Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who Else Has Painful Foot Neuropathy From The Lupus?

A MyLupusTeam Member asked a question 💭
Moreno Valley, CA

What medication do you take? Does the medication stop the foot neuropathy from further damage?
I’ve been given plaquenil, Gabapentin, and Cymbalta. Any info is so much appreciated.

November 24, 2018
View reactions
A MyLupusTeam Member

Hi Mama5.
Interestingly enough, I have essential tremor too. I suffer from the Raynaud’s phenomenon too. My entire life, I’ve been a shaker. 🤪 I wonder if we are deficient in amino acids or certain nutrients that causes some of our issues. I found a place that I’m getting all of my amino acids, vitamin, and hormone levels checked. I’d like to supplement where my body is lacking if possible.
Thank you for your input. I appreciate it. Hope your day is beautiful!

November 26, 2018 (edited)
A MyLupusTeam Member

Yes, I've had peripheral neuropathy for several years secondary to Lupus. I take 200 mg Gabapentin & it controls my pain.
Some patients may require a higher dose.
FYI: Peripheral Neuropathy can have other etiologies, (causes). Please see a Neurologist to make sure you have the correct diagnosis & if so, it is lupus related & not endocrine, or some other underlying cause.

November 25, 2018
A MyLupusTeam Member

I take Amitriptyline with Gabapentin. I still have break through pain, going to talk with doctor about it. Lyrica worked great for me, but insurance refuses to buy.

Praying for you

November 24, 2018
A MyLupusTeam Member

I have peripheral neuropathy in feet, legs, hands and arms. I take 600mg x 3 a day. I am also on plaquenil. Still have the pain, especially behind knees.

November 28, 2018
A MyLupusTeam Member

I have neuropathy in my feet also and take gabapentin and plaquenil, but it does not seem to help. Let me know if you have any luck. with other meds. I also have Raynauds.

November 27, 2018

Related content

View All

Always Ill

A MyLupusTeam Member asked a question 💭
Newquay, UK

Has Anyone Else Found Difficulty Trying To Conceive? Me And My Fiancé Have Been Trying For A Year And It Feels Hopeless :/

A MyLupusTeam Member asked a question 💭
Memphis, TN

Pregnant

A MyLupusTeam Member asked a question 💭
Paton, IA