Labs don't always show when you are having a flare! Sometimes if the Dr. Does a SED rate it will show inflammation. But, in my experience, you dont need a Dr. To tell you that you are having a flare up. Listen to your body. ☺️

Good afternoon! I am so glad you asked this question. This has been one long, frustrating journey. I understand where you are at! According to my Rheumy, ive been in one continuous flare since ive been seeing him. Passed about six surgeries, triggers and etc. I have explained that my entire body feels like its lit like Christmas all the time. Worse in the morning or bedtime. Also worsens randomly with no type of pattern or triggers present. I said all of this to say, I really feel that Doctors do not understand the many facets of Lupus. because it reacts randomly per individual with only some symptoms the same. I do not feel we as the patients are not listened to or beleived as to our symptoms and health quality. I believe Doctors should remember that one oh so important line, (Oh! you look great/fine or it doesnt look like anything is wrong with you)! At the start of Lupus (I was 32 first diagnosis) it is a challenge to manage the symptoms, but do-able. We are able to work, go to the gym, have a life uninterrupted for the most part, with a few lifestyle changes. It has been my experience, and that of many, as we age the symptoms multiply and worsen, it becomes very difficult to manage, Therapy, exercise, diet, and even sometime pain meds or anti-malarial medications, or others, do little to nothing to help. I have just come to the conclusion with this disease, thats just the gist of it. Im not trying to deter or speak negatively about the effects of this disease, but it is an anomaly, something that unfortunately Doctors may not be able to explain. At this point ive learned how much I can do daily, by what my body tells me. I understand the blood work may not show a flare, but my body is definitely going through or doing something. I wish there were a better answer, but I can give you the truth, no one will tell you based on experience and not just Soley on science.

It is my understanding that any surgeries can cause an autoimmune reaction which causes a lupus flare.
You know your body best.
I hope you have remission and quick recovery.💝

Good morning! First and foremost, I want to say how sorry I am you are going through this.
It's been in my experience to this point, Labs do not always indicate you are in an active flare. The reason I say that is, I've had results showing, I am currently within guidelines, but yet I am really sick and showing symptoms (signs) of active flare. So, much so, my Rheumatologist placed me on Prednisone, and later increasing it to the max. His words were, "Since I have been seeing you (about 3 years at that time), I don't understand why you appear to be in one long, continuous flare" I amin constant pain DAILY, headaches come and go, my face is pink: nose cherry red, mood swings. joints in my hands, legs, and back are pounding, and very extreme fatigue. With the help of the medications, support of my family, and listening to my body, I am able to function day to day. Some better than others. with no warning, something involving my symptoms gets worse, then I either end up in the hospital or bed ridden. I'm sharing this not to say this is your situation, but to say this my experience and maybe it helps you under and others understand what's happening in your life right now and its common among US as Warriors. I hope this helps

Recovering from mastectomy with complications. Maybe that is why I feel so run down? I thought for sure it was the Lupus though, all the symptoms are present just like they have been in the past, very strange…