I have Lupus since I was 12 years old , and at 17 years of age thats when I got worse I couldn't eat I could not move my arms normal eggs went to a doctor doctor check me out I had a high grade fever an ace bands on my arms and my legs that my mom would. Put bengade this doctor examined me and had the nerve to tell me it was nothing wrong with me whatever I needed to do was to go see a psychiatrist because you was all in my mind and here I am burning with high grade fever can't hardly breathe or eat food and this fact is telling me that I'm crazy to go see a psychiatrist that same night I started getting chest pains right down through my left arm my parents took me to the ER different hospital there's a doctor who examined me every time they touch me I would scream because of the pain on my body they told my parents that I had an infection in my urine I had pericarditis and my heart and also on my lungs doctors told my parents to go make arrangements to bury me because I was not going to survive I was admitted I could not be touched so they would do was give me bath with alcohol and ice just to try and bring the fever down every test I could find they did nobody know what I had just she's going to die I was 17 then they called for special doctors from the CDC they came get all sorts of tests on me spinal taps what is finally they said we know what you have they told me that I had S.L.E brother where they started giving me prednisone 150mg intravenously I spent six months in the hospital when I came home I was taking prednisone and other medications I gained so much weight that I was devastated because when I looked in the mirror this was not me I went in the hospital weighing 125 lb and I left the hospital weighing 250 lb I have this battle every single day if this damn disease it affected my heart I've had a quadruple bypass infected my kidneys in the kidney transplant in my eyes I have a cornea transplant also with medication with my bones I had to have knee Replacements both legs and a hip replacement my kidney function was doing a little bit better but then after I had to quadruple bypass I got worse I ended up and dialysis put 12 years sitting in a chair for 3 and 1/2 hours it was devastating I would cry in the chair because I would see how sick people were is sometimes people even passed away right there in a chair and I would think what it is it going to be my day because according to the doctor that diagnosed me told me I would never make it into my 25th birthday and I will never have children I simply told you who are you you're just a doctor you're not God and I.67 going on 68 on 9/25

I have CKD stage 3 was diagnosed back in August and also have high protein in urine. My issue isif one is good the other is bad. Started with 60mg of prednisone down to 35mg and other medication. Just praying these recent labs I took come out good. Don't want to go on a more radical treatment which according to my rheumatologist is like getting chemo. Thinking positive thoughts.

How did they diagnos your pulmonary and brain involvment

I have heart problems, lung problems, kidney, and liver as well as some problems associated with my brain. Its all from this nasty disease called Lupus they really need to find a cure

I had kidneys involved in 2014 with to much protein in them.
They did a biopsy to say that I had lupus. I was put on mycophenalate to help clear up the protein in my kidneys.
In 2016 I was taken off the mycophenalate . My kidneys
got better.