Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Severe Headaches

A MyLupusTeam Member asked a question πŸ’­
Hamilton, ON

Hi everyone! Does anyone have any suggestions for medications or anything they have had good luck with for severe headaches? They are so bad they make me want to rip my hair out. I feel like I have tried everything under the sun and nothing has worked for me, it's been 1.5 years and it's becoming completely unbearable!!

June 13, 2016
β€’
View reactions
A MyLupusTeam Member

It does sound like migraines but I am not a doctor and sometimes they are hard to diagnose. I had migraines. I ended up in the ER and they found it was caused by an irregular heartbeat but migraines can be caused by many things.

June 19, 2016
A MyLupusTeam Member

Do you see lights, halos, or experience blind spots. They may be migraines.My husband has chronic migraines and it took forever to get diagnosed. We went to lots of doctors; some said tumors, other said eye problems. Then one day his head ache was particularly bad so we went to urgent care and said it was chronic migraines. The doctor prescribed him Sumatriptan and it has really helped him get his life back.

June 15, 2016
A MyLupusTeam Member

I have headaches on a daily basis. They gave me Imitrex ( it makes my Reynaud's worse), so I have been overdosing taking Motrin everyday. So, I made an appointment with the neurologist. I have heard the Botox is effective.

June 14, 2016
A MyLupusTeam Member

I get awful migraines! I've tried everything. Toprimax made me feel dumb. Imitrex did nothing. I started a journal to try to figure out triggers. Acupuncture helped a good bit. I've also heard Botox injections help. Let me know if you find something that works

June 14, 2016
A MyLupusTeam Member

Have you talked to your Dr about this. I use to get them plus the room would spin around. My Dr told me a trick. Take Hagendaz ice cream ( that ice cream stays hard and cold for a longer time) put some on a tea spoon and turn tea spoon up side down and place on roof of your mouth. Should get rid of headache . Feel better🐩🐩🐩🐩

June 13, 2016

Related content

View All

Severe Escalating Headache

A MyLupusTeam Member asked a question πŸ’­
Rustenburg, ZA

Severe Body Aches With Headache

A MyLupusTeam Member asked a question πŸ’­
Morganfield, KY

Intense Around The Clock Headaches, Full Head Especially In The Whole Face Unbelievable Pain. What Causes This And What Can You Do For It?

A MyLupusTeam Member asked a question πŸ’­
New Castle, IN

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in