Thanks, I am going to stick with her for now, I go through a native health clinic so I would have to be referred out for a rheumatologist. I am happy with her though, she the only doctor I've seen that has been listening to me and doing something about it. The Meloxicam is helping, my headaches are gone but my hands and feet still get painful and throb. My hands are the worst as if I do something for to long they hurt and they are weaker then they used to be. I'll bring that up with my physical therapist on Tuesday.

Welcome Jenn. Sorry you are feeling so poorly. I went through the whole gambit too when I was diagnosed with SLE. The 24 hour urine collection is to see what your kidney output is and if there is protein present. They are checking for kidney damage. I check every time I urinate to see if it is foamy. So far, knock on wood, I am good on the kidneys. But I have some pain daily somewhere. Usually, it is my feet, ankles or back. I take Aleve and have a muscle rub that helps. When it hits at night when I am trying to fall asleep, then I need something to put me to sleep such as Z-Quil. I very seldom get headaches but hear that they too are common with people who have Lupus. Stay with us, and we will help you navigate this together, ok?

Thanks, so far today my headache and jaw pain is the worst. My ears even hurt and I'm assuming it's referred pain from my jaw. I'm hoping we can figure this out so I can get feeling a bit better.

So, saw the rhuematologist last month, she believes it's either psoriatic arthritis or some kind of Ankylo arthritis. Getting an MRI of my foot and ankle on the 21st and I had to go off of Meloxicam as my BP was going up with it and ove been having potting edema on my legs. They checked out everything heart wise and liver wise and that's all good. So now I'm on furosemide and yesterday afternoon was my first try at taking Indomethicin and omg it works so well,makes me feel almost normal. Hopefully my BP won't spike back up on it, just happy to be out of pain for once. But stopping the Meloxicam before I got the indocin made me realize how much worse my pain had gotten , so now I'm glad I have something stronger for it.

Seriously Jenn, consider finding a good Rheumatologist that knows Lupus symptoms and knows how to read the complexities of your blood test. If you feel comfortable enough with your GP, then stay there. But most GPs are not experienced in RA or Lupus. Just a suggestion. ❤️