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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Over Sensitivity And Severe Pain

A MyLupusTeam Member asked a question 💭
Hulbert, OK

Does anyone have any over sensitivity and severe pain on scalp and neck? It almost feels like when you have a foot or hand that asleep. Like pins and needles but so bad that it beings me to tears. I cant stand to brush my hair or hardly lay my head down. It has now started to go into my neck. Any suggestions would be greatly appreciated!!

December 30, 2018
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A MyLupusTeam Member

I have this too and it's so uncomfortable. Mine feels like I'm wearing a wool sweater but it's on my face and scalp too. I'm also afraid it's getting worse. I have RA and have been on many biologics. I often wonder if the medications are the reason or the disease. My allergist suggest taking Zantac 150mg with an antihistamine, it does help.

December 31, 2018
A MyLupusTeam Member

That sounds more like fibromyalgia. Lyrica and Cymbalta help me a ton.

December 30, 2018
A MyLupusTeam Member

YES! I get this! Especially on my scalp, neck, and shoulders. It isn’t so much a tingly pins and needles for me it’s just a severe pain/ sensitivity that I can sometimes not touch my scalp or brush my hair! Sometimes I wake up and my arms/hips/knees feel bruised to the touch but no signs of bruising either 🤷🏼‍♀️

January 10, 2019
A MyLupusTeam Member

I was diagnosed with lupus sleep in 2012, and at first the lupus took my hair out around the edges, then it started thinning in the top, so last year I started taking some Biotin vitamins, it's for hair,skin,nails, and it can also help with your immune system, I take one 10,000 milligram capsule daily with food, and my hair is getting thicker, my edges are still a little thin, but it was almost bald. Now a couple of years ago I started getting sores in my head that itch really bad, and sore to touch, so my rheumatoid doctor had to prescribe some type of shampoo, and a solution and topical medication with a steroid, which can cause your hair to come out, so I don't use it unless it gets really bad. I use some benadryl cream and I take some orally and it helps. I hope this information helps. I pray God will give you strength to go through this, because it's not easy, but with God we can do all things through Him who strengthens us, our strength comes from Him. God bless.

January 2, 2019
A MyLupusTeam Member

hi my name is Patty Dunn on my hubbies site here....my email is [[email: (Email address can only be seen by the question and answer creators) i have had severe scalp pain for two and half years... I have been on lyrica and gabapentin 300mg 6x per day cant get off the couch im so dizzy and nauseated so....I cut off all my hair but not too short.as you cant push on the hair follicle.....i bought 3 soft slochy toques which i wear all day inside as it keeps my hair still..i sleep with them as well and boy if it slips off i feel like I am being tazered on my scalp...seen neauologist and dermatologist who cant do anything for me.....so I got a percription for a wig which was covered by my health insurance.....I never wanted to wear wigs but it allows me to go outside and enjoy life....it also stops my pain as long as the hair isnt moving.....i still get itch or feels something crawling on my head and i just tap the scalp as itching it causes severe pain.....headcovers unlimited is wear i purchased my hats....huge variety....I dont wish it on anyone and I am so sorry you have this....

January 2, 2019 (edited)

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