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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Rheumatologist Is Considering Replacing My Benlysta With Saphnelo And My Cellcept With Voclosporin. Anyone Take These With Results?

A MyLupusTeam Member asked a question πŸ’­
West Alexander, PA
December 19, 2022
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A MyLupusTeam Member

I have been on benlysta and celcept for several years. Its the best i have felt. Dont know anything about either of those meds. Sorry. Hope they work well if you have to change.

December 19, 2022
A MyLupusTeam Member

Im in the same position I'm Following πŸ’œ

December 19, 2022
A MyLupusTeam Member

@A MyLupusTeam Member
Voclosporin is a pill. Common name is Lupkynis. Was the Benlysta helping you? I felt like it was helping me then it slowly started to lose its effectiveness. I really don't think the cellcept or the plaquenil are doing anything but Dr. still wants me taking them. I'm just really getting frustrated again. I hope you do well with the Saphnelo. Have a wonderful and blessed day.

January 4, 2023
A MyLupusTeam Member

I am starting saphnelo this month. I take cellcept, Benlysta, acthar gel and prednisone. I don’t know anything about voclosporin. Is it a pill, injection or infusion?

January 3, 2023
A MyLupusTeam Member

I have retuximab every six months, I'm on CellCept, and I am tapering down from 60 mg prednisone. I am now only on 7 mg prednisone. Yes, I have osteoporosis from all the prednisone and I take Alendronate once a week. When I went from 9 mg to 8 mg of prednisone I started to feel more arthritic and more muscle pain (polymyositis). Since I was on a lower amount of prednisone I was allowed to take naproxen again, but it wasn't helping much. I complained to my rheumy and told him I was on nabumetone which worked like a charm until it was pulled from the market. Guess what?! It wasn't pulled from the market! So now I am taking nabumetone for pain and it again, is working like a charm. I don't know anything about Benlysta, Saphnelo or Voclosporin. Take your tums! Or some form of calcium! Try not to grind your teeth. I've had teeth pulled and I'm not letting them sell me on implants because of the Alendronate, and because my flares last year were due to being off Cellcept for antibiotic treatment for dental issues. Be careful!!

December 23, 2022

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