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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Cellcept Reaction

A MyLupusTeam Member asked a question πŸ’­
Chicago, IL

Has anyone ever had a side affect from taking cellcept I just started taking it Thursday I have the worst headache and earache numbness on my lower lip on the right side this is the first time I have been on it I will n at the doctor n the am
Thanks Bev

March 14, 2016
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A MyLupusTeam Member

Yes, I've been taking it for some years too with no ill effects. Maybe the combination with other meds?

March 14, 2016
A MyLupusTeam Member

No I've been talk it for years. Are you taking any other medications?

March 14, 2016
A MyLupusTeam Member

Right side like the arm too?

November 6, 2020
A MyLupusTeam Member

I noticed that it gives me crazy physical anxiety but besides that nothing really.

April 25, 2016
A MyLupusTeam Member

I had headaches prior to going on cellcept. Then, about a week after starting it, I kept getting the worst migraines ever! I went to my PCP, and she put me on propanolol, to prevent the migraines. She said the cellcept was very possibly causing the worsening of the headaches, though it's fairly rare. Since starting the propanolol, I have only had 2 migraines! (And that was in July 2015) I still get very minor headaches, but not near what they had been even prior to the cellcept.

March 18, 2016

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