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Circulation

Circulation

I just started feeling these bursts of electric heat shocks. Hard to explain but I feel like my body is being pounded with rain or sleet. It’s like a electric zapping in my whole body from the neck to my toes. My family thinks I am crazy because I will ask them if it’s raining. They look at me like I am crazy. It is happening now and every time it starts it gets worse each time I feel like crawling out of my skin. What is this related to? Does anyone else have this happen to them? If so… read more

A MyLupusTeam Member said:

This could be Raynaud's syndrome. If you turn purple and blue in the hands and feet. There is no known reason, there is no known cure. I have had it all my life. I have to wear long sleeves even in the summer, air conditioners can be brutal even when you go out. Stores as with winter and the heat don't know how to regulate them. So I wear a sweatshirt. Or if you ( different symptoms) have to move alot to make it stop tingling it's not that it works but you feel like your doing something. I've had it for over 10 years before I was finally sent to a neurologist who put me on Gababentin. It's my miracle drug. I hope you feel better soon. Many prayers to you.

posted 5 months ago
A MyLupusTeam Member said:

Dysesthesia is usually treated with the following medications:

antiseizure agents, such as gabapentin (Neurontin), pregabalin (Lyrica), carbamazepine (Tegretol), and phenytoin (Dilantin), to calm the nerves
certain antidepressants, such as amitriptyline (Elavil), nortriptyline (Pamelor), and desipramine (Norpramin), to change your body’s response to pain
topical pain-relief creams that contain lidocaine or capsaicin
the opioid tramadol (Ultram, ConZip, Ryzolt), rarely prescribedskin or scalp irritation or infection due to scratching or rubbing
daytime fatigue due to poor sleep
inability to perform everyday tasks
isolation from avoiding social outings
irritability, anxiety, or depression
If your dysesthesia symptoms are interfering with your life, you should see your primary care physician or a neurologist. Other causes for your pain should be examined and ruled out.

Dysesthesia doesn’t always require treatment. But if you seek help, there are a variety of options to manage it and improve your overall quality of life.

posted 5 months ago
A MyLupusTeam Member said:

Good morning. I get that when I go to bed at night. I feel like electric current is going through my body. I think it's because we need to rest and just letting go and relaxing. Mine last about 10 minutes. See if you need to rest.

posted 5 months ago
A MyLupusTeam Member said:

Ah, sounds like neuropathy. While I don’t have it as extremely as you do, I get it in bits and spurts. Sometimes a rash comes with it, other times, it’s just all the nerves misfiring.
Does your heart rate increase when it happens? Or does it happen at rest?
I actually use Benadryl for it, although I’m sure someone here will have a way better idea. I find it calms down the nerves and my immune system in general. Probably bc it makes me drowsy.

posted 6 months ago
A MyLupusTeam Member said:

I have felt that too. It came on after I recovered from COVID. It feels like someone is poking you with an ice pick. Dr. said COVID along with the lupus is affecting my nervous system. It doesn't happen that often though.

posted 5 months ago
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