Well, symptoms depend on the area the brain injuries are. In my case my symptoms are: severe headaches, lost of balance regularly, dizziness, light and noise intolerance, extrem fatigue, post and disautonomia, slow thinking, hard time to remember things, brain fogs.
This neurologist put me on sodic valproico and stronger pain killers and a 1/4 of sedative to help me to sleep beeter.
He recomended to pressure my rehumatologist to get as soon as posible ritusimab to stop lupus activity and those injuries in my brain.

I wish you the best!

Xoxo

I have a similar evperience due to vasculitis in the brain. I had to travel to Mexico to get better diagnosis and treatment.
I send you a hug, my love and preyers , so uou find a right treatment and healing.

Xoxo

I’m going through this now, had a Lupus flare that put in the hospital for a week. It affected my nerves and I couldn’t walk or use my hands. My memory is now affect and I had an MRI and they talked about my white matter. Now I’m going to see a Neurologist next week and a spinal tap will be scheduled to see if the Lupus has affected my brain. I’m having really bad cognitive issues.

Thank you Margien. I am sorry that you have had to go through so much. Medical care is not what it should be, in my opinion. It took me a lot of time, persistence, and sometimes downright insulting doctors to get diagnosed with CIDP.

The brain MRI report did mention vasculitis as a possible cause. Do you mind telling me if you had any of the following symptoms? Had issues for the past months with chronic diarrhea. Food was going right through me like water. After several tests, was told by Gastro doctor that she suspects it is EPI. The enzymes are helping. Also have petechiae/purpura, but I've read that this could be caused by low vitamin K, which makes sense because of the malabsortion. Have only been on the enzymes for a few weeks now, but the rash doesn't seem to be getting any better.

Sending prayers, peace and love to you as well.