Does any one have recommendations or advice on what to do when your Lupus starts interfering with working? I’m getting to the point that I am in too much pain/fatigued to work(I’m a veterinary technician). Do any of you work from home or have part time jobs?
I was Dx with SLE and crippling RA in my hands. I am a Social Worker and my job requires A LOT of typing and documenting. My hands are curved and my fingers will not spread out. I provided a prescription to my HR and what I needed to do my job. To meet ADA standards they paid $400 for dictation software! This is considered reasonable accommodations according to ADA.
By law, employers can't assume, We as employees must request what we need.
I guess I am valuable to invest in b/c I have treatment appts 3 times a month and a Dr appt at least once a month.
I Praise God for HIS grace and faithfulness.
I trust Him💜
I just posted this question ...I am beginning to suffer from serious brain fog, extreme fatigue, on top of increasing joint & muscle pain. I do not have a support system to fall back on if I am unable to work and lack sufficient savings to stay afloat. I am a solo parent so I HAVE to work. I am at a loss and have nowhere to turn. :(
Yes... be honest.
At my worst I had to phone in just hours before I was to start work and say that I just couldn't male it... then crawled back into bed. And yes I felt horrible and guilty that I was letting my colleagues down... BUT... yes there is a BUT... but was very sick and on the days I did go in they would see me struggle and knew I was not well... especially when my speech was slurred and it was taking me twice as long to do my work... On good days I was great, on bad days I was absent.
I was a nurse assistance worked at my job for 10 years, I was in pains all the time ,the docter had to take me out because I had a blood clot in my lungs.been out of work for awhile. I do want to go back to work but the doctor doing think it's a good Idea. With God help I know one day I will.
Keep a log of missed days let your Rheumatologist know, I was told to stop working shortly after diagnos and I’m on disability; but I went from full time to part time against dr advice. I did a video on my disability process on YouTube
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