Memory loss

Memory loss

My question is about memory issues. I hear people talk all the time about memory fog but I sometimes feel like that is not accurate for what I am experiencing. I am forgetting simple things like spelling words correctly, finding the right words to make sentences, forgetting names and faces of people I should know and this is the small stuff. I have laughed it off from time to time. I went to eat with my co workers and when the waitress brought our food out I forgot what I ordered! I luckily because… read more

A MyLupusTeam Member said:

I have brain fog and memory loss. I deal with it by keeping stick notes on my counter top, a lot of them. It is now my short term memory. If I do not see something I do not remember it. If I make a grocery list, I print it so I can read it as well as put my coupons with it so I will not forget them. It is frustrating to not be able to remember things. I find I do better when I do not try to be the multi-tasked a type personality physical person I used to be. My mind still goes 100 mph however it jumps all over the place not in order. I have to get lots of rest and sleep to have less brain fog. I have to set my priorities each day and get what absolutely has to be done in one day each day, not what I used to feel HAD to be done each day. I used to do more in a day than I can now do in week. It is a different mind set now. I used to fight it but it made it worse. I was diagnosed in 1984. I have known I have been sick since 4 or 5 when I got sick when I was in the sun working in our huge vegetable gardens. I got worse at age 14 when I got whooping cough even though I had all my vaccines and shots when I was little. Ever since I have been sick. I had 8 ischemic strokes since turning 50 right after I had my gall bladder out which had to be removed since it was badly diseased. The brain fog along with the Lupus SLE, fibromyalgia, Raynauds, CREST, Mixed Connective Tissue Disease, RA, Peripheral Neuropathy, Antiphospholipid Factor, Mitral Valve Prolapse etc. all takes it toll too. Brain fog is bad because it is not something you can see and people think you just need to get your act together and go on like you used to do before all this happened. They think because you "look good" you should feel good and carry on because you "seem to be in good health according to your looks". Just get with the program! I hear that a lot. You just need to get back into your normal rhythm they say! They do not have any idea how exhausted I am and how I wake up more tired than when I go to bed. They do not "see" how I feel. They do not want to hear I do not feel up to doing this or doing that because I used to run around as if I had unlimited energy which I wish I still did, but it is no longer that way. They want me to suit what they want me to do as they are used to me just taking on so much as I always had 100 percent at every place I was employed and now I cannot even work. They think because they see the same person that I am the same person. But I am not. They do not want to understand no matter how you try to explain brain fog and all that goes with it.

posted over 1 year ago
A MyLupusTeam Member said:

If you're taking any kind of prescription meds. please check with your pharmacist before taking any supplement. They can cause very serious drug interactions. I'm a nurse and my daughter is a pharmacist.. Supplements are not regulated by the FDA and therefore are not consistent. They may not always have the same amount of a certain ingredient or they may add something. The labels, however always stay the same. You just can't tell. They're not all bad, but please check first. The simplest over the counter meds. can interfere with you prescriptions. I say ask your pharmacist because they know a lot more about meds. than doctors. Every good doctor has a particular pharmacist that they call often to check these types of things out. They do it in their office so the patient has no idea. I worked in doctors offices for 14 years, so I know all their secrets. LOL

posted over 1 year ago
A MyLupusTeam Member said:

Ha e you tried Cannabis? Yeah I know, what a question. It helps me with brain fog and pain.

posted over 1 year ago
A MyLupusTeam Member said:

I have found a connective supplement that helps me tremendously. My memory is still not perfect, just 2 days ago, instead of the word ceiling or roof, all I could come up with was "lid " and then decrib the "Thing that covers us when we aren't outside." 🙄😄 I was able to laugh at this because in a round about way, I still managed to express myself even though it wasn't eloquent. Sometimes I've let myself run out of my supplement and within 3 days, the memory issues worsen. I forgot the name of my dear friend of 34 years. She was in my wedding party!
I'll be midsentance and just stop... almost always follows up with "I don't know." Then, I just stop talking and spend an enormous amount of time and energy fight ing with my brain and trying to get a thought that makes sense. Often, I would think one thing but the words I say are totally different. Fatigue or "Overdoing it." Stress certainly does make it worse, whether it's just fighting internally with myself to focus, or physical stress from doing too much. So, now I strive not to run out of ,as I call it, "Litle miracle"...because if I do, I forget about the supplement as well! LOL My sweet husband is so patient and will talk me through my confused vocabulary in order to show that he is listening and understands me. He will also kindly ask if I have taken my "Brain pill. He can always tell when I've been without it a few days. "
There is HELP out there even for the chronic pain. Best, Heather Hargrove.

posted over 1 year ago
A MyLupusTeam Member said:

I feel like I have dementia.... I say the wrong words while I am speaking and forget words. I even forget what I did just the day before. And when I am trying to remember something, it's like my brain has a 5 second delay to remember.... I'm like, OK brain, any day now!

posted over 1 year ago
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