues, But It Seems As Though The Bones Are Still Getting Worse Even Though I've Been Taking Alendronate For Quite Some Time Now! But The Rheumatologist At The GCVAMC In Pensacola, Florida Hadn't An Answer For It, He Just Told Me That Everything Came Back From All The Tests He Had Run From The 7 Tubes Of My Blood To Be Normal! He's The Only Rheum. Dr. In The Entire SE Region Of The USA Who Specializes In Treating Patients With Lupus! He Also Informed Me That At That Time I Was Not Positive For SLE, But That That Could Change At Any Time!

March 11, 2016
A MyLupusTeam Member

I have trouble with lifting anything.

September 2, 2023
A MyLupusTeam Member

I have the terrible burning pains in my arms and legs. I can barely lift plates ans/or dishes up into my cabinet. Sometimes I wonder if I have myositis although I've had the electrical tests done on my arms and legs and it turned out all was normal.

September 1, 2023

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