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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Any Positive Outcomes With Neurontin?

A MyLupusTeam Member asked a question 💭
West Alexander, PA

I'm currently on plaquenil prednisone cellcept and xtampza. Doctor prescribed neurontin which I start today.. Hoping it helps with jaw face and skull pain.

January 7, 2022
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A MyLupusTeam Member

Update..neurontin seems to be helping with my headaches and I'm sleeping so much better. Hopefully I can taper off prednisone. Already stopped cellcept didn't help me at all. Will see what Doctor plans next when I talk to him in a couple weeks. At least I'm getting some relief in the mean time..maybe my prayers are being answered🙏

January 16, 2022
A MyLupusTeam Member

Works. I also use 1gram of acetaminophen with it. Trying to wean off Tramadol

January 16, 2022
A MyLupusTeam Member

Yes it helps me and several others with neuropathic pain. I take 600 mg per night. I can also take it in the daytime, but it makes me groggy so I don’t. My sister takes more than twice my dose. It has been around forever. I would need to take a lot more other pain med if I did not take it. It does take a few weeks to really see benefits. Also, it is the type of drug you do not want to stop abruptly. You need to taper off if you decide to stop. It is worth a try.

January 7, 2022
A MyLupusTeam Member

I used to take it and I got the best sleep. But it just made me too sleepy so I had to stop. Glad it's helping you.

January 16, 2022 (edited)

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