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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLupusTeam Member asked a question 💭
Henderson, NC

For those of you who have pots, how do you deal on a daily basis? I submitted a medical accomodation to my job for me to have a laptop so that i can lay down or kind of lean backwards when im working because when I am sitting up my chest us hurting my blood pressure either drops extremely low and causes a headache and i just cannot work like that. Im happy that my job is willing to meet my accomodations though. I just have to learn how to manage with this so any advice at all is helpful and… read more

December 13, 2021
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A MyLupusTeam Member

I found this helpful: https://my.clevelandclinic.org/health/diseases/...

December 13, 2021
A MyLupusTeam Member

I am not currently working, but a few things you can do:
Compression stockings -full leg
Extra sodium
Hydration
Get those legs pumping and watch circulation
Changing direction, getting up from lying or sitting, or bending down are my main culprits, so I try to go slowly.
I get migraines, dizzy spells and vertigo, but I have also fainted, so between that and my lupus flares going back to work is not ideal.
Hope this helps!

December 13, 2021
A MyLupusTeam Member

I’m sorry sweetie. I KNOW how awful it is. Here is some information that might be helpful https://my.clevelandclinic.org/health/diseases/...
Can you ask your cardiologist to schedule a Tilt Table test?
Do you salt your food?

March 21, 2022 (edited)
A MyLupusTeam Member

Jashetta used compression socks and always have fluid next to you. I hope you feel better soon sis 🙏♥️. I drink zero sugar Gatorade orange one.

December 13, 2021
A MyLupusTeam Member

Do you have high cholesterol? Kidney issues? How are you treating the atherosclerosis? Pls remind me what your diet is like and if you eat processed foods so can’t remember if you follow the standard American diet or eat healthier. And do you exercise? Have you chatted with Henry?

March 24, 2022 (edited)

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