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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Boston, MA

Anyone have any tips on how to stop or reduce hairloss? I feel as if it just doesn’t stop falling out. It has become so thin. I had to cut it pretty short back in February because so much hair had fallen out- it became uneven at the bottoms. My hair still has not grown back and it keeps falling out! I’ve always had long hair, so this has effected me tremendously.

As a side note, I do not have alopecia.

August 7, 2018
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A MyLupusTeam Member

I experienced this as well for several months. I trimmed my ends too. I started taking Biotin and massaging my scalp (almost daily). Also, I left my hair alone for some time, keeping it in a bun and not do any major grooming, like combing or brushing from root to tip. Id lose so much hair. Now it has gotten better, I used to just sweep my fingers along my strands and hair would come out. Now my shedding is more normal. I think the medicine switches the growth cycle of your hair cells from the growth phase to the rest phase. Most of your strands should be in the growth phase and only a small percentage in the rest phase (these are the strands we shed) the medicine reverses the abundance of those phases and we shed more hair.

August 8, 2018
A MyLupusTeam Member

My Rheum prescribed a high dose Folic Acid (I get it from the pharmacist) taken every day it is supposed to help with hair loss and nausea. She said there is another B vitamin (also RX strengh ) that she can prescribe also- I cant remember which one it is-ask your Rheumy:) Goid Luck!

August 8, 2018
A MyLupusTeam Member

Try eating better! My hair was falling out. I started eating better, read my story. It’s making a difference. God bless you!

August 7, 2018
A MyLupusTeam Member

Praying for you

August 7, 2018
A MyLupusTeam Member

Le pregunte a mi amiga quedo hace tiempo de decirme pero no lo hizo, pero se lo hago saber en cuánto me lo diga.

August 7, 2018

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