The antinuclear antibody (ANA) test is commonly used to look for autoantibodies that attack components of your cells’ nucleus, or “command” center, triggering autoimmune disorders like lupus. 95% of people with lupus test positive for ANA, but a number of other, non-lupus causes can trigger a positive ANA, including infections and other autoimmune diseases. The ANA test simply provides another clue for making an accurate diagnosis.
For patients with a positive ANA, more tests are usually… read more
@A MyLupusTeam Member You won’t always have a positive ANA but that doesn’t mean that you don’t have lupus. Remember that Doctors use these supplemental tests in conjunction with a person’s clinical history to help diagnose or rule out other autoimmune disorders.
@A MyLupusTeam Member, I have learned so much in the last few months about lupus, other autoimmune diseases like IgG4. When the doctors found the 11 lung nodules, pelvic mass, and lymph node problems, they biopsied after a PET scan I had. The scan showed the mass and 1 of the lung nodules "lit up" for possible cancer. The biopsies did not show cancer, but showed on a cellular level a rare Immunoglobulin G4 systemic autoimmune disease. My blood tests and other symptoms show positive for lupus. To them, it seems as though it's both, lupus and an immunoglobulin (IgG4) disease. The disease affects my lungs and lymph nodes.
Since IgG4 is recently found autoimmune disease, they don't know how to treat it. So the doctors are giving me the Cellcept/Mycophenolate Mofetil to treat the lupus, IgG4, and if it helps the fibro...great. My issue is now they don't know what to give me for the flu, other than telling me to stop taking the Cellcept (immune suppressant). Meanwhile, I'm terrified this flu will have a deadly effect on me since, my immune system is compromised. I'm trying old fashion remedies to help.
Hoping Mayo Clinic will be better.
@A MyLupusTeam Member, Christ Hospital in Oak Lawn was the hospital I had been going to. I really liked the doctors and staff. It was the pulmonologist, thoracic physician, and pathologist from Christ who suggested I either go to Mayo Clinic, Cleveland Clinic, or the University of Chicago for further research on my main issue, IgG4 systemic autoimmune disease. I chose a pulmonologist at U of C who tested my blood. It came back positive for ANA, Anti-RNP autobodies, C-reactive protein, ESR westergren...etc. Of course, I was referred to a Rheumy. The rheumy's main interest and inexperience is not the lupus, but my "rare" disease...IgG4 disease. Apparently it is fairly new, within the last 5-10 years and they really don't know how to treat it. I have not been satisified with their response, especially because I have the flu. The Cellcept/immunosuppressant scares me in light of the deadly flu strain.
I miraculously got an appointment at the Mayo Clinic! I am hoping for some kind of answer or direction with them.
@A MyLupusTeam Member I know right! Hey, maybe Lupus Awareness is finally catching up with medical research to where it won’t be a guessing game.
I do drink Pedialyte over ice along with my other fluids throughout the day. I like the grape flavor over ice. I have trouble with my electrolytes but they do not know why. I have a cup that keeps drinks cold for 24 hours and I have it with me all the time. It is metal. I bought it off of Amazon. I take it with me even with when I go away from the house. My mouth is always dry because of my lupus and also do to a lot of my medications. I always have it on my night stand all night long as I get awake to get a drink many times during the night.