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Sharp, Stinging Pain

A MyLupusTeam Member asked a question πŸ’­
Inverness, CA

I have been taking Hydroxychloroquine for 3months now and not really seeing much of a difference.

Lately, I have intense pain, especially through the night, all round my torso but it seems so intense on right side, from back say right kidney through to gallbladder..... Like it's stinging.......I can barely rotate in bed..... Does anyone has something similar?

I was taking cbd oil but getti g terrible heart palpitations, may try this again, to see if relieves the pain.

Thankyou!!

December 22, 2020
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A MyLupusTeam Member

Jew Jew I have had the stinging and unsettled feeling for a few weeks. And your description of it feeling like a hot shot is the best way to describe it.

April 30, 2023
A MyLupusTeam Member

I deal with that stinging from time to time. The last time the doctor said it was pleurisy (inflammation aroud the lining of the lungs). Its feel lower but its awfully painful. I deal with the stinging in my arms and legs. Its like a hot shot to my body.

April 13, 2023
A MyLupusTeam Member

It never did anything for me. It was tge first drug they put me on. You have to just keep trying. I have been on over 15 different meds for lupus/RA. Some work better than others and most will fade over time. Some will work but have side effects that are worse than what you are trying to treat. A good rheumatologist is key.

March 10, 2023
A MyLupusTeam Member

No, not yet, I was due to go and see them Dec but no letter been sent yet! I fought for 3 years to get where I am now but never had scans, etc.

Just a blood test flagged up in March 20 but wasn't seen until Sept.

Feel tired but don't want yo go to sleep as you know how much pain you will be in. Frustrating. X

December 22, 2020
A MyLupusTeam Member

I have the same issue with sharp pain on my left side. The pain wraps around from the mid of my back to the front, making it extremely painful to roll on my left side or lay on it. I have talked to my RHEUMATOLOGY doctor and he has ordered test to be performed to ensure its not my kidney, or other vital organs. Lupus is so unpredictable, and unfortunately doctors can't pin point the "why or how come" . There isn't always a method or medicine that can cure or ease it. I've been living with Lupus for 20 plus years. I've made minor changes in my lifestyle that have paid off greatly. Those changes included dietary changes, exercising, meditating, and I stopped using opiods and narcotics. I listen to my body, and when I'm unable to move like I want too, I rest. My mental is my daily struggle with my lupus, but I pray and meditate daily and I talk to my therapist regularly. I also do alot of talking to God. I surround myself with positivity. My family and friends know my illness and how it affects me, and they understand. CBD oils and creams never worked for me; but cannibnoids (straight THC) from cannabis does. If you live in a state where it is legal, then suggest you speak with your doctor about it to see if you are a candidate who can benefit from it. I'm 57 years old and I live a very full life. I volunteer in my community and I enjoy my family & friends. No one can tell your story about your autoimmune illness; listen to your body and make the necessary changes to benefit you in the long run. Let go of everything and everyone that is negative. Make you a priority and don't allow your medications to be a crutch. If they don't work or provide relief, speak with your doctor. What works for some may not work for you. I was taking 26 medications a day, now I'm down to 11 a day (I also take vitamins and other healthy supplements). Love yourself, take care of yourself, know that you are worthy of everything that is good. God bless you all.

March 12, 2023

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