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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Legs And Feet Swelling?

A MyLupusTeam Member asked a question πŸ’­

So my whole body has been swelling randomly- my doctor knows this. My legs and feet swelling randomly- the doctor knows this. Tonight my legs and feet are swelling up bad for the first time since the doctor put me on prednisone. I've been on 40mg for 7 days- then today it started to taper me down and I'm taking 20mg for a week. Then it will be 10 for a week... idk what to do? Do I need to tell them the swelling is getting worse ?

June 4, 2023
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A MyLupusTeam Member

My daughter is continuing with testing to see why her body continues to retain fluids and swelling. Currently they are looking at the MTHFR gene mutation to see why her estrogen levels are so high. I was surprised to find that this gene mutation can cause many different bodily dysfunctions, sort of like lupus.

July 4, 2023
A MyLupusTeam Member

Yes, see your doctor, but be aware that prednisone causes our bodies to retain salt and water, causing swelling sometimes. Minimizing salt intake while taking it helps prevent swelling.

June 5, 2023
A MyLupusTeam Member

@A MyLupusTeam Member I definitely would call my Dr and let them know what is going on. Prednisone should be taking the swelling down. My daughter has gained alot of weight in a short period of time and is experiencing bloat all over her body but has yet to find out what is causing this. I am going to add you to my team and invite you to do the same. I hope you are feeling better soon.

June 5, 2023
A MyLupusTeam Member

The rheumatologist told my daughter today that it could be an adrenal issue and prescribed hydrochlorthiazide and told her to make an appointment with her primary care Dr. Just passing along this info. I hope you are feeling better.

June 5, 2023 (edited)
A MyLupusTeam Member

Somebody give that girl a water pill

June 5, 2023

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