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A MyLupusTeam Member asked a question 💭
West Palm Bch Fla

The miracle is Saphnelo IV infusions. Something very new . But it works.

May 30, 2023
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A MyLupusTeam Member

It works. You need to watch your food choices. Nothing that causes inflammation. When you have your numbers good with blood work you can introduce other foods moderately. Drink lots of water no sugar drinks. Gluten free, grass-fed, dairy free. I live in Fla no sun for me. This has been very hard for me. I've given up alot. But feeling good is on the top priority for me. Good luck. Keep me posted. With your Saphnelo IV infusions.

May 31, 2023
A MyLupusTeam Member

Hello Janice
You’re giving me so much hope which I so desperately need right now fighting this illness for 45 years having taken sooo many toxic treatments often making me more ill than the Lupus . My insurance finally accepted to cover Saphnelo and I can’t wait to start and pray it will work as well as it does for you. Take good care😊

May 30, 2023
A MyLupusTeam Member

They say weather can be a deterent with Lupus. I live in sunny S Fla. But can't be out in the sun. So I have adapted to this being a pool and bch bum. Continue with Saphnelo IV infusions. I just had my second feeling great. I haven't been good since I was diagnosed Sept 2023. Eating healthy food is important. I have changed all my good source. No gluten grass-fed no dairy. Monitor sugar and salt
I do smoothie daily and nutrition. Stay positive. I hope things get better for you

May 30, 2023
A MyLupusTeam Member

I had my first Saphnelo infusion last Monday. I actually felt good for about four days then a damn front came up the east coast and it's been cold and rainy since.
I've been hurting to the point where I didn't leave the house for 3 days. It's supposed to stop raining here tomorrow, rain on Thursday and finally clear up by the weekend.

May 30, 2023 (edited)

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