Hey Deary so I happen to come across this while I was leaving you a message LOL on my other page but umm I agree with @A MyLupusTeam Member I definitely think you should get a second opinion before I got an actual diagnosis of my kidney failing lupus and all of that my doctor wanted to tell me that I was just being lazy and I didn't want to work and so I was making up symptoms craziness like that. But people know when their bodies are not right. So just reading this alone I already don't like her either LOL. You need A Doctor who's going to care about yours issues and concerns just as important as you take them. Honestly can't tell you what the level should be but I can tell you that I have experienced that. I had so much protein in my urine at one point that my urine was becoming foamy and that's because I was eating a lot of meat and eggs like there was eggs everyday two and three different eggs that I ate everyday along with all the meat that I was eating everyday and so though my doctor was saying it's good for me to eat protein that maybe I was taking a little overboard. So I backed off on the eggs but obviously I kept eating meat. And then as far as the creatinine level the only thing you can do is kind of cut out everything else that you would normally drink and then just focus on drinking twice the amount of water that you would normally drink so like we're supposed to drink 32 oz of water a day so see if you can up it to at least 20 more ounces a day as a start, will you get tired of water heck yeah but it's necessary. If changing the meat intake and taking in more water doesn't help then it definitely will sound like your kidneys are taking a turn, because our kidneys flush out the bacteria that's within our bodies so if your kidneys are not getting rid of all the bad things that we build up then they are not working properly. A normal creatinine level for a person would be like 1.0, and I'm basing that off of the fact that after I got my kidney transplant my creatinine was at a 1.1 and then I had a creatinine of 1.0 and they were telling me that my kidney is functioning at a rate of which a normal person with no health issues and that has two kidneys were functioning as my one transplanted kidney. So just continue to look for someone who's going to help you you know someone with good bed size manner someone who is going to advocate for you you know we have to be our own advocate but someone who is going to help you reach some sort of conclusion so that you can continue to get the proper care by the time they found my situation out was 8 months after I started getting sick and I was becoming terminal but here I am 18 years later so be your own advocate push push push never give up I know it's hard but you can do it. 💜💜💜

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A MyLupus...

Definitely see a nephrologist as soon as possible. In the meantime the other docs can order a 24 hour urine collection to get more information, a ct of kidneys, and other tests before the biopsy. You do sound like kidney disease is occurring. It is common, more common than people think. Kidney disease is staged 1-5. Up to stage 3 it is relatively manageable and damage can be slowed but after that point it is much harder. So it is important to be proactive now.

Hello.. I feel like you may need to get your kidneys checked because thats how I found out I had lupus. They did a biopsy of my kidneys and found that it had inflammation from there they detected the lupus in my kidneys. At that time the my diagnosis was chemical induced lupus of the kidneys. Then after many more test and a lot of steroids the nephritis of the kidney went down and my kidneys was saved thx God! But then my diagnosis turned into dis coid lupus. I already had vitiligo so that made since at the time. Not even 3 months later my diagnosis turned into SLE lupus. My urologist is a key factor to my journey so you may be on your way to a diagnosis. I had vitiligo for over 14 yrs and symptoms that are dated back from those times. So my doc strongly believe that I had lupus b4 i had vitiligo. I told him they checked for lupus in the past around that time and my results came out negative. He said it takes years to actually get a correct diagnosis. In my case it took 15yrs but here i am living life day to day because every day is different but its still a blessing. Good luck and advocate for yourself!

Good morning
If your having kidney issues you need to see a nephrologist. That’s who I saw when I was first diagnosed with lupus. Hope you feel better soon.

It took my pcp a few years to see that something was wrong. My fingers and hands had begin to swell i was in so much pain, i knew about the rheumatoid arthritis for yesrs but Just diagnosed with Lupus this year my hair fell out, the skin itching drove me crazy, and just told my pcp about the
Discoloration with my urine also. So please go get a second opinion you will be in my prayers.