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Next time I see the rheumatologist she will be placing me on CellCept to go along with my Benlysta infusions, Plaquenil, colchicine (for pleurisy), pilocarpine (for Sjogren’s) and Lidex gel for my ulcers. Has anyone on here taken CellCept? What was your experience with it? Any side effects? If you were on Imuran (azathioprine) previous to this, did you find that it worked better for your symptoms
I know it can affect liver and kidney function, but so can my seizure meds, etc. so as long as… read more
I get the infusion for every 28 days…it just doesn’t last.🥺
I wonder if your pharmacist would be willing to call your rheumatologist? Having someone in your corner like that, especially regarding meds and your care, is great!
I’m glad the nurse told you that the doc is leaving. Even if she wasn’t supposed to say so, this tells you that there will be a different specialist reviewing your case. In that case, if you can hold on or hold out until November do it! If you can’t, get that pharmacist of yours to make a serious call over to the doc, and tell them what’s what in your world; know what I mean? Let them fight for you snd you have every right, as the patient, to refuse a medication; Patient Bill of Rights.
@A MyLupusTeam Member
Yes I was on cell cept for 2.5 years for the protein in my kidneys and swelling in body.
No side effects. Praying the medication helps you.
CellCept, also known as Mycophenolate mofetil, is an immunomodulator used off-label to treat lupus, particularly lupus nephritis. It works by blocking the synthesis of purine, a protein needed to produce lymphocytes, which are white blood cells active in the immune system. By interfering with lymphocytes, CellCept helps Show Full Answer
Hello Bekah
I go and see my doctor for my Lupus he ask me about the medicine and how it is working and than I’m dealing with being tried and my face getting so red it’s like I’m having hot flashes but it’s not that I know it’s my Lupus and than when I getting tried I go and lay down but here lately it’s been all the time
Have a great weekend
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