I've had Sjogrens for about 5 years and also take Pilocarpine. Mine doesn't sound as bad as yours, though...chewing gum really helps my mouth. There are lubricants you can put in your eyes at night (kind of like Vaseline) that make them refreshed for the morning. You can have plugs put in your tear ducts (very easy procedure) to keep the moisture from escaping from your eyes.

I was diagnosed with Sjogrens 24 years ago. I have taken pilocarpine for the whole time. It helps but only really lasts 2 to 3 hours. I take it 4 times a day. The dryness in my eyes has gotten worse over time. I am taking cyclosporine 0.1% made in a compunding pharmacy. I have a motility disorder and swallowing problems. I am on estradiol for dryness. It has been a challange. I also use biotin spray for my mouth when I think about it. Have a good week!

I have Sjogrens as well. I chew gum as well to create moisture in my mouth. I also have a metal cup with a metal straw that came with a lid. I have it with me 24/7 as I get extremely thirsty all the time. I also do not brush my tongue hard, but have a very soft bristle brush for my tongue as it cracks and has grooves in it. I also do not know what, but I also cannot have real hot food in my mouth. It can be warm enough to eat, but not too warm or it bothers my mouth and tongue and my throat is very sensitive to hot and or spicy food.

Yes, I was diagnosed 20 years ago. I have been on Pilocarpine most if that's time. I don't know what I would do I without it. I take at 4 times a day. It only lasts for a few hours but it helps with dry mouth and swallowing food. The only side effect that I have noticed. Is increased sweating but I am not sure if that's is from the medication. My eyes are very dry and I take restasis and refresh eye drops when needed. There are also dry mouth sprays that you can get. I hope you can find what works for you. Prayers for finding the help that you need.