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A MyLupusTeam Member asked a question 💭
Monroe, OH

Has anybody had problems from echinacea, cats claw, or melatonin? I saw my rheumatologist today, and she said that lupies who take those things generally get flares from them. I've never used it the other two, but I get terrible headaches from melatonin, but that was before I started getting flares.

December 13, 2016
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A MyLupusTeam Member

The above info is from John Hopkins Lhttps://www.hopkinslupus.org/lupus-info/lifesty... Center .On a good note Cats Claw is supposed to be OK!!! Here's the thread:http://livingwithoutlupus.blogspot.com/2015/02/...
I hope this helps @A MyLupusTeam Member Love you
P.S. It does lower the effect of Cortisone though.

December 13, 2016 (edited)
A MyLupusTeam Member

I have always been told not to take echinacea, due to risk of flares.

December 13, 2016
A MyLupusTeam Member

Melatonin give me diarrhea, terribly. Also a headache when I wake up. Thanks for the info on pineapple.

December 13, 2016
A MyLupusTeam Member

People with SLE Lupus are not supposed to take Melatonin. I did read a book on that because I had thoght about taking it. So for us Lupie's it's a "no no".
Melatonin is a hormone secreted by the pineal gland in your brain that regulates other hormones in the body that control how your body reacts to daily patterns of light and dark. Melatonin release is suppressed during the light hours of the day and stimulated by dark, helping you stick to patterns of nighttime sleep and daytime wakefulness. As a result, melatonin is often used as a sleep aid over other medications. Melatonin and melatonin-containing supplements should be avoided in people with lupus and other autoimmune disorders because they may stimulate the immune system. In addition, people with these conditions should also avoid the prescription sleep aid Rozerem (ramelteon), because it mimics melatonin in the body. It is important that you understand the necessity of avoiding both melatonin and Rozerem, since sleep aids are often used to help people with fibromylagia and other conditions to attain normal sleep patterns. In general, be sure that you speak with your physician before taking any new medications or supplements.Echinacea is often used as a dietary supplement to boost the immune system against colds and other illnesses. However, because Echinacea boosts your immune system, it may cause flares in people with autoimmune diseases such as lupus. In fact, Echinacea supplements sold in Europe bear warning labels that advise against use by people with autoimmune diseases. As a result, people with lupus and other autoimmune diseases should avoid these supplements. In general, it is important that you speak with your physician before taking any new medications or supplements.

December 13, 2016
A MyLupusTeam Member

I discovered issues with melatonin on my own. I wish my doc was better and told me about it before i had a major flare by eating a can of pineapples - which is the major source of melatonin in food

December 13, 2016

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