I'm sorry your baby is dealing with this crazy autoimmune maze. I have mixed connective tissue disorder,its sumuliar to lupus, raynauds is apart if the disorder as well. Most likely lupus will be added to the mix,getting her on the right meds to help with the symptoms and being there for her is the best thing you can do for her🙏🙏🙏💜💜💜

Best thing to do is go to the Mayo Clinic lupus site or the John Hopkins lupus site as they have a more detailed information. I have it and scleroderma, raynuads and SLE Lupus.

What is mixed connective tissue disorders? I'm having issues with my tendons. I had a full rupture rotator cuff, had surgery in October, was doing all the PT and still in pain. Did another MRI in December and Bam! My rotator cuff is fully ruptured again! it complete came undone. There were a couple of anchors and a titanium screw holding it down. This surgery make 4 on the left shoulder and 3 on the right. My orthopedic doctor says that it can be the Lupus affecting my tissue :( My body is literally falling apart. Has this been going on with anyone else?

MCD has its own society I believe it’s based in Washington DC.

My thoughts are with you and your child. I am 40 and struggling with my diagnosis.