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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Taken Cellcept For Their Lupus?

A MyLupusTeam Member asked a question 💭
Rutherfordton, NC

My Rheumatologist has prescribed Cellcept for my Lupus. I am concerned about all the side effects. I would like to hear from people who have taken it.

May 15, 2023
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A MyLupusTeam Member

Yes, I've been on it for ten years for lupus nephritis and hemolytic anemia, and it has worked well to control both. It does increase infection risk, and I've had some infections, but it's prevented organ failure. I've tolerated it well overall.

May 16, 2023
A MyLupusTeam Member

I was on cellcept and I felt like I had early dementia. I could not remember from one room to the next. I had to stop taking it

November 26, 2023
A MyLupusTeam Member

I’ve been on celllcept for about 8 years. Lupus nephritis. I’ve been able to tolerate it fairly well though at first it caused nausea. CKD has been in check over this time.

May 20, 2023
A MyLupusTeam Member

I was on cellcept and caught every virus I came across. I was constantly sick so rheumy took me off of it.

May 17, 2023
A MyLupusTeam Member
July 19, 2024

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