What bits of "advice" do you wish people would stop telling you?

What bits of "advice" do you wish people would stop telling you?

A MyLupusTeam Member said:

1. "You don't look sick!"
2. You are too young to be that sick!
3. Oh, I know what THATS like! I have ..... (insert whatever) and I'm tired too.
4. Oh! That's like arthritis, right? Don't eat garlic or sprouts. Make sure you stay away from stress! (Like THATS an option???)
5. You should excersize more!
6. Don't eat meat!
7. Go Gluten Free
8. Have you tried osteo bi flex ??
9. Take a cat nap... you will feel better!
10. Drumroll please....
wait for it....
you should stop taking that medicine!!! Have you considered natural remedy or yoga??

posted almost 3 years ago
A MyLupusTeam Member said:

Hi everyone
Yes it's awful the comments and ignorance us luppies have to live with.
At least now we don't have to completely suffer alone - thanks to this lovely group. We can have our rant here as well as making friends and sharing other help and coping ideas from others.
Love and best health wishes to all always

posted almost 3 years ago
A MyLupusTeam Member said:

@A MyLupusTeam Member I hear ya there!! I'd definitely join you in that seminar!!! Took 7 years and 13 specialists and untold amount of money before being diagnosed with Lupus, Sjogrens, Fibromyalgia, Raynauds Disease. I learned doctors don't actually know everything!! ~This Prim Nanny~

posted almost 3 years ago
A MyLupusTeam Member said:

@ @A MyLupusTeam Member, Pamela, this prim nanny & Katherina ...l live in Africa so l take what pple say & ppty in the box with what Europeans , Americans believe about Africa that we all ride hippos, live in mud huts, uneducated no electricity & alot of other foolishness. . Whate hurts me the most arecent things my parents say my dad asked if some how the Dr can transfer tthe unusual to him or my mum offering her organs from her heart to blood to heal me, my folks are educated people, have done the research but as a parent myself it breaks my heart knowing all they want is to save my life, my hubby tries soooo hard from bubble baths to sitting with me in the dark holding me while I cry out in pain l cover my mouth so my kids don't hear the screams, to watching Flintones with me.. yyes he comes up with crazy ideas on what foods l eat or how he stops pple from visiting if they're sick something as little as a cold, butility after talking to him l realised his afraid of life without me we have been together 17yrs, done everything together, planned each step from kids to retirement , kids r 15 & 11 ask scary questions & l try to be as honest as l can ,THOSE are the pple l worry about, that hurts me 'cause they love me everyone honestly can take a flying leap... l suggest we concentrate on the love than the negative, remember even those who love say the dumbest things every it's out of desperation to save sometimes go with the flow hey if they believe pineapple juice hey keep it coming it's just love

posted almost 3 years ago
A MyLupusTeam Member said:

You don't look sick, maybe if you eat better and don't stress. I hate when my own family can't understand how serious LUPUS can be. They see me moving doing things but they don't get that I am still in pain and just hiding it.

posted almost 3 years ago
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