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Has Anyone Had Bald Spots On Their Scalps From Lupus? If So Please Tell Me It Got Better😣
A MyLupusTeam Member asked a question 💭
posted February 19, 2018
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A MyLupusTeam Member

Hve u tried hair treatments? There's many different product's out here tht we're, Black ppl are using tht actually does hlp with regrowth. I knw ur prob thinking bcuz ur White & its not if ur normal suave, dove or other commercialized hair product's tht mainly directed twords caucasian women. But...please chkout & they hve a hair oil drops in 2diff strengths & they actually do work. Then u can chkout another website of another hair growth oil drops tht works There's also a whole lotta natural hair growth recipe's tht also work's. Im dealing with my hair thinning on my side's, some folks clls them "baby hairs". Using the kaleidoscope hair oil drops on the website actually has been working. Im not sure if the costs are wht u are or arent used to paying, but i might think its a little pricey, but it work's. U can go on YouTube on search hair growth natural recipe's. If u do or dont choose to use any of my suggestions, please keep me updated & if u hve any questions, im here. Take care & God Bless 🤗

posted June 15, 2020
A MyLupusTeam Member

Yes, as long as there is no scarring on the scalp - I use the following products and I can see growth in the areas that was balding and thinning:
Argan Oil Shampoo (by Art Naturals) for dry, damaged and fragile hair (this product stops breakage)
Argan Oil Conditioner (by Art Naturals) Hair Growth Treatment
JustNutritive - loss and thin black hair treatment (I believe this company has a product for white women) - use once a week
JustNutritive - Protein & Vitamin Hair Treatment (use once a week)
JustNutritive - cream Scalp Spot for bold spots (use daily)

I hope this helps!

posted June 29, 2020
A MyLupusTeam Member

Hello butterfly, well I had issues with my hair which was I had blister in my scalp they pull my hair out got tired of it wouldn't grow back so I had to cut it all off got tired of wigs / quickweaves so now this is the new me...

posted May 25, 2020
A MyLupusTeam Member

I thought I was the only one!! Doctors poo-pooed me!! I took someone from here's advice about men's Rogaine and it SEEMS to be helping or its just timing...

posted June 29, 2020
A MyLupusTeam Member

Around the age of 9 I developed a rash on my nose near the corners of my eyes. My mom took me to multiple dermatologist's in our area, however not one could give me any answers. Then at age 17 I was diagnosed with Discoid Lupus and told to stay out of the sun and wear a high SPF sunscreen always when leaving the house. By age 23 I had become very sick. I went to The Lupus center of Excellence in Pittsburgh, PA part of the University of Pittsburgh. It didn't take them long to tell me that I in fact was misdiagnosed, I had Lupus SLE and it was taking a toll on my body. I started a regimen of Plaquenil and Imuran as well as 20 mg of steroids a day to get the flare under control. After 6 long years of steroids i was finally able to get off them. I suffered hair loss at age 26, so much hair loss that I was nearly bald on the right side of my head. I bought expensive Niacin shampoo, conditioner and foam topical treatment. Nothing worked and I finally just gave up. I tried a wig but it didn't feel comfortable and I decided to just cut my hair as short as possible and own it! I see a Rhumotologist and my doctor was retiring so I was set up with another doctor there. After my first visit with the new doctor as well as bloodwork, I was told my B12 levels were extremely low. So low that it is normally only seen in people that live in countries where they dont get enough meat. Apparently my body was not able to absorb the B12 from the food I ate because of a medicine I was on for the Lupus. Once I started giving myself injections once a month, my hair grew back and hasn't fallen out since! Have your B12 levels checked, and I hope this helps someone!

posted November 5, 2019

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