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Methotrexate What Are Your Experiences
They just started me on Methotrexate injections, I do them once a week. They took me off Plaquenil as I didn’t feel like it was working after being on it for 4 months. I’m also on Cellcept 2000mg and prednisone 30mg (they want to lower this now down to 5mg a day if we can)
Has methotrexate worked well for others? Any advice? Also my Dr told me to take 1000mg of folic acid when I do the shot of Methotrexate but I have read conflicting reports.
Also I’ve noticed though the last few days… read more
I take both Cellcept and Plaquinil.
I can tell you that Cellcept has a lot of side effects. Some side effects aren't even reported. I know that both medications have a lot of the same side effects. I've been on Plaquinil for years now and it hasn't really given me any issues. I think alot of my issues come from the Cellcept. I'm trying to find an alternative to this medication but everytime I ask my doctor about it, I'm told there isn't really any and it would be better to stay on it.
I would suggest you do your research and you can also see a naturalist for another opinon.
I hope this helps.
Hello @A MyLupusTeam Member I also just started methotrexate. This is my 3rd week. I honestly don’t feel a different just yet. I feel same. But will stay positive. Have an appointment coming up next week. I will see what they say. Staying positive! Good luck ☺️
I've never taken that medicine. I have been on plaquenil for 20 years. My Lupus is on and off. Just recently started to get painful and brutal pack pains. Got an MRI done and I have Spinal Stenosis. I feel like slowly I am breaking apart. It's hard to live with Lupus you never know what is next. I hope the medicine works out for you but please make sure you get some x-rays done for your back.
Agree with cmickey. It really doesnt start to work for 4 months and you hardly notice that it is working. It continues to work and has improved my health a lot. But is is slow. Keep a journal of symptoms and severity. You are on other things so that makes it difficult to know whats working. Should you go off of it, it takesa couple of months to clear your system. The more meds you take the more complicated it gets. Good luck!
I've been on methotrexate for several years. I started the injections about 6 months ago. I do feel it works better than the plaquenil did, and the injection seems to work better than the oral form. I am extremely tired the day after my injection. My doctor has me on leucovoren calcium to take 12 hours and 24 hours after the methotrexate. This is suppose to minimize the adverse effects. Best of luck. Sending gentle hugs to you. ❤️
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