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Cellcept
I am being switched from Methotrexate to Cellcept, and then to add 200mg of Plaquenil back in in a week if I tolerate cellcept. Going slow with cellcept 250mg twice a day. Rheumatologist feels I have a CTD with an underlying myositis and lupus because of my elevated CK. Prednisone has brought it down, now only on 7mg. All my warriors give my the scoop on cellcept, the good,,bad, ugly, and has it helped your symptoms, if so, in what ways.
I’ve been on Myfortic (GI easy form of Cellcept) for about 7 months. I can say I do have some nausea but take it with food. Overall, I feel better more often for the first time in 3 years. As you understand, the damage done to the joints etc is there/pain is there but I have a bit more energy and can do a bit more a few days a week. I am delighted to be able to say that!!! So I’m hopeful for you! Stay positive 😊💪☮️
I was taking cellcept 1000mg 2x a day for 6 months with no side effects. Didn't think it was really helping so Doctor took me off and put me on methotrexate. Bad move for me...went into a terrible flare so sick for 3 weeks! Methotrexate not for me so I'm back on cellcept. I didn't realize how much it was helping me until I was off it. Seems to help me with joint pain and swelling. Waiting for insurance approval for benlysta now. I'm also on plaquenil and prednisone. Doctor told me it takes time to find right combo of meds...everyone is different. Hope you find what works for you 🙏💖🌺
I am on Cellcept 2000 mg started 2018 and got Shingles real bad had to g to the hospital, swelled up. I have had Shingles before now left side of had has nerve damage. Therefore when it gets really bad I have to take Gabapentin. They reduced to 1000 mg now I am on 500 mg. I am also on 400 mg Plaquenil per day. I think we just have to see how these Medications treat us and everyone is not the same. I pray all the best for you.
Hope u r feeling ok!! Cellcept made my underlying daily nausea & reflux worse so they changed me to Myfortic ( which is coated Cellcept and supposedly has less nausea). I can do ok with Myfortic. I have big GI issues so that was my experience-doesn’t mean it will happen to you tho. As far as controlling my disease, in general I’m a bit better with aches/joints, fatigue. Still have kidney issues but no worse-so I’m grateful for that. Still have skin rashes-but they don’t know what to do about that. The damage is done already so just trying to keep it under control. So it has helped me I think. I take it with food. I hope it helps you-stay positive ☮️
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