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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Taking Cytoxan

A MyLupusTeam Member asked a question πŸ’­
Gardena, CA

Hello, I start my cytoxan infusion in two weeks for nerve issues. Is there anything to look forward to.? pros and cons.
Thank you

November 9, 2019
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A MyLupusTeam Member

I had cytoxin and besides the horrible taste and feeling shitty for a bit afterwards, that was my worst experience. I lost no hair at all. I am really surprised to hear a lot of people that have lost their hair. I pray that it is what your body needs to help you manage your Lupus. πŸ’›

November 12, 2019
A MyLupusTeam Member

Praying it helps!!

November 10, 2019
A MyLupusTeam Member

I got some cytoxan infusions and it saved my kidneys it put me in remission (all I take for my lupus now is plaquenil and myfortic for my lupus).I did get some hairloss but my hair grew back and some nausea but zofran took care of that

November 10, 2019
A MyLupusTeam Member

I hope they find something that will help you.

November 9, 2019
A MyLupusTeam Member

Just completed my infusions last month for Lupus Nephritis....Didn't help like they thought it would..so they want to start a new treatment. The Cytoxan did make me lose some hair..so I cut it short and I was tired 4 days after each treatment..but no nausea or vomiting. Just bring things to keep you occupied.

November 9, 2019

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