My latest round of blood tests includes a positive DRVVT (Dilute Russell's viper venom time). Anyone else have this and know what it means? I'm not worried but googling has left me more confused!
Yes, I have all the anti-cardiolipin/antiphopholipid antibodies very positive! I have had on microscopic clot in my mesitaric system that gave me segmented ischemic colitis in 2007. The clot was so small that it went undetected but was the only rational to segmented ischemic colitis. Since I had my kids already I didn't have to worry about miscarriages. My PTT was always very high, for this reason my vascular Doctor decided to run multiple test. Here are my last results while on Asprin only. Maybe these will help to develop some question for your Doctor. These are my recent labs. Basically they indicate higher chances of
Miscarriage, DVT, or pulmonary embolism:
Cardiolipin IgM 61 (0-11)
Cardiolipin IgG >9 (0-9)
APTT 45.3 (23 - 32)
Platlet neut positive (negative)
DRVVT 54.6 (32-46)
DRVVT ratio 1.36 (<1.21)
DRVVT 1:1 mix 47.4 (32-46)
Hex phase screen 85.3 (48-70)
Hex phase confirm 67 (45-64)
Hex phase delta 18.3 (<9)
That was why they didn't want to
Give it to me. I understood that. But they kept talking about my hypertension. I kept saying I've never had hypertension plus they couldn't grasp the fact you stop a drug that is being given to control your heart rate what do u think will happen?? Duh! The heart rate is going to go crazy. And when it gets to going so fast I start having PVC's, shortness of breath and chest pain. And they weren't even trying to treat those symptoms. They were just idiots. My dr came in next am and I'm
Getting dressed. He was going to keep me another day. I said I can get up and make it to the bathroom so send me home so I can take care of my self!
I use atenolol for high blood pressure so maybe if you had low BP that's why she wouldn't give it to you. I don't know for sure but sounds possible. I hope you get better soon.
@A MyLupusTeam Member I figured you were a nurse. Me too! I can always tell. I encourage everyone I talk with to routinely get a copy of your medical records and review them. It will open your eyes to the constant mistakes that are in the record. With all my admissions this last year some nurse wrote down I had hypertension because I'm on Atenelol. I take it for sinus tach. When I was in the hospital in July my BP was running low and the nurse wouldn't give me the Atenelol. So of course it threw me in to major sinus tach which makes me very symptomatic. I went round and round with that nurse! No regular draws for PT/PTT. Antiphopholipid negative. Subdural hemorrhage was spontaneous. I was in the hospital with bronchitis when it happens. Talk about a headache. On the pain scale 1-10. It was a 15. I was on Coumadin at the time. I also had several areas of white matter in the brain and had cerebritis. They stopped the Coumadin but then a few weeks later I developed the one in the arm from the picc line. Don't won't me on Aspirin. I'm on so many drugs now my stomach couldn't take the aspirin. I too just love anything medical so if you have something to pass along do so. Do you get the magazine "lupus Now". There was a good article on why it is so hard to get a drug to market for lupus pts. Stuff I hadn't even thought about. Well I'm off for bed. Have a good day. Sharri
@A MyLupusTeam Member I have been a nurse for a long time! One of my past times is research! Unfortunately I have caught my doctors writing (in my medical record) incorrect information! So I keep up with everything (the control freak I am)! Wish I could finish school because in 8 months I could be a nurse practitioner! Doctors don't perticually like me because I am knowledgable but have to be to get the care I deserve...they would do the same if it was their family member! As far as your Coumadin.. Post knee (or any other orthopedic) surgery have a high risk of clots! (Not usually from antibodies but the surgery its self or lack of movement (that's why they put the "air boots" (scd's) on) and I have seen many PICC lines get clots because of certain placements, no regular flushing, or infection. As far as your brain bleed, was it traumatic or spontaneous? Did you have consistent regular blood draws to check you PT and INR? < that one is a big one! Since your cadiolipin was negative, what about antiphopholipid? Have you discussed Asprin 81 mg daily (it's good for the heart too)?! I LOVE anything medical!! So if you have any other questions or thoughts just ask!!!
We never share your personal information with anyone.