I struggle terribly with heat and sun. Stay right away unless absolutely necessary. And then flare for days later.
To Annarickard- Yes I’m the same. I used to get very down in summer not being able to join everyone at the beach. I live near the sea too. Even humidity can make my moods change.
Have accepted it now and try and get my friends and family when available to meet me on beach at sundown just so I can at least feel the water and see it. So you are not alone and the reactions are real.
Take care and hope you feel better soon.🥰

And all the best to you Anarikard. And good luck.
Hope things feel better for you soon.🦋

Thanks Marianne3, that's a very good idea to go at sundown. I will try to do the same. Sun makes me flare up badly too. All the best x

I get it--it's tough to be restricted as we are. I find a UV protectant umbrella helpful to make it easier to enjoy being out at least some--always trying to find shade. I love spring and summer even with our constraints though! 🥰

I was going to ask the same question. Also, do you struggle mentally when the weather gets warmer/sunnier? I feel like I spend all winter looking forward to spring and summer and when they arrive I get so sad, being reminded again and again that I must avoid the sun and I feel different. All my friends love the sun and they are always at weekends on the beach(we live near the sea) and I feel so "different". I try to use as much sunscreen as possible and cover with clothes and hat(but even this makes me feel less attractive and brings me down). I got myself an uv protection thin parka. Anyway, sorry for complaining, just wondering if anyone else with Lupus feels the same.