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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hey Friends !! I’m Having A Flare Up, Pretty Bad, Was Wondering If Any Body Else Had Muscle Spasms During Flare. I Mean Extreme Cramps

A MyLupusTeam Member asked a question 💭
Centreville, AL
April 11, 2023
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A MyLupusTeam Member

Yes, cramping, spasms and tightness in the legs. I find heat packs work for me but only sometimes as they become too heavy and it feels like someone is sitting on my legs! I also find putting pillows under my knees and ankles helps also

April 11, 2023
A MyLupusTeam Member

Yes I have that too.
Doctor gave me Valium or diazepam 5mg.
1 before bed every night.
Am allowed to increase to 10mg if really severe.
Hope that helps.😒💜

April 12, 2023
A MyLupusTeam Member

Sometimes yes.

I'm currently trying to do as much as I can with diet and lifestyle changes.
I have blood work done every 3 months to check levels.

If they start to go to low I add a supplement until they are back in range and adapt my diet. I'll drop the supplements if the levels are good.

It took almost 2 years to get the Vitamin D anywhere near correct, but only about 6 months on the magnesium being close. I was severely deficient in both at the beginning.

April 14, 2023
A MyLupusTeam Member

Thank you Matthew Stress is a bad thing for me. I take vit d but wasn’t aware of watching magnesium. Do you take a supplement for that ?

April 13, 2023
A MyLupusTeam Member

Yes!

I have eye twitching and spasms all the time during flare ups. At first it was really bad.

For me, I have found that watching my vitamin D and magnesium levels help as well as trying to manage stress levels.

April 13, 2023

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