My ANA came back positive. But my lupus one came back negative. I still got diagnosed with lupus because i had 4+ symptoms. They can also go off of that. It sounds like you are headed in the right direction. Its very frustrating waitint to get in to see a rheumatologist but believe me, itll be worth it. I hope you get to feeling better soon

Reading these heartbreaking stories is really making me mad. It should not take the medical field so so long to get answers or how can they not listen to people when there are so many of us with just about all the same issues?
It is stressful enough living with this and often times a over whelming felling of being alone in this crazy battle.
I am going tomorrow hopefully to start a treatment plan after a nightmare of a year with very little help.
I feel your frustration pain and all the gamut of feelings that comes with not knowing.
I pray you find just the right team to help you. Never stop fighting . for your right to be treated.
This is just insane how hard we have to push to get help.!!!!
Sending hugs

It sounds like U posted this for me I am currently feeling the exact same right now I do have the butterflies and the hand rash body rashes and hives My hair is thinning I’m now on iron pills due to anemia now on my third antibiotic for infections I get all kinds of infections all the time Sudden weight loss issues with pressure on my lower part of my head going into my shoulders and spine I’m diabetic muscles inflamed and painful hips and mid section high wbc burning lips/mouth depression and anxiety carpal tunnel heart palpitations feeling as if I can’t catch a breath chronic fatigue and exhaustion this is most of what I been going through for years on a daily basis one of the symptoms or more and others that will surface as I continue to research on my own I continue to find multiple things that I have experienced that many others that have been diagnosed with lupus say they have had the same issues waiting to hear back from my doctor for my test results from Wednesday and I put it all together just from researching on my own so I know exactly how you feel i have became obsessed with researching because all the stuff I’ve been dealing with over the years that I was looked at crazy or baffled for people with lupus have the same things happen so im not dumb after all these years smdh picture below shows how my cheeks look on a daily since birth and I’m goin to be 44 in February

Yes, I have some of the same symptoms. I also have ankylosing Spondylitis

I have Sjorens it is really strange