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Hi All, it's been a little while since I've been on here. I'm sure there are posts about this somewhere but I can't seem to find them.
I take only 200mg of hydroxychloroquine daily (supposed to up to 300 next refill). For the past few weeks I've been getting these new real sharp/pressure like pains behind either eye on and off. I realize the risk of retinal damage is about 1 in 5,000 for those on high dosages for years, but being paranoid, I thought I'd better be safe than sorry and I just… read more
That’s always the million dollar question with autoimmune disease, a bit frustrating isn’t it !?
Is it this or is it that, what was the cause. It seems like there’s a very strong correlation between you stopping the meds and having a flare, I believe with autoimmune disease the flare can happen that quickly, however you are correct it would take quite a while for all of the plaqunil to exit your system, this makes restarting plaque when L much better than initially starting it. However, with a sudden absence of the drug you’re a cute high blood levels from the daily pills so to speak do drop immediately. There are many studies online, and some really great studies that were done in Europe on plaqunil. It is also the drug of choice for auto immune throughout Europe. They are very large studies and they basically show that when people stop the drug their future incidence of severe complications from auto immune disease are quite increased. I read these studies because I wanted to stop my plaqunil and I was convinced to continue. The incidence of retinal toxicity is extremely rare, but however I do see your ophthalmologist as soon as possible for a dilated eye exam and a visual field test. From what I know and what my doctors told me, I would have great qualms about going up to 300, sometimes this is a short term initial dose, but I’ve never heard of it being a long term or permanent dose. Something to discuss with your doctor! Best of luck to you and most importantly I hope you’re through this flare and feeling better soon. God bless you always 💗🌺🥰🙏🏼❤️
Stopping Plaquenil (hydroxychloroquine) abruptly is generally not recommended. Here are some key points from the knowledge base:
- Risk of Lupus Flares: Stopping hydroxychloroquine suddenly can increase the risk of lupus flares. One study found that those who stopped taking the medication were 61% more likely to experience a Show Full Answer
Please see your doctor before you take yourself, I was on Plaquenil for years, I had to be winged off 200 one day 100 the other day then went off. Please be careful. Your in my prayers.
My eyes have become for sensitive to light after a few months on Plaquenil. They burn like all hell 🔥👀🦇
Weird I have been on this a month and my eyes hurt sooo bad! It almost feels like a sinus infection. Wonder if it could be these meds for me as well. The headaches too every day.😑
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