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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Benlysta

A MyLupusTeam Member asked a question πŸ’­
Dallas, TX

Has anyone tried the infusion/injectable Benlysta? This is the only medication specifically made to treat Lupus. My new rheumatologist would like to start me on this medication.

November 2, 2019
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A MyLupusTeam Member

I am on the autoumjection benalysta for about 6 years and It does great things for all of your lupus and organs!!❀️😍

March 30, 2023
A MyLupusTeam Member

I do benlysta infusions every month or so and i have noticed a difference in the pain. Granted you're still going to feel some pains and aches but it's no where near as bad as it was before i started the infusions. The day of my infusion and for the next day or so i am really fatigued and i also get nauseous but i think thats a personal thing because im often nauseous. The relief lasts anywhere for 2-3 weeks for me. I also take vitamins and other medications and use creams for the aches and pains daily but i personally think the benlysta infusions have helped me. I hope it works out for you!

November 3, 2019
A MyLupusTeam Member

I was on Benlysta for 3 years and it helped. I recently went off of it because it was causing me to feel sick. I may be going back in it at my next appointment. I first had infusions which are time consuming but needed for some patients. The injectors are really easy to use. Benlysta also has a copay program that will pay the cost of your medicine.

November 5, 2019
A MyLupusTeam Member

I have been on Benlysta for almost 2 years. I have been able to stop Plaquenil. For the most part, it seems to be working better than any other meds I have taken

November 3, 2019
A MyLupusTeam Member

I have Benlysta infusions every 30 days. It's great stuff. The relief lasts about 2 1/2 to 3 weeks, but fatigue and pain relief for any amt of time is great... hope u get good results too.

November 2, 2019

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