I'd like to add, a sed rate is only one test used in lupus. A higher level usually means more inflammation. For the most part, mine has been normal, even when my I'm in a crazy flare.
Lupus is a strange disease. Because it is different in different patients. I also wonder if certain drugs (steroids and other disease modifying drugs) affect the numbers. I've spoken with "lupus specialists" at the Cleveland clinic and what I've been told is that in order to find a cure, the disease known as SLE needs to be divided in sub categories, because it affects so many people in so many different ways.

Can go either way. Sounds like ur stable

Hi Calli: My ANA levels
and lupus titers have essentially remained the same over 40 years of having Lupus but my sed rate and CRP (c reactive proteins ) have varied over the years . and my understanding is that the titters are more an indicator if you have Lupus whereas the set rate and c reactive proteins are measurements of inflammation at the time of your bloodwork . On the other hand, the sed rate and CRP often times go down when the lupus is being managed well. Benlysta has been a miracle drug reducing the inflammation, however if I’m under a great deal of stress purple long period of time , inflammation can get ignited and I’m more likely to see the sed rate and CRP move up. Recently that was the case
And my joint pain returned and I had to increase my prednisone slightly .. Hope this is helpful.

It depends. This question should be answered by a doctor. Hopefully, you have a good rheumatologist.
❤️

We have finally realized that SED rate is not a good marker for my inflammation. Seems strange but what about this disease isn’t??