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Hi! About a year now my eyelids have been swelling and getting red on and off. Sometimes it’s just a little red and others my eye lids are completely swollen. Recently my eyelids got the worse it’s ever been. I can attach an image, no doctor can figure this out. I’ve been to my rhematoid who doesn’t think this is lupus related, an allergist, ophthalmologist, and multiple dermatologists. The day it got swollen I took benadryl around the clock for 2 days. The only thing that seems to help is when… read more
Have you had your blood work done recently? Also, I would ask to have my kidneys checked out.
@A MyLupusTeam Member My dermatologist and opth said it’s okay just not long term. I switch between two medications, one non steroids
Is it painful or itchy? Do you have kidney disease? I'm sure Derm and Ophth warned against steroid cream on the eyelids--it thins the tissue, possibly contributing to discoloration. If some gets in the eyes, it can lead to cataracts/glaucoma.
Are you careful to avoid UV exposure? UV is one of the biggest triggers for skin lupus manifestations. You may want to step up your precautions wit h SPF at least 55 covering you completely and avoiding the sun. I've written more details about this, if you want to see my story.
Yes. I keep thinking it’s allergies but now you mention it, I am in a flare.
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