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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hair Loss From Sle Lupus

A MyLupusTeam Member asked a question πŸ’­
Dayton, OH

Hey - I have recently been diagonsed with SLE and am now taking plaquinel and predisone (started four days ago). I have been losing a lot of hair since June, should this stop soon? Any special hair products anyone uses? The photo is what I caught in the shower today.

October 13, 2019 (edited)
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A MyLupusTeam Member

For about 2 months, my drain looked like that everytime I took a shower. Very scary and I had very little hair by the time it stopped. It stopped falling out by November 2018 but it didn't start growing back until February 2019. My hair is a little past my ears now but there's still more hair growing back because I have tiny hairs sticking up on the top of my head. I use biotin/collagen oil and shampoo by OGX. I brush with a wide tooth comb everyday

October 15, 2019
A MyLupusTeam Member

I lost half my hair , broke off all over, with Plaquenil lots has grown back since March! I use Not My Mothers shampoo & conditioner, strong growth one, red label also purple ones! You can get at Ulta or Walgreens , etc! It has really helped Alot, and its inexpensive. Im on predisone too. Just diagnosed in February.

October 13, 2019
A MyLupusTeam Member

Thank you for sharing Sasse I will look for it in Walgreens.

October 14, 2019
A MyLupusTeam Member

I have been losing hair on plaquenil i went to nature tyme and they gave me some oil dir thinning hair and i take biotin everyday

October 13, 2019
A MyLupusTeam Member

Yes I have around my edges

October 13, 2019

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